2018
DOI: 10.1017/jmo.2018.54
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Nothing about us, without us: A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands

Abstract: In this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of a… Show more

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Cited by 43 publications
(19 citation statements)
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“…They also emphasize the vast nature as to how autism can symptomatically manifest. Thus, as illustrated in the DXC case and the article by van den Bosch et al (in this issue), no two autistic people are the same. Both articles highlight that, in the absence of a neurodiversity-inclusive environment and autism employment program, autistic individuals are likely to conceal or mask their autistic traits during the recruitment and selection process as well as after obtaining employment.…”
Section: Discussion Questionsmentioning
confidence: 85%
“…They also emphasize the vast nature as to how autism can symptomatically manifest. Thus, as illustrated in the DXC case and the article by van den Bosch et al (in this issue), no two autistic people are the same. Both articles highlight that, in the absence of a neurodiversity-inclusive environment and autism employment program, autistic individuals are likely to conceal or mask their autistic traits during the recruitment and selection process as well as after obtaining employment.…”
Section: Discussion Questionsmentioning
confidence: 85%
“…Others such as Turner (1994) further developed practice theory, elaborating the notion of both "tradition" and "tacit knowledge" and their importance in practices, but also pointing out the fuzziness of the concept of practices. Schatzki (1996) has been influential in theorizing the notion of practice.…”
Section: Practice Theory: a Third Waymentioning
confidence: 99%
“…A third theme is closely related to solidarity, reiterating Reckwitz's definition on practices that includes "states of emotions" (2002)-this theme can be labeled as "supporting each other" or "being in the community." Supporting each other is a known concept, relating to forms of peer-support that have been appraised in previous research (e.g., Brown, Shepherd, Wituk, & Meissen, 2008;Carter, Moss, Hoffman, Chung, & Sisco, 2011;Van den Bosch et al, 2018). Here, practices articulating forms of support and solidarity were mentioned in various contexts.…”
Section: Common Themes Of Practicesmentioning
confidence: 99%
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“…However, autistic 1 children grew up to be autistic adults, the increasing number of autism diagnoses included an increasing number of adults being diagnosed, and the rise of the Internet allowed autistic adults who were otherwise geographically dispersed to connect across space and time, with no need to read body language or make eye contact. Thus, was born the autistic self-advocacy movement, which prioritizes acceptance, support, and quality of life (Blume, 1997(Blume, , 1998Dekker, 1998;Harmon, 2004).…”
Section: Introductionmentioning
confidence: 99%