NICE: Babies, children and young people’s experience of healthcare—a young person's viewpoint

Lost in research: children, healthcare and epistemic injustice

“…The United Nations Declaration on the Rights of the Child2 sets out a right for children to be consulted on matters that affect them, supporting a societal trend towards including children in governance 3. The NICE guideline committee therefore included young people who provided context and commentary on research evidence from their own experiences4 and was further informed by focus groups of children. This helped both in understanding evidence and phrasing recommendations, and in addressing questions important to the young people where there was a lack of research that drew on CYP’s experiences of healthcare.…”