2024
DOI: 10.1055/s-0044-1786358
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Nonsevere Hemophilia: The Need for a Renewed Focus and Improved Outcomes

Gerard Dolan,
Karin Fijnvandraat,
Peter J. Lenting
et al.

Abstract: People with nonsevere hemophilia (PWNSH) are phenotypically more diverse than those with severe hemophilia. Perceptions relating to a “nonsevere” phenotype have contributed to fewer research initiatives, fewer guidelines on optimal management, and a lack of standards for surveillance and clinical assessment for affected individuals. In many cases, episodes of abnormal bleeding could, if investigated, have led to earlier diagnosis. Furthermore, the major recent developments in therapy for hemophilia have largel… Show more

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