No official help is available - experience of parents and children with congenital heart disease during COVID-19

Marino, LV; Wagland, Richard; Culliford, DJ; Bharucha, Tara; Sodergren, SC; Darlington, Anne‐Sophie

doi:10.1101/2020.07.03.20146076

Cited by 5 publications

(16 citation statements)

References 13 publications

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“…Findings from the SHARE studies exploring the views of parents of children with cancer, and parents of children with congenital heart disease found that parents were worried about the virus in the context of their child's disease condition. 3 This is a similar finding to parents views in the preterm population. However, parents within the preterm survey reported additional concerns about their face being covered by a mask, and the subsequent ability to bond with their baby.…”

Section: B R I E F R E P O R T Preterm Birth During the Covid-19 Pand...supporting

confidence: 88%

“…Many parents felt there was a significant psychological and emotional impact due to COVID‐19 restrictions on the birthing experience and afterwards and on their neonatal intensive care journey. Findings from the SHARE studies exploring the views of parents of children with cancer, and parents of children with congenital heart disease found that parents were worried about the virus in the context of their child's disease condition 3 . This is a similar finding to parents views in the preterm population.…”

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confidence: 59%

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Preterm birth during the COVID‐19 pandemic: Parental experience

et al. 2021

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Section: B R I E F R E P O R T Preterm Birth During the Covid-19 Pand...supporting

confidence: 88%

mentioning

confidence: 59%

Preterm birth during the COVID‐19 pandemic: Parental experience

et al. 2021

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“…94 Eighteen (25%) were medium-quality; 13 cross sectional, 49-51,53,55,57,58,60,66,68,70,75,77 and 5 pre-post studies. 85,86,88-90 Nine (13%) were low-quality; 1 cohort, 45 3 cross sectional, 47,63,69 and 5 pre-post studies 79-81,84,87…”

Section: Resultsmentioning

confidence: 99%

“…Two cross-sectional UK studies, of cancer 48 and congenital heart disease, 63 found widespread marked parental concerns about the safety of their CYP and that 70-85% of parents believed that hospitals were not safe places for their child, anxieties that were shared by their CYP. Whilst one LQ Italian study found that 25% of CYP with IBD suspended or delayed immunoregulatory treatment against medical advice, 84 a HQ English study found that only 2.3% of parents had reduced the amount of cancer chemotherapy they gave their child.…”

Section: Resultsmentioning

confidence: 99%

Impacts of school closures on physical and mental health of children and young people: a systematic review

Viner

Russell

Saulle

et al. 2021

Preprint

104

101

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Background The well-documented links between education and health mean that school closures during the COVID-19 pandemic are likely to be associated with significant health harms to children and young people (CYP). A systematic review of the evidence is needed to inform policy decisions around school closures and re-openings during the pandemic. Methods We undertook a high-quality systematic review of observational quantitative studies (published or preprint) of the impacts of school closures (for any reason) on the health, wellbeing and educational outcomes of CYP, excluding impacts of closure on transmission of infection (PROSPERO CRD42020181658). We used a machine learning approach for screening articles, with decisions on inclusion and data extraction performed independently by 2 researchers. Quality was assessed for study type. A narrative synthesis of results was undertaken as data did not allow meta-analysis. Results 16,817 records were screened, of which 151 were reviewed in full-text and 72 studies were included from 20 countries. 33% were cohort studies using historical control periods; 19% pre-post studies; and 46% cross-sectional studies which assessed change by comparison with population reference data. 63% were high-quality, 25% medium-quality and 13% low-quality. Cause of closure in all studies was the first COVID-19 pandemic wave with the exception of 5 influenza studies and 1 teacher strike. 27 studies concerning mental health identified considerable impacts across emotional, behavioural and restlessness/inattention problems; 18-60% of CYP scored above risk thresholds for distress, particularly anxiety and depressive symptoms. Two studies reported non-significant rises in suicide rates. Self-harm and psychiatric attendances were markedly reduced, indicating a rise in unmet mental health need. Child protection referrals fell 27-39%, with a halving of the expected number of referrals originating in schools. 19 studies concerning health service use showed marked reductions in emergency department (ED) presentations and hospital admissions, with evidence of delayed presentations and potential widening of inequalities in vaccination coverage. Data suggested marked rises in screen-time and social media use and reductions in physical activity however data on sleep and diet were inconclusive. Available data suggested likely higher harms in CYP from more deprived populations. Conclusions School closures as part of broader social distancing measures are associated with considerable harms to CYP health and wellbeing. Available data are short-term and longer-term harms are likely to be magnified by further school closures. Data are urgently needed on longer-term impacts using strong research designs, particularly amongst vulnerable groups. These findings are important for policy-makers seeking to balance the risks of transmission through school-aged children with the harms of closing schools.

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“…27 A study that included 220 parents of CHD patients and children diagnosed with CHD showed that both were worried due to the lack of pediatric information and guidance, and were disappointed with the adult information available. 28 Also, the physical activity of CHD children was reduced compared to 2019 and the era before the COVID-19 pandemic and if this persists, it will affect their health. 29…”

Section: Impact Of Covid-19 On Chd Patientsmentioning

confidence: 99%

Effect of COVID-19 on congenital heart disease children: a literature review

Ali

Alkhuzaie

Alhashim

et al. 2021

Int J Community Med Public Health

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Congenital heart diseases are the most common birth defects and have variable levels of severity. Some studies showed that CHD increases the odds of COVID-19 realted complications; however, others suggested that there is no such a correlation. Due to the aforementioned lack of evidence, we aim in this review to provide a comprehensive overview of the impact of COVID-19 infection on CHD patients. For that, an extensive literature search of Medline, Cochrane, and EMBASE databases was performed using the medical subject headings or a combination of all possible related terms. Patients diagnosed with both CHD and COVID-19 infection has reported that CHD patients, especially those with a genetic syndrome, are at high risk to develop moderate to severe symptoms. Moreover, CHD surgeries were postponed or even canceled, with a decline in overall admission days, due to hospital protocol or pateints’ decisions. Also, the findings suggested that congenital heart surgeries can be safely done during the pandemic when there is case volume limitation, with the safety precautions are followed by both surgical staff and patients. In conclusion, the scarce evidence along with the variety in CHD types and their different clinical presentations; makes it hard to predict the outcomes and to manage CHD-COVID-19 co-morbid children. More studies are needed to guide management plans in this particular context.

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No official help is available - experience of parents and children with congenital heart disease during COVID-19

Cited by 5 publications

References 13 publications

Preterm birth during the COVID‐19 pandemic: Parental experience

Preterm birth during the COVID‐19 pandemic: Parental experience

Impacts of school closures on physical and mental health of children and young people: a systematic review

Effect of COVID-19 on congenital heart disease children: a literature review

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