Nurses' attitudes toward caring for terminally ill neonates and their families in Iran: a cross-sectional study

Kadivar, Maliheh; Mardani-Hamooleh, Marjan; Kouhnavard, Marjan; Sayarifard, Azadeh

doi:10.18502/jmehm.v14i4.5651

Cited by 5 publications

(5 citation statements)

References 32 publications

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“…This study highlights the multifaceted nature of dignity among palliative care patients in Lebanon where familial, societal, and broader socio-political, religious factors shape its understanding [87][88][89]. Whilst conducted in Lebanon, the findings have implications to the Middle East and potentially wider global community where understanding cultural context is key in dignity-conserving care.…”

Section: Discussionmentioning

confidence: 83%

Dignity enhanced through faith & family support in palliative care: a qualitative study

Sailian,

Salifu,

Preston

2024

BMC Palliat Care

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Background Dignity is integral to palliative care. Illness can diminish it, causing hopelessness and the wish to hasten death. Yet, dignity is a complex multidimensional phenomenon, influenced by values and context. Understanding its varying interpretations can inform practice and policy. The aim of the study is to explore the understanding of dignity in adult patients with palliative care needs from a Lebanese perspective and how it is preserved during illness and while receiving health services. Design Qualitative interview study underpinned with a social constructionist lens. Fourteen patients recruited from home-based hospice and outpatient clinics in Lebanon. Data analysed using reflexive thematic analysis. Results Four themes were developed across all the interviews: (a) Dignity anchored through faith in God and religious practices; (b) Family support in maintaining physical, psychological wellbeing, and social connectedness; (c) Physical fitness, mental acuity, and healthy appearance through which patients may escape the stigma of disease, (d) accessible, equitable, and compassionate healthcare. Discussion Dignity is elusive and difficult to define but faith and religious beliefs play a significant contribution in this study. For the participants, illness is seen as a natural part of life that does not necessarily diminish dignity, but it is the illness related changes that potentially affect dignity. Findings show the importance of family and children in preserving dignity during illness and how their active presence provide a sense of pride and identity. Participants aspired to restore physical, social, and mental well-being to reclaim their dignity and normalize their lives. Challenges related to physical appearance, memory loss, vitality, and social stigma associated with illness diminished dignity. Accessible, equitable and compassionate healthcare services are also crucial in preserving dignity. Participants valued clear communication, respect, and empathy from healthcare providers and identified affordability of care essential for maintaining dignity. Conclusion Faith in God, and strong family ties are dominant elements to maintaining dignity in the Lebanese context. Relational connectedness with family, children or God is also a need in maintaining dignity in other communal countries with variations in emphasis. The study indicates that religious and cultural context shapes the needs and perceptions of dignity during illness. These findings are likely to be transferable to many Middle Eastern countries but also countries with strong religious and family ties globally.

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Section: Discussionmentioning

confidence: 83%

Dignity enhanced through faith & family support in palliative care: a qualitative study

Sailian,

Salifu,

Preston

2024

BMC Palliat Care

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“…Kadivar et al. ( 2018 ) and Nouri et al. ( 2022 ) highlighted the roles of beliefs, societal influences and varying roles in the definition of dignity.…”

Section: Discussionmentioning

confidence: 99%

Intensive care unit dignified care: Persian translation and psychometric evaluation

Jalali,

Darvishi,

Kalhory

et al. 2024

Nursing Open

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AimThe present study aimed to evaluate the psychometric properties of the Persian version of the ‘Intensive Care Unit Dignified Care Questionnaire (IDCQ)’ among Iranian nurses.DesignA methodological and psychometric study was conducted in 2022, involving nurses from six teaching hospitals in Kermanshah, Western Iran.MethodsThe IDCQ was translated into Persian using a forward‐backward translation method. Construct validity was assessed through exploratory factor analysis (EFA) and confirmatory factor analysis (CFA), employing a stratified sampling method with 455 critical care nurses. Internal consistency was gauged using Cronbach's alpha coefficient, while reliability was determined through the test–retest method. Analyses were performed using SPSS version 26 and Lisrel version 8 software.ResultsEFA and CFA validated the instrument's two‐factor, 17‐item structure. The CFA indicated a well‐fitting model with fit indices: CFI = 0.93, NNFI = 0.92, GFI = 0.861, RMSEA = 0.051 and SRMR = 0.046. Pearson's correlation coefficient substantiated a significant relationship between the items, subscales and the overall scale. The instrument's reliability was confirmed by a Cronbach's α coefficient of 0.88 and a test–retest reliability of 0.86.ConclusionThe Persian version of the IDCQ, comprising two factors and 17 items, has been validated as a reliable and applicable tool for use within the Iranian nursing community.

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“…South Asian religious and cultural factors may influence how clinicians and carers reflect dignity in end‐of‐life preparation for people with dementia (Hossain & Mughal, 2020). However, regardless of ethnic differences, human dignity has been recognised as a key concept in medical ethics and underlined as a principal obligation of healthcare professionals worldwide (Kadivar et al, 2018). The Department of Health (2008) recommends a good death would involve being person‐centred: being treated as an individual, with dignity and respect, without pain and other symptoms, in familiar surroundings and the company of close family and friends.…”

Section: Discussionmentioning

confidence: 99%

“…South Asian religious and cultural factors may influence how clinicians and carers reflect dignity in end-of-life preparation for people with dementia (Hossain & Mughal, 2020). However, regardless of ethnic differences, human dignity has been recognised as a key concept in medical ethics and underlined as a principal obligation of healthcare professionals worldwide (Kadivar et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

From detection to preparing for the end‐of‐life: A qualitative exploration of the South Asian family carers' experiences of the journey with dementia

Hossain

Tarafdar

Kingstone

et al. 2022

Health Social Care Comm

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People of South Asian (SA) origin have a higher prevalence of dementia compared with the United Kingdom (UK) population as a whole. Little is known about how family carers of SA origin perceive dementia, manage access to dementia services, and how plans and preparations are made for end-of-life for loved ones with dementia. This qualitative study aimed to explore the experiences of carers of people with dementia of SA origin, living in the UK. Through semi-structured interviews, the perspective of caregivers of a person with dementia was explored from point of diagnosis to end-oflife preparation. Sixteen caregivers participated in face-to-face interviews. Four key themes are presented (i) lacking awareness at the start; (ii) living with the challenges of dementia; (iii) preparing for end-of-life; (iv) preferences for burial. Carers described difficulties in making sense of early symptoms and the behaviour changes they observed amongst their relatives with dementia. They described the tensions in trying to follow their religious and cultural identities of honouring the dignity and choices of the person with dementia. This study reports on the perspectives of SA carers of people with dementia, particularly exploring the end-of-life preparation and wishes of people with dementia in the UK. Family carers may benefit from accessing more culturally sensitive support when dementia is diagnosed, including such support when receiving formal day-to-day care. Importantly the findings suggest that planning and preparing to provide end-of-life for people with dementia should recognise and respect family and cultural contexts and religious beliefs.

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Nurses' attitudes toward caring for terminally ill neonates and their families in Iran: a cross-sectional study

Cited by 5 publications

References 32 publications

Dignity enhanced through faith & family support in palliative care: a qualitative study

Dignity enhanced through faith & family support in palliative care: a qualitative study

Intensive care unit dignified care: Persian translation and psychometric evaluation

From detection to preparing for the end‐of‐life: A qualitative exploration of the South Asian family carers' experiences of the journey with dementia

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