Nursing care for persons with developmental disabilities: Review of literature on barriers and facilitators faced by nurses to provide care

Khanlou, Nazilla; Khan, Attia; Landy, Christine Kurtz; Srivastava, Rani; McMillan, Shirley; VanDeVelde-Coke, Susan; Vázquez, Luz María

doi:10.1002/nop2.1338

Cited by 9 publications

(4 citation statements)

References 67 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

Section: Backg Rou N Dmentioning

confidence: 99%

“…People with ID and/or ASD experience disproportionately greater health challenges and service needs than people without developmental disabilities. Whilst ID and ASD are separate developmental disability diagnoses, several studies have highlighted the similar barriers and complications experienced by the two cohorts when accessing healthcare (Kersten et al., 2023; Khanlou et al., 2022). Additionally, the significant prevalence of dual diagnoses of ID and ASD has been well documented, with 30% of people with autism also having a diagnosis of intellectual disability (Cashin, 2020).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

A survey of Indonesian nurses' educational experiences and self‐perceived capability to care for people with intellectual disability and/or autism spectrum disorder

Tumanggor,

Pracilio,

Siregar

et al. 2023

Journal of Advanced Nursing

View full text Add to dashboard Cite

AimsTo describe Indonesian nurses' educational experience regarding care for people with intellectual disability and/or autism and to explore if these educational experiences are associated with their self‐perceived confidence, comfort, knowledge and preparedness to care for these cohorts.DesignCross‐sectional descriptive survey.MethodsA descriptive survey tool utilized in a study of Australian registered nurses was replicated and adapted for this study. Following descriptive analysis, chi‐square analyses were undertaken to explore associations between educational experiences, and self‐rated measures of confidence, comfort and knowledge to work with people with intellectual disability and/or autism. Although there was no end‐user involvement in the design of the study, the concepts explored have all been raised by those with lived insights of intellectual disability and/or autism as being critical to their healthcare experiences.ResultsThere were 544 complete responses, and 51.7% were not exposed to any educational or clinical content relevant to caring for people with intellectual disability and/or autism. Moderate to low levels of self‐perceived confidence, comfort, knowledge and preparedness to address healthcare needs of these cohorts were reported. Significant associations were identified between educational and clinical experiences during undergraduate training, and higher levels of self‐perceived confidence, comfort and knowledge.ConclusionMirroring international literature, the findings of this study highlight a large proportion of Indonesian nurses had little educational experience relevant to caring for people with intellectual disability and/or autism, and have relatively low levels of self‐reported capability.ImpactThis study highlights gaps in the educational experiences, and self‐perceived confidence, comfort, knowledge and preparedness of Indonesian nurses regarding caring for people with intellectual disability and/or autism. Given that internationally, people with intellectual disability and/or autism have disproportionately negative health outcomes and experiences, these findings have substantial implications for nursing curriculum, policy and professional development.

show abstract

Section: Backg Rou N Dmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A survey of Indonesian nurses' educational experiences and self‐perceived capability to care for people with intellectual disability and/or autism spectrum disorder

Tumanggor,

Pracilio,

Siregar

et al. 2023

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

“…A recent literature review of 17 English language studies (2009–2019) by Khanlou et al (2023) focused on nursing care for people with developmental disabilities (a diagnostic category that includes Intellectual Disability and autism) highlighted that communication challenges contributed to a perceived inability for nurses to provide person‐centred care to this group. A strength of this study was that it covered a breadth of methodological approaches, and highlighted interventions in place, and barrier and facilitators to their implementation across nursing contexts.…”

Section: Introductionmentioning

confidence: 99%

Barriers to communication with people with developmental disabilities: A reflexive thematic analysis

Cashin,

Morphet,

Wilson

et al. 2024

Nursing & Health Sciences

View full text Add to dashboard Cite

People with Intellectual Disability and/or autism internationally experience some of the worst health outcomes of any population group. Registered nurses have been identified as having educational deficits in this domain, which include knowledge of adjustments to communication. This study aimed to explore perceived barriers to communication with people with Intellectual Disability and/or autism. A thematic analysis of data from an open‐ended free‐text survey question exploring barriers to communicating in a cross‐sectional survey of 279 Australian registered nurses conducted in 2020 was undertaken. Six interrelated themes were identified. Increased educational content in undergraduate and postgraduate level nursing courses is indicated. The findings identify the benefit of educational design based on the foundation of understanding the diversity in thinking and information processing represented by the forms of neurodiversity in Intellectual Disability and Autism Spectrum Disorder.

show abstract

“…Nurses not only play an important role in the identifcation and treatment of children with autism spectrum disorders but are also an integral part of the healthcare team. Terefore, it is important to assess their perceived knowledge and awareness, which could be a solid basis for future planning and action [23].…”

Section: Introductionmentioning

confidence: 99%

An Assessment of Pediatric Nurses Awareness and Perceived Knowledge of Autism Spectrum Disorders: A Gulf State Survey

Alruwaili,

Elsayed Ramadan,

shaban

et al. 2023

Perspectives in Psychiatric Care

View full text Add to dashboard Cite

Background. The purpose of this study was to determine pediatric nurses’ knowledge of autism spectrum disorders (ASD). Methods. We conducted a population-based online survey of 273 pediatric nurses in eastern Saudi Arabia using convenience sampling method. Perceived knowledge was assessed using the knowledge of childhood autism among Health Professionals Questionnaire (KCAHW) that was translated into Arabic. We used multivariate regression analysis to determine the influence of demographic factors on the perceived knowledge. Using Pearson’s correlation analysis, we assessed the correlation between the outcome variables and the predictor variables. Results. ASD knowledge is generally higher among pediatric nurses with higher academic qualifications (r = 0.29, p < 0.001). They scored higher on general knowledge (M = 21.5, SD = 5.7) and lower on signs and symptoms (M = 15.2, SD = 4.3), diagnosis (M = 13.8, SD = 3.9), and management of ASD (M = 12.4, SD = 4.1). A significant correlation was found between mean KCAHW and age (r = 0.12, p = 0.029), sex (r = 0.18, p = 0.003), years of experience (r = 0.25, p < 0.001), education level (r = 0.34, p < 0.001), and hospital type (r = 0.21, p = 0.001). Predictors of knowledge and understanding were level of education (β = 0.23, p = 0.001), formal training (β = 0.16, p = 0.012), and years of experience (β = 0.19, p = 0.005). The majority could not define ASD or recognize early signs and symptoms or associated comorbidities. Lack of social and emotional reciprocity and impaired language development have been reported, as well as the perception of ASD as a neurodevelopmental disorder. Conclusion. Higher academic qualifications are associated with high general knowledge of ASD; however, nurses in this cohort performed poorly in ASD sign and symptom recognition, diagnosis, and management.

show abstract

Nursing care for persons with developmental disabilities: Review of literature on barriers and facilitators faced by nurses to provide care

Cited by 9 publications

References 67 publications

A survey of Indonesian nurses' educational experiences and self‐perceived capability to care for people with intellectual disability and/or autism spectrum disorder

A survey of Indonesian nurses' educational experiences and self‐perceived capability to care for people with intellectual disability and/or autism spectrum disorder

Barriers to communication with people with developmental disabilities: A reflexive thematic analysis

An Assessment of Pediatric Nurses Awareness and Perceived Knowledge of Autism Spectrum Disorders: A Gulf State Survey

Contact Info

Product

Resources

About