Nursing and genetic health care

Lea, Dale Halsey; Williams, Janet K.; Tinley, Susan

doi:10.1007/bf01423173

Cited by 12 publications

(3 citation statements)

References 16 publications

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“…However, nurses are in a position to play a key role in the delivery of information to patients, and in supporting patients during the prenatal period. Lea, Williams, and Tinley (1994) outlined that the key role that nurses engage in relates to their involvement in the presentation of information about screening tests and ensuring that clients are able to provide informed consent.…”

Section: Implications For Nursing Practicementioning

confidence: 99%

Reversing Kristeva’s first instance of abjection: the formation of self reconsidered

McCabe

Holmes

2011

Nursing Inquiry

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Psychoanalyst Julia Kristeva defines the theoretical concept of abjection as an unconscious defence mechanism used to protect the self against threats to one's subjectivity. Kristeva suggests that the first instance of abjection in an individual's life occurs when the child abjects the mother. However, the instance of abjection addressed within this paper is the reverse of this: the abjection of the child, with a disability, by the parent, and more broadly society. Using the contemporary example of prenatal testing, the authors explore how parents of children with disabilities may be influenced in abjecting the child. The implications of abjection of the child are then used to explore normalization, routinization of care and the development of standardized care practices within health-care. Prenatal screening practices and standardized care permeate medical obstetric care and social discourses regarding pregnancy and childbirth, thereby affecting not only healthcare professionals but also parents in their position as consumers of health-care. In a time when the focus of health-care is increasingly placed on disease prevention and broader medical and social discourses glorify normalcy and consistency, the unconscious abjection of those that do not fit within these standards must be identified and addressed.

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Section: Implications For Nursing Practicementioning

confidence: 99%

Reversing Kristeva’s first instance of abjection: the formation of self reconsidered

McCabe

Holmes

2011

Nursing Inquiry

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“…Lea and colleagues claim that genetics is moving into mainstream health care, and anticipate that nurses in all areas of practice will become involved in the provision of information about genetic testing and assisting individuals and families in decision making and adjustment to new genetic information. 38 According to Forsman the nursing role in genetics is continually evolving. 39 The basic elements of case finding and referral, explaining genetic risk, constructing family pedigrees, assisting families in gathering documentation, genetic counselling and providing long-term management assistance remain essentially the same.…”

Section: Old Wine In New Bottles?mentioning

confidence: 99%

Eugenics and its Relevance to Contemporary Health Care

Iredale

2000

Nurs Ethics

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Recently there has been a revival of interest in the theory and practice of eugenics by both academics and lay people. The ongoing revolution in biology and the increasing ability to acquire genetic information has led to concerns about genetics being used again for sinister eugenic ends. Although the goals behind traditional eugenics--the minimization of disease and the improvement of human health--remain unchanged, the means by which these goals should be achieved have altered significantly. However, in debates about the impact of human genetic research, eugenics is sometimes viewed as a purely historical phenomenon and its relevance to the current situation is minimized. This article outlines the history of the eugenics movement, describes some eugenic practices, and explores why an appreciation of these historical debates is important for nurses.

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“…With the available resources in telecommunications, collaborating schools can share in the purchase of educational materials and use of faculty for the didactic and clinical work. Further support can be found in the many published resources to guide the development of educational programs and initiatives such as reports of professional surveys (Scanlon & Fibison, 1995), integrated reviews (Anderson, 1996; Kenner & Berling, 1990; Lea, Williams & Tinley, 1994; Lessick & Williams, 1994; Thomson, 1993), and program evaluations (HRSA, MCHB, 1996). The reports of processes for identifying core knowledge, competencies, and practice standards can also be used as a guide for the development of content and clinical experiences.…”

Section: Need For Genetic Knowledgementioning

confidence: 99%

Families and the genetic revolution: Implications for primary healthcare, education, and research.

Feetham¹

1999

Families, Systems, & Health

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This article provides an overview of the Human Genome Project (HGP) and its outcomes in science, health, and healthcare practices and education for health professionals. An analysis of findings from the HGP for familial hypertrophic cardiomyopathy (FHCM) and breast cancer are used as a framework for examining unique issues of families responding to genetic discoveries. The paucity of attention to family systems and family relationships in the collection and dissemination of genetic information places family members and families at increased risk. Families face many challenges from the HGP that require health professionals to be able to identify those at genetic risk, answer questions related to risk, and make appropriate referrals to other professionals and resources. It is critical that all health professionals take proactive roles in genetic healthcare by increasing their knowledge of all aspects of the Human Genome Project, addressing the complex social and ethical issues from the HGP, and developing collaborative relationships with basic scientists to narrow the gap between genetic discovery and practice.

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Nursing and genetic health care

Cited by 12 publications

References 16 publications

Reversing Kristeva’s first instance of abjection: the formation of self reconsidered

Reversing Kristeva’s first instance of abjection: the formation of self reconsidered

Eugenics and its Relevance to Contemporary Health Care

Families and the genetic revolution: Implications for primary healthcare, education, and research.

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