‘Not my mess’?: How do supporters of individuals with hoarding difficulties rate the quality of the support they offer?

Abstract

ObjectivesHoarding difficulties (HD) affect many people and cause upset and danger for the person, as well as friends and family. Previous research found that people with HD feel less adequately socially supported compared with individuals with obsessive compulsive disorder (OCD). This study used the perspective of those offering support to infer whether people with HD view their support differently, or if there is a gap in support quality compared with those with OCD.DesignThe design was cross‐sectional, comparing those supporting OCD with those supporting HD.MethodsAn online questionnaire was completed by 116 people offering support (POS) to people with these conditions. Support quality was measured using an adapted, proxy version of the Revised Norbeck Social Support Questionnaire. The research hypothesized that POS(HD) would not differ on support ratings compared with POS(OCD); or that POS(HD) would report comparatively lower ratings across support components. Secondary analysis investigated group differences in stigmatized attitudes and associative stigma; internalized stigma by virtue of having a connection to a stigmatized individual.ResultsPOS(HD) rated their wish to support and the perceived success as significantly lower. Public stigma was rated more highly by POS(HD) relative to POS(OCD) and associative stigma felt more acutely by POS(HD).ConclusionsMotivation to support was significantly lower in the HD group with associative stigma a significant predictive factor. Further research involving dyads is needed to investigate what is causing this shortfall in support. Clinical research for HD interventions should also examine how involving POS could enhance treatment outcomes.