Non-disclosure of cancer diagnosis: an examination of personal, medical, and psychosocial factors

Dégi, Csaba L.

doi:10.1007/s00520-008-0568-0

Cited by 33 publications

(26 citation statements)

References 42 publications

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“…Previous research has reported a relationship between nondisclosure and negative patient outcomes (e.g. increased distress, unfulfilled communication, hopelessness), [21][22][23][24] the avoidance of which were, interestingly, some of the reasons for nondisclosure for some Eastern families. [25][26][27][28] Further, oncologists reported feeling themselves, a sense of lost opportunity and poor communication due to nondisclosure, suggesting that cultural training could improve their own outcomes.…”

Section: Discussionmentioning

confidence: 99%

Responding to family requests for nondisclosure: The impact of oncologists′ cultural background

Chittem

Butow

2015

J Can Res Ther

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All oncologists felt that the family request for nondisclosure was difficult, with many cultural and emotional nuances to take into consideration. Some immigrant Australian oncologists who had a similar cultural background as the patient/family, felt they could better understand the desire for nondisclosure. Irrespective of their cultural background, all oncologists acknowledged that breaking bad news had to be done in a gentle, gradual manner. The study suggests a need to develop a culturally sensitive cancer communication model.

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Section: Discussionmentioning

confidence: 99%

Responding to family requests for nondisclosure: The impact of oncologists′ cultural background

Chittem

Butow

2015

J Can Res Ther

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“…In the past, it was common to avoid the word "cancer" or informing patients about their malignant disease; however, such avoiding behaviors are not approved in many countries anymore (2).…”

Section: Introductionmentioning

confidence: 99%

Investigating the Mental Experience of Patients Suffering From Cancer

Abdollahzadeh

Moodi

Khanjani

2017

Jundishapur J Chronic Dis Care

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Background: Despite the remarkable development of medical sciences, cancer has yet remained one of the most important diseases of the current century and the second cause of death following cardiovascular diseases. Although we witnessed considerable development in treating cancer and increased number of survivors, cancer is a unique disease that makes the patients deeply feel helplessness and fear. Methods: A qualitative content analysis research was done. The present study investigated patients' experience and behaviors after hearing about their cancer. Purposeful sampling was carried out and continued until data saturation. We used qualitative validation methods to verify the results. Results: Study participants consisted of 14 patients. 10 main components emerged from the data including: 1) getting shocked, 2) fear, 3) anxiety and stress, 4) guilt, 5) hopelessness, 6) depression, 7) isolation, 8) lack of affection and dependency on family members, 9) getting prepared to die and, 10) reviving spiritual relationship with God. Conclusions: There is a necessity to understand the mental feelings of cancer patients, and program suitable clinical interventions based on patients' mental needs. As the number of cancer patients is increasing, the results of the present study can be useful for patients' families and clinical personnel especially physicians and nurses in dealing with cancer patients.

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“…Cancer is a potentially life‐threatening disease that is considered incurable in many cultures (Kazdaglis et al ., 2010). Receiving a cancer diagnosis can be an extremely stressful event that affects patients and their families, both physically and emotionally (Widows et al ., 2005; Dégi, 2009). The issue of whether, how, and how much to disclose to patients about their disease is approached in different ways, depending on the country (Phungrassami et al ., 2003; Mystakidou et al ., 2004).…”

Section: Introductionmentioning

confidence: 99%

Cancer disclosure: Experiences of Iranian cancer patients

Valizadeh¹,

Zamanzadeh

Rahmani

et al. 2012

Nursing & Health Sciences

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This study explored Iranian patients' experiences of cancer disclosure, paying particular attention to the ways of disclosure. Twenty cancer patients were invited to participate in this qualitative inquiry by research staff in the clinical setting. In-depth, semistructured interview data were analyzed through content analysis. The rigor of the study was established by principles of credibility, transferability, dependability, and confirmability. Four themes emerged: the atmosphere of non-disclosure, eventual disclosure, distress in knowing, and the desire for information. Non-disclosure was the norm for participants, and all individuals involved made efforts to maintain an atmosphere of non-disclosure. While a select few were informed of their diagnosis by a physician or another patient, the majority eventually became aware of their diagnosis indirectly by different ways. All participants experienced distress after disclosure. The participants wanted basic information about their prognosis and treatments from their treating physicians, but did not receive this information, and encountered difficulty accessing information elsewhere. These challenges highlight the need for changes in current medical practice in Iran, as well as patient and healthcare provider education.

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Non-disclosure of cancer diagnosis: an examination of personal, medical, and psychosocial factors

Abstract: Our results underline the persistent need for delivering patient-focused health services in oncological care based on respect for the patients' right to autonomy.

Cited by 33 publications

References 42 publications

Responding to family requests for nondisclosure: The impact of oncologists′ cultural background

Responding to family requests for nondisclosure: The impact of oncologists′ cultural background

Investigating the Mental Experience of Patients Suffering From Cancer

Cancer disclosure: Experiences of Iranian cancer patients

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