Nurse-guided mobile health care program to reduce emotional distress experienced by parents of infants prenatally diagnosed with critical congenital heart disease: A pilot study

McKechnie, Anne Chevalier; Elgersma, Kristin M.; Ambrose, Matthew B.; Sanchez Mejia, Aura A.; Shah, Kavisha M.; Iwaszko Wagner, Taylor; Trebilcock, Anna; Hallock, Carrie

doi:10.1016/j.ppedcard.2023.101687

Cited by 3 publications

(1 citation statement)

References 64 publications

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“…Parents participating in the study who showed high levels of stress correlated with negative emotion focused on their emotions, denied the situation, gave up making efforts to achieve a goal, and were more likely to use stimulants to temporarily alleviate unpleasant emotions. If such a group of parents is detected by a medical team who are not psychologists, especially while diagnosing a defect in a child in the prenatal period, [42], this will allow for early support measures to be taken [14], and in the case of parents in a particularly difficult emotional situation, this will allow them to be referred for professional psychological support. This is important because reports indicate that stress persists for a long time with an upward tendency, even until the child reaches preschool age [43,44].…”

Section: Discussionmentioning

confidence: 99%

Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions

Kruszecka-Krówka,

Cepuch,

Micek

2024

Children

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Background: Parents of children suffering from congenital heart disease experience high levels of stress and negative emotions. Therefore, recognition of parents’ emotional states and their ways of coping with it is becoming more and more important. Methods: The study group consisted of 154 parents of newborns and infants with cyanotic congenital heart disease, before and after cardiac surgery (partial or full). To assess parental negative emotions, the level of stress, and strategies of coping with it, standardized questionnaires, such as HADS-M, PSS-10, and COPE, were used. Results: Stress levels in parents were high and associated with negative emotions (anxiety, depression, irritability), as well as the choice of non-constructive coping strategies, which was observed especially in younger parents. Conclusions: Assessing parents’ stress levels and ways of coping with stress can improve family functioning and provide better development conditions for the child.

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Section: Discussionmentioning

confidence: 99%

Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions

Kruszecka-Krówka,

Cepuch,

Micek

2024

Children

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Advances in Diagnosis and Management of Fetal Heart Disease

Edwards,

Arya

2024

Curr Pediatr Rep

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mHealth for Women with Pregnancies with Fetal Anomalies

Butler,

McArthur

2024

McN: The American Journal of Maternal/Child Nursing

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Purpose: The purpose of this review is to investigate the current landscape of evidence-based mHealth resources designed to support pregnant patients with fetal anomalies, with a focus on enhancing maternal wellbeing, disseminating relevant information, and facilitating communication with nurses, physicians, and other health care professionals. Study Design: Using the JBI (formerly known as the Joanna Briggs Institute) scoping review protocol and the PRISMA-ScR framework, we conducted a comprehensive search across databases including CINAHL, Medline, Web of Science, and Google Scholar. Methods: A keyword search was conducted, resulting in 227 unique records. Articles discussing mobile apps for pregnancies with a fetal diagnosis or fetal risk for anomaly were included, including hospital-affiliated or telehealth apps that were adapted for use with this specific population. Results: Ten articles were selected for inclusion. Our analysis identified several predominant themes. The surge of mHealth, influenced in part by the COVID-19 pandemic, has provided critical access to care for pregnant patients with fetal anomalies through mobile platforms. Comprehensive resource tools integrating informational components via mHealth are needed to offer flexibility to patients as well as nurses, physicians, and other health care professionals. Adopting a patient-driven approach in developing mHealth resources is important in meeting the needs of patients, their families, and their health care team. Clinical Implications: A framework for the development and implementation of high-fidelity mHealth resources tailored to this vulnerable population is needed. Emphasizing a patient-centered approach in the creation of mHealth resources is paramount to ensuring their effectiveness and usefulness for pregnant women experiencing fetal anomalies, their families, and the perinatal health care team.

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Nurse-guided mobile health care program to reduce emotional distress experienced by parents of infants prenatally diagnosed with critical congenital heart disease: A pilot study

Cited by 3 publications

References 64 publications

Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions

Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions

Advances in Diagnosis and Management of Fetal Heart Disease

mHealth for Women with Pregnancies with Fetal Anomalies

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