"Not Just a Receiver"

Mishra, Sonali R.; Haldar, Shefali; Pollack, Ari H.; Kendall, Logan; Miller, Andrew D.; Khelifi, Maher; Pratt, Wanda

doi:10.1145/2858036.2858167

Cited by 40 publications

(8 citation statements)

References 40 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The limited but growing evidence suggests that from the point of view of the patient, physical and emotional safety are inextricably embedded in the patient experience, and patients' experiences of safety exists on a continuum and may be influenced by a variety of factors all at once. Lack of attention to the emotional aspects of patient safety may partially explain the challenges encountered to date in designing effective interventions to increase patient and family engagement in safety (Berger, Flickinger, Pfoh, Martinez, & Dy, 2014;Mishra et al, 2016). Attention to the affective aspects of care and preventing emotional harm as a patient safety issue may be especially important in the birth arena given the extended power of women's birth experiences to shape health outcomes for themselves and their families over time.…”

Section: Discussionmentioning

confidence: 99%

“…For example, Vincent and Coulter argued in 2002 that ignoring the expertise and experience of patients was widespread within the safety movement and would prevent the movement's full development (Vincent & Coulter, 2002). However, despite this and other ongoing calls to incorporate patients' expertise into maintaining safety, overall progress toward this goal has been relatively limited, and the experience of being hospitalized can be profoundly disempowering (Mishra et al, 2016). While safety interventions are traditionally focused on preventing physical harm, psychological harm that stems from experiencing an adverse event (Vincent & Coulter, 2002) or the experience of receiving care (Kuzel et al, 2004;Nilsson, 2014;Vincent & Coulter, 2002) can also occur.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Thematic Analysis of Women's Perspectives on the Meaning of Safety During Hospital-Based Birth

Lyndon¹,

Malana²,

Hedli³

et al. 2018

Journal of Obstetric, Gynecologic & Neonatal Nursing

View full text Add to dashboard Cite

Physical and emotional safety are inextricably embedded in the patient experience, yet this connection may be overlooked in some inpatient birth settings. Clinicians should be mindful of how the birth environment and their behaviors in it can affect a woman's feelings of safety during birth. Human connection is especially important during risk moments, which represent a liminal space at the intersection of physical and emotional safety. At least one team member should focus on the provision of emotional support during rapidly changing situations to mitigate the potential for negative experiences that can result in emotional harm.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Thematic Analysis of Women's Perspectives on the Meaning of Safety During Hospital-Based Birth

Lyndon¹,

Malana²,

Hedli³

et al. 2018

Journal of Obstetric, Gynecologic & Neonatal Nursing

View full text Add to dashboard Cite

show abstract

“…General [23,26,54] Irritable bowel syndrome [13,14] Sleep [44,50] Chronic illness [30] Diagnosis [51] Multiple chronic conditions [2,3] Weight loss [11] Itching [29] Hospitalisation [33] Parkinson's [32] Diabetes [39,42] Breast cancer [24,40] Disease prevention [15,26] Mental health [25] Structure Data structure is unfamiliar or inconsistent. Table 2.…”

Section: Barrier Descriptionmentioning

confidence: 99%

Common Barriers to the Use of Patient-Generated Data Across Clinical Settings

West

Kleek

Giordano

et al. 2018

Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

Patient-generated data, such as data from wearable fitness trackers and smartphone apps, are viewed as a valuable information source towards personalised healthcare. However, studies in specific clinical settings have revealed diverse barriers to their effective use. In this paper, we address the following question: are there barriers prevalent across distinct workflows in clinical settings to using patient-generated data? We conducted a twopart investigation: a literature review of studies identifying such barriers; and interviews with clinical specialists across multiple roles, including emergency care, cardiology, mental health, and general practice. We identify common barriers in a six-stage workflow model of aligning patient and clinician objectives, judging data quality, evaluating data utility, rearranging data into a clinical format, interpreting data, and deciding on a plan or action. This workflow establishes common ground for HCI practitioners and researchers to explore solutions to improving the use of patient-generated data in clinical practices.

show abstract

“…The acute care setting presents challenges for patients and their care partners who often feel disengaged and disempowered [1]. The experience can be isolating and uncertain, and patients are often left out of the decision-making process [2]. Engaging patients and encouraging active participation in their care may help address these issues and has the potential to improve health outcomes as well as the quality and safety of care [3].…”

Section: Introductionmentioning

confidence: 99%

Acute Care Patient Portal Intervention: Portal Use and Patient Activation

Schnock¹,

Snyder²,

Fuller³

et al. 2019

J Med Internet Res

View full text Add to dashboard Cite

Background Patient-facing health information technology (HIT) tools, such as patient portals, are recognized as a potential mechanism to facilitate patient engagement and patient-centered care, yet the use of these tools remains limited in the hospital setting. Although research in this area is growing, it is unclear how the use of acute care patient portals might affect outcomes, such as patient activation. Objective The aim of this study was to describe the use of an acute care patient portal and investigate its association with patient and care partner activation in the hospital setting. Methods We implemented an acute care patient portal on 6 acute care units over an 18-month period. We investigated the characteristics of the users (patients and their care partners) of the patient portal, as well as their use of the portal. This included the number of visits to each page, the number of days used, the length of the user’s access period, and the average percent of days used during the access period. Patient and care partner activation was assessed using the short form of the patient activation measure (PAM-13) and the caregiver patient activation measure (CG-PAM). Comparisons of the activation scores were performed using propensity weighting and robust weighted linear regression. Results Of the 2974 randomly sampled patients, 59.01% (1755/2974) agreed to use the acute care patient portal. Acute care patient portal enrollees were younger, less sick, less likely to have Medicare as their insurer, and more likely to use the Partners Healthcare enterprise ambulatory patient portal (Patient Gateway). The most used features of the acute care patient portal were the laboratory test results, care team information, and medication list. Most users accessed the portal between 1 to 4 days during their hospitalization, and the average number of days used (logged in at least once per day) was 1.8 days. On average, users accessed the portal 42.69% of the hospital days during which it was available. There was significant association with patient activation on the neurology service ( P <.001) and medicine service ( P =.01), after the introduction of HIT tools and the acute care patient portal, but not on the oncology service. Conclusions Portal users most often accessed the portal to view their clinical information, though portal usage was limited to only the first few days of enrollment. We found an association between the use of the portal and HIT tools with improved levels of patient activation. These tools may help facilitate patient engagement and improve outcomes when fully utilized by patients and care partners. Future study should leverage usage metrics to describe portal use and assess the impact of HIT tools on specific outcome measures in the hospital setting.

show abstract

"Not Just a Receiver"

Cited by 40 publications

References 40 publications

Thematic Analysis of Women's Perspectives on the Meaning of Safety During Hospital-Based Birth

Thematic Analysis of Women's Perspectives on the Meaning of Safety During Hospital-Based Birth

Common Barriers to the Use of Patient-Generated Data Across Clinical Settings

Acute Care Patient Portal Intervention: Portal Use and Patient Activation

Contact Info

Product

Resources

About