Non-cancer palliative care in the community needs greater interprofessional collaboration to maintain coordinated care and manage uncertainty

Brito, Maja de; Gomes, Bárbara

doi:10.1136/eb-2014-102029

Evid Based Nurs

2015

DOI: 10.1136/eb-2014-102029

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Non-cancer palliative care in the community needs greater interprofessional collaboration to maintain coordinated care and manage uncertainty

Maja de Brito

Bárbara Gomes

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2024

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Cited by 2 publications

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“…These long-term conditions are important to acknowledge as many people living in care homes live with these conditions, particularly dementia. 4 The practice of advance care planning was advocated by a number of participants. Advance care planning is a way to give a voice to the future wishes of a person while they still have capacity.…”

mentioning

confidence: 99%

Optimising palliative and end-of-life care within care home settings

Mitchell

Twycross

2015

Evid Based Nurs

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mentioning

confidence: 99%

Optimising palliative and end-of-life care within care home settings

Mitchell

Twycross

2015

Evid Based Nurs

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Normality and compassionate care: experiences from advanced cancer patients in their last time at home

Driller,

Maienborn,

Aasen

et al. 2024

BMC Prim. Care

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Background Many cancer patients prefer to receive palliative treatment at home, as it allows them to be in a familiar and comfortable environment. Integrating Advance Care Planning (ACP) into routine practice in primary healthcare helps patients and their relatives prepare for end-of-life (EoL) care in accordance with patients’ preferences. This includes the option to spend their final days at home if desired. The aim of this study was to gain insights from experiences of advanced seriously ill cancer patients at home while receiving palliative treatment and being engaged in ACP within primary healthcare settings. Method This study employed a qualitative design, utilizing individual, semi-structured interviews that were analysed through reflexive thematic analysis, employing an abductive approach with a latent-level focus. The study included interviews with 12 participants with cancer who were receiving palliative care, had an estimated lifetime under 3 months, and had undergone an organized ACP approach in primary healthcare, documented with a palliative plan. Results Participants emphasized the importance of (1) Preserving normality at home, maintaining a sense of routine, comfort, and familiarity in the face of present and future challenges. The top obstacles for success identified by participants included (1a) The challenge of deterioration and the dual aspects of (1b) The value and burden of family caregivers. Cancer treatment placed a significant demand on patients due to side effects. Family caregivers played a crucial role for participants, providing support in daily life and serving as a key factor in the overall decision to which extend they are able to involve in support and care at home in the future. (2) Compassionate health care personnel (HCP) made a difference by fostering a culture of understanding participants’ concerns, fears, and preferences, which was a key element that built and maintained trust for the participants. (3) Preparing for the future, especially EoL discussions initiated by healthcare personnel, was deemed important but, at times, uncomfortable for participants as it confronted them with reality. Guidance from ACP provided them with a sense of certainty and control. Conclusion Preserving normality at home, along with the desire to stay at home for as long as possible, is a crucial goal for advanced cancer patients. Consistent professional communication and care in primary healthcare play a key role in building and maintaining trust, as well as fostering a sense of certainty and control for the participants.

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Non-cancer palliative care in the community needs greater interprofessional collaboration to maintain coordinated care and manage uncertainty

Cited by 2 publications

References 6 publications

Optimising palliative and end-of-life care within care home settings

Optimising palliative and end-of-life care within care home settings

Normality and compassionate care: experiences from advanced cancer patients in their last time at home

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