Nursing Care for Spiritual Pain in Terminal Cancer Patients: A Non-Randomized Controlled Trial

Ichihara, Kaori; Nishiyama, Chika; Kiyohara, Kosuke; Morita, Tatsuya; Tamura, Keiko

doi:10.1016/j.jpainsymman.2023.10.016

Cited by 2 publications

(1 citation statement)

References 33 publications

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“…This holistic approach not only addresses the physical symptoms and pain management associated with cancer, but also focuses on the emotional, psychological and social aspects of care [ 54 ]. By providing a support system that includes pain control, symptom management, psychological counselling, and assistance with activities of daily living, such a programme can significantly improve the overall well-being of the patient, allowing them to maintain a higher level of functioning and independence [ 55 ]. It also eases the burden on informal carers by providing guidance, respite care and emotional support, thereby improving their own quality of life and reducing the stress and anxiety that often accompanies caring for a loved one with a terminal illness [ 13 ].…”

Section: Discussionmentioning

confidence: 99%

Impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers: a quasi-experimental study

Ibrahim,

Wahba,

Zaghamir

et al. 2024

BMC Nurs

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Background Palliative care schemes, which include pain management, symptom control, psychosocial support and rehabilitation, aim to boost patients’ quality of life, ease the burden and anxiety of informal caregivers, and ultimately provide a comprehensive approach to enhance well-being during this challenging and sensitive period. This study aims to evaluate the impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers. Methods This quasi-experimental study, conducted from August 2023 to January 2024 at outpatient clinics affiliated with the Oncology Center at Mansoura University, Egypt, focused on cancer patients and their caregivers in the palliative care department. Employing pre- and post-test phases, data were gathered using a questionnaire, EORTC QLQ C30, Hospital Anxiety and Depression Scale, Short Form Health Survey, Caregiver Burden Inventory, and Beck Anxiety Inventory. The investigation evaluated a 16-week rehabilitation program comprising exercise, psychoeducation, individual counselling, and spiritual support. Exercises, led by a physiotherapist, targeted fatigue and stress through tailored aerobic and resistance training. Psychoeducation sessions aimed to bolster coping abilities, covering fatigue management and nutrition. Trained counsellors addressed spiritual and existential concerns. Personal advisory sessions were available for individual support. Caregivers received education on rehabilitation and palliative care protocols, ensuring comprehensive patient care. Results The mean age for cancer patients was 65.79 ± 13.85. In contrast, the mean age for primary carers was 42.05 ± 11.15. The QOL for cancer patients during the pre-test phase was 77.8 ± 7.16 and rose to 87.34 ± 14.56 during the post-test phase. Additionally, the total anxiety level of patients before the rehabilitation palliative care program was conducted was 15.45 ± 3.05 compared to 6.12 ± 3.21 after the post test phase. Furthermore, the total depression levels of the patients during the pre-test phase were 20.89 ± 9.21. However, after implementing the rehabilitation palliative care program, it decreased to 15.5 ± 6.86. In regards to the total quality of life of informal caregivers, it was measured at 67.28 ± 32.09 before conducting the program. Nevertheless, it increased to 25.95 ± 40.29 after conducting it. Additionally, the total Caregiver Burden Inventory before implementing the program was 37.45 ± 25.7, and it decreased to 29.36 ± 16.4 after conducting it. Additionally, the total score on the Beck Anxiety Inventory decreased from 45.7 ± 4.3 during the initial testing phase to 17.35 ± 23.67. Conclusion The program for rehabilitation palliative care successfully achieved its goals by enhancing the overall quality of life for cancer patients and their caregivers. Additionally, it reduced the anxiety and depression levels among the patients, as well as the anxiety and caregiver burden among the caregivers. Continue research into the effectiveness of rehabilitation palliative care programs to identify best practices, improve existing programs, and expand access to these services.

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Section: Discussionmentioning

confidence: 99%

Impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers: a quasi-experimental study

Ibrahim,

Wahba,

Zaghamir

et al. 2024

BMC Nurs

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The Experience of Reflexive Hospice Care for Patients With Advanced Cancer: A Qualitative Study

Zhang,

Zeng,

Chen

2024

Journal of Clinical Nursing

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BackgroundHospice care for patients with advanced cancer mainly takes the family members and healthcare professionals as the main body and the patients as the object. There is a lack of relevant research on reflexive hospice care that considers patients as subjects.AimTo explore the experience of reflexive hospice care for patients with advanced cancer.DesignAn empirical phenomenological approach to research was conducted.MethodsData were collected using face‐to‐face semi‐structured interviews between April 3, 2024 and May 27, 2024 in the oncology wards of two comprehensive hospitals. Purposive sampling was used to recruit 18 patients with advanced cancer receiving hospice care. Colaizzi's phenomenological analysis method was used to analyse the data. We followed the consolidated criteria for reporting qualitative research (COREQ).ResultsFour themes were identified as being relevant to the experience of reflexive hospice care for patients with advanced cancer: the absence of prior awareness, reconciling with self and others, care and concern for others, and pursuing the meaning of life.ConclusionThis study provides new insights into hospice care for patients with advanced cancer. It emphasises the importance of patients' participation as subjects in hospice care. In reflexive hospice care, patients can actively participate and express their care for others and their understanding of life, thus gaining more respect and care in the end‐of‐life stage. Therefore, placing patients as the subjects of hospice care and fully respecting and listening to their wishes and needs is one of the most important ways to promote the development of hospice care quality.Patient or Public ContributionNo patient or public contribution.

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Nursing Care for Spiritual Pain in Terminal Cancer Patients: A Non-Randomized Controlled Trial

Cited by 2 publications

References 33 publications

Impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers: a quasi-experimental study

Impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers: a quasi-experimental study

The Experience of Reflexive Hospice Care for Patients With Advanced Cancer: A Qualitative Study

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