Next steps after diagnosing dementia: interventions to help patients and families

Abstract

The way that a diagnosis of dementia is delivered to patients, what information is provided and what practical advice and support is arranged has a lasting impact and deserves at least as much attention as the process of assessment and investigation. Individuals and their families require an honest yet sensitive discussion about the nature and cause of their problems, using non-technical language and tailored to their priorities and needs. This should lead on to the provision of good-quality information in an accessible format. Priorities for intervention include medication review, attention to sensory deficits, appropriate pharmacological and nonpharmacological treatment, best use of memory aids and strategies and discussion of driving eligibility, financial entitlement and legal advice. Referral onwards should be made to an appropriate individual or service to provide ongoing emotional and practical support and signposting.

Dementia in Australia: Clinical recommendations post‐diagnosis

“…Currently, guidance on how to obtain this information in Australia is lacking, particularly for young-onset dementia (age of symptom onset <65 years). 1,4,5 Drawing from our clinical experience, this article offers recommendations and resources for post-diagnostic care, addressing both younger-and older-onset dementia populations in Australia.…”

“…Providing patients with a timely and accurate dementia diagnosis can be challenging but is essential to ensuring appropriate treatment and care (Table 1). 1 A diagnosis provides an explanation for the presenting symptoms, which may bring a sense of relief to patients and their families, easing the anxiety and uncertainty surrounding the condition. The success of this process, however, relies on effective communication skills so that the implications of the diagnosis are provided in an empathetic, sensitive and accessible manner that is tailored to the patient's specific needs.…”