Nurses' Experiences of End-of-life Photography in NICU Bereavement Support

Martel, Sara; Ives-Baine, Lori

doi:10.1016/j.pedn.2018.05.011

Cited by 10 publications

(10 citation statements)

References 24 publications

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“…Giving emotional attention to these parents requires the provision of transcultural nursing care based on knowledge of the cultural context and background of the parents (Leininger, ). The provision of resources to prove the existence of the pregnancy/baby and of spaces where parents can express their grief is fundamental to legitimizing the loss (Martel & Ives‐Baine, ; O'Leary & Warland, ). Therefore, care should contemplate an individual approach adapted to the needs of parents and not the creation of care protocols that generate barriers to the provision of comprehensive and individualized care.…”

Section: Discussionmentioning

confidence: 99%

Multicultural coping experiences of parents following perinatal loss: A meta‐ethnographic synthesis

Fernández‐Basanta

Coronado

Movilla‐Fernández

2019

Journal of Advanced Nursing

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Aims To synthesize research findings regarding the coping experiences of parents following perinatal loss. Design Noblit and Hare's interpretive meta‐ethnography was followed. Data Sources A comprehensive systematic search of the published literature (2013–2018) was undertaken in five databases, complemented by supplementary searches. Review Methods Fourteen studies met the research objective and inclusion criteria. Results Five themes describe the coping strategies used by parents who experience perinatal loss. The themes were synthesized into the metaphor Staying afloat in the storm. Conclusion Parents use coping strategies to manage perinatal loss and the use of these strategies is conditioned by cultural, social, and individual factors. This study has implications for evidence‐based practice by showing care needs and the importance of implementing emotional and patient‐centred care interventions. Impact This meta‐ethnography highlights the care needs of parents following perinatal loss, facilitating understanding of coping experiences. Increased knowledge about these experiences may contribute to the development and implementation of nursing and midwifery interventions that include emotional and patient‐centred care.

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Section: Discussionmentioning

confidence: 99%

Multicultural coping experiences of parents following perinatal loss: A meta‐ethnographic synthesis

Fernández‐Basanta

Coronado

Movilla‐Fernández

2019

Journal of Advanced Nursing

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“…They also questioned goals of care and significance of their duties in the NICU 20 22 23. HCP’s sorrow from their patients’ sufferings and death was compounded by the unique situation of experiencing death when life had just begun,20 24–26 and the unnaturalness of a child’s death 15 24 27. HCP empathised with parents’ grief22 24 25 and were also emotionally attached to long-staying neonates 22 24…”

Section: Resultsmentioning

confidence: 99%

Experiences of healthcare personnel with death in the neonatal intensive care unit: a systematic review of qualitative studies

Wong

Charles

Mok

et al. 2023

Arch Dis Child Fetal Neonatal Ed

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ObjectiveTo synthesise evidence from qualitative studies on the experiences of healthcare personnel (HCP) in the neonatal intensive care unit (NICU) caring for dying neonates.MethodsWe conducted a systematic search, in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines (PROSPERO: CRD42021250015), of four databases (PubMed, Embase, PsycINFO and CINAHL) from date of inception of the databases to 31 December 2021 using MeSH terms and related keywords. Data were analysed using three-step inductive thematic synthesis. Quality assessment of included studies was performed.ResultsThirty-two articles were included. There were 775 participants, majority (92.6%) of whom were nurses and doctors. Quality of studies was variable. The narratives of HCP coalesced into three themes: sources of distress, coping methods and the way forward. Sources of distress encompassed HCP’s discomfort with neonatal deaths; poor communication among HCP and with patient’s family; lack of support (from organisations, peers and HCP’s family) and emotional responses (guilt, helplessness and compassion fatigue). Methods of coping included setting emotional boundaries, support from colleagues, clear communication and compassionate care and well-designed end-of-life workflows. Steps taken by HCP to move forward and overcome the emotionally turbulent effects of NICU deaths included finding meaning in death, building deeper relationship with patients’ families and the NICU team and embracing purpose and pride in work.ConclusionHCP face several challenges when a death occurs in the NICU. HCP can provide better end-of-life care if their undesirable experiences with death are mitigated by better understanding and overcoming factors causing distress.

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“…Neste estudo, percebeu-se a importância que os enfermeiros deram para a participação da família e seu papel nesta relação. Bloomer et al (2015) Em um estudo que buscou explorar qualitativamente as experiências dos enfermeiros intensivistas neonatais com a fotografia em fim de vida, como parte de seu trabalho de apoio ao luto com as famílias (Martel S, Ives-Baine, 2018), palavras como "positivo", "privilégio", "paz", "fechar" e "curtir" apareceram, na linguagem dos Um estudo australiano (Bloomer et al, 2015;Kenner, Press, Ryan, 2015) exemplifica outras ações, como a criação das "caixas de memória", para permitir a coleta de lembranças que podem ser apreciadas pela família após a morte. Colecionar impressões de mãos, mechas de cabelo, cobertores e tirar fotos parecia uma maneira comum de conectar os membros da família ao recém-nascido -de acordo com esses autores.…”

Section: Análise E Interpretação Dos Dadosunclassified

“…Já um estudo canadense tratou sobre a iniciativa de os enfermeiros tirarem fotos de recém-nascidos, que estavam em cuidado de final de vida e após morrerem, junto a suas famílias (Martel S, Ives-Baine, 2018).…”

Section: Análise E Interpretação Dos Dadosunclassified

“…Os enfermeiros precisam se liberar de normas culturais pré-existentes, em torno dos tabus morrer, morte e tristeza, e precisam reservar tempo para ter a capacidade de abrigar sua emoção pela perda (Martel S, Ives-Baine, 2018). A dificuldade em se mencionar o termo "morte" acontece quando os enfermeiros acreditam que recém-nascidos não deveriam morrer e, com isso, apresentam a sensação de angústia.…”

Section: Análise E Interpretação Dos Dadosunclassified

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As crenças dos enfermeiros relacionadas ao cuidado de recém-nascidos que morrem em UTI neonatal

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Nurses' Experiences of End-of-life Photography in NICU Bereavement Support

Cited by 10 publications

References 24 publications

Multicultural coping experiences of parents following perinatal loss: A meta‐ethnographic synthesis

Multicultural coping experiences of parents following perinatal loss: A meta‐ethnographic synthesis

Experiences of healthcare personnel with death in the neonatal intensive care unit: a systematic review of qualitative studies

As crenças dos enfermeiros relacionadas ao cuidado de recém-nascidos que morrem em UTI neonatal

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