Nurses' experience of caring for people with intellectual disability and dementia

Cleary, Josephine; Doody, Owen

doi:10.1111/jocn.13431

Cited by 32 publications

(69 citation statements)

References 36 publications

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“…The demand for a method to handle problems associated with the ageing of people with intellectual disability (as dementia) we found is widely reflected in studies of experiences of staff in working with adults and older people with intellectual disability (Cleary & Doodey, 2016;Furniss, Loverseed, Lippold, & Dodd, 2012;Iacono et al, 2014;McCarron, McCallion, Fahey-McCarthy, Connaire, & Dunn-Lane, 2010;Perera & Standen, 2014;Watchman, 2014;Wilkinson et al, 2005). Several studies of DCM in nursing home settings reported difficulties similar to ours in fulfilling the DCM-preconditions.…”

Section: Discussionmentioning

confidence: 93%

“…quality of care SCHAAP et Al. dementia (Cleary & Doodey, 2016;Duggan et al, 1996;Emerson, 2001;Iacono, Bigby, Carling-Jenkins, & Torr, 2014;Myrbakk & von Tetzchner, 2008); they tend to use an ad hoc approach (Iacono et al, 2014;Janicki, 2011;Janicki, McCallion, & Dalton, 2002;Watchman, 2008;Wilkinson, Kerr, & Cunningham, 2005). Therefore, an evidence-based method that provides insights, knowledge and skills for professionals in the care of older residents with intellectual disability and dementia is urgently needed, but not yet available.…”

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confidence: 99%

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Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

Schaap

Fokkens

Reijneveld

et al. 2018

Research Intellect Disabil

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Background The number of people with intellectual disability and dementia increases; this combination causes behavioural changes. Dementia Care Mapping (DCM) supports staff in dementia care in nursing homes and may be useful in intellectual disability‐care. This qualitative study examines the feasibility of DCM for older people with intellectual disability and dementia. Methods The present authors obtained data in focus groups and interviews with professional users and analysed using a framework for feasibility studies. With experts in dementia and intellectual disability researches, the present authors determined the overall feasibility. Results DCM was found to be feasible in intellectual disability‐care, regarding five domains of feasibility. Staff reported DCM to be useful and valuable and addresses to their demand for skills and knowledge. All professional users found DCM feasible in intellectual disability‐care, which was confirmed by experts. Conclusions DCM is feasible in intellectual disability‐care. When fully tailored to intellectual disability‐care, DCM is useful and provides opportunities to assess its effectiveness.

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Section: Discussionmentioning

confidence: 93%

mentioning

confidence: 99%

Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

Schaap

Fokkens

Reijneveld

et al. 2018

Research Intellect Disabil

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“…The ageing of the population with intellectual disabilities is accompanied by an increased risk of dementia and creates a need for methods to support ID‐care staff in their daily work (Cleary & Doodey, ; Duggan, Lewis, & Morgan, ). Dementia leads to a wide range of changes in memory, functional capacity, communication, neurology, personality and behaviour, and can result in agitation, resistance, depression and apathy (Ball, Holand, Treppner, Watson, & Huppert, ; Cleary & Doody, ; Emerson, ; Sheehan, Ali, & Hassiotis, ).…”

Section: Introductionmentioning

confidence: 99%

“…These responses have a great impact on the lives of the people with intellectual disabilities, their housemates and their care staff (Cooper, ; Janicki & Keller, ; Shooshtari, Martens, Burchill, Dik, & Naghipur, ; Strydom, Chan, King, Hassiotis, & Livingston, ; Webber, Bowers, & McKenzie‐Green, ). This a potential challenge to ID‐care staff, who often lack the knowledge and skills to adapt to the changing behaviour, responses and needs of their clients (Cleary & Doodey, ; Iacono, Bigby, Carling‐Jenkins, & Torr, ; Janicki, ; Myrbakk & von Tetzchner, ). This lack can lead to low job satisfaction, stress and burnout (Ineland, Sauer, & Molin, ; Langdon, ; Mills & Rose, ; Pruijssers et al, ; Rose, Mills, Silva, & Thompson, ; Vassos & Nankervis, ), and creates a strong need for an evidence‐based method to help professionals to appropriately support their ageing clients (Duggan et al, ; Iacono et al, ; Watchman, ; Wilkinson, Kerr, & Cunningham, ).…”

Section: Introductionmentioning

confidence: 99%

Effects of Dementia Care Mapping on job satisfaction and caring skills of staff caring for older people with intellectual disabilities: A quasi‐experimental study

Schaap

Finnema

Stewart

et al. 2019

Research Intellect Disabil

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BackgroundThe ageing of people with intellectual disabilities, involving consequences like dementia, creates a need for methods to support care staff. One promising method is Dementia Care Mapping (DCM). This study examined the effect of DCM on job satisfaction and care skills of ID‐care staff.MethodsWe performed a quasi‐experimental study in 23 group homes for older people with intellectual disabilities in the Netherlands. Among staff, we assessed job satisfaction and care skills as primary outcomes and work experience measures as secondary outcomes (N = 227).ResultsDementia Care Mapping achieved no significantly better effect than care as usual (CAU) for primary outcomes on job satisfaction (MWSS‐HC) and working skills (P‐CAT). Effect sizes varied from −0.18 to −0.66. We also found no differences for any of the secondary outcomes.ConclusionDementia Care Mapping does not increase job satisfaction and care skills of staff caring for older people with intellectual disabilities. This result differs from previous findings and deserves further study.

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“…These papers highlight that the needs of recipients of nursing service can vary depending on care setting and individual need. Cleary and Doody (2017) emphasise the importance of knowing the person living with dementia when providing support. Keenan (2017aKeenan ( , 2017b stress's the person-centred aspects to understanding and delivering spiritual care, if quality nursing is to be practiced.…”

Section: Literature Reviewmentioning

confidence: 99%

Nurses’ Understanding of Spirituality and the Spirituality of Older People with Dementia in the Continuing Care Setting

Keenan

Kirwan

2018

Religions

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This research paper was presented at the Third International Spirituality in Healthcare Conference 2017-'Creating Space for Spirituality in Healthcare' at Trinity College Dublin, The University of Dublin. 22 June 2017. The number of older people living with dementia in Ireland is rising. Dementia is prevalent among those residing in the continuing care setting. Nurses have a professional obligation to provide person centred, holistic care, to which spiritual care is a core element, yet often do not. As there are no guidelines in Ireland for spiritual care provision it is open to personal interpretation and application. This study was the first in Ireland to explore how spiritual care is understood by nurses in the context of older people living with dementia in a public, rural, continuing care setting. A qualitative descriptive design was utilized. Following purposive sampling, eight semi structured interviews were conducted in a rural Irish community hospital among registered nurses caring for older people living with dementia. A conceptual framework developed from the findings of a literature review, as well as this research study's aim and objectives framed the interview schedule and data analysis. Data analysis utilized Newell and Burnard (2011) Thematic Content Analysis. Ethical approval was granted by the Health Service Executive (HSE) and the University of Dublin, Trinity College Dublin (TCD). Six key themes emerged from the study-1. Understandings of Spirituality, 2. Assessing spiritual need, 3. Providing spiritual care, 4. The impact of spirituality on quality of life, 5. Barriers to spiritual care and how these are addressed, and finally 6. The needs of staff. This paper presents and discusses the findings of the first theme 'Understandings of Spirituality' and its two sub-themes, 1. 'The nurse's own understanding of spirituality' and 2. 'The nurses' understanding of spirituality and older people living with dementia.' It is evident from the findings that there exists a variety of responses with regards to the nurses' own understanding of the concept spirituality and spirituality for older people living with dementia. Participants placed emphasis on person-centred approaches to understanding and providing for the needs of care recipients' in this area of care. Most participants acknowledged the positive impact of spiritual care on quality of life for older people living with dementia. Indications for practice suggest the need to develop suitable evidence based professional, person-centred frameworks, guidelines and educational standards for nurses which better equip them to understand spirituality and how this area of need can be properly assessed in partnership with the recipient of nursing practice in the continuing care setting to ensure comprehensive holistic, person-centred practice.

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Nurses' experience of caring for people with intellectual disability and dementia

Cited by 32 publications

References 36 publications

Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

Effects of Dementia Care Mapping on job satisfaction and caring skills of staff caring for older people with intellectual disabilities: A quasi‐experimental study

Nurses’ Understanding of Spirituality and the Spirituality of Older People with Dementia in the Continuing Care Setting

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