Nursing Care of Special Populations: Issues in Caring for Elderly People With Mental Retardation

Fisher, Kathleen

doi:10.1111/j.0029-6473.2004.00028.x

Cited by 12 publications

(10 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The LOA synthesis ‘nursing experienced as needing to go beyond verbal communication alone ’ reflected how not being able to communicate impacts the assessment of care needs and the quality of care provided and results in insufficient and unsafe care [ 45 , 48 , 51 , 54 – 56 ]. Our findings are supported by Fisher [ 67 ], who states that patients with IDD often require information in various formats to help them understand and communicate. Successful communication demands cognitive efforts (ibid) and both verbal and nonverbal cues [ 68 ].…”

Section: Discussionsupporting

confidence: 86%

“…Successful communication demands cognitive efforts (ibid) and both verbal and nonverbal cues [ 68 ]. Even if patients with IDD are able to communicate verbally, difficulties in understanding the spoken word can occur [ 67 ]. Such difficulties can be exacerbated by health care professionals being prone to using jargon [ 69 ], especially as patients with IDD often interpret words and sentences literally [ 70 ].…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

et al. 2018

View full text Add to dashboard Cite

BackgroundResearch suggests that registered nurses (RNs) do not feel adequately prepared to support patients with intellectual disability disorder (IDD). This is unsurprising, as few European health sciences curricula include undergraduate and graduate training courses in IDD. As RNs are often in the front line of care, eliciting in-depth knowledge about how they experience nursing this group of patients is vital. Our aim in this study was to develop a conceptual understanding about RNs’ experiences of nursing patients with IDD.MethodWe undertook a systematic review and meta-ethnography to synthesise qualitative research studies found in PubMed, CINAHL, PsycINFO, ERIC databases and by manual searching to identify additional studies. We condensed translatable second-order constructs, and developed an idiomatic translation. Finally, we formulated line of argument (LOA) syntheses to capture the core of the idiomatic translations.ResultsWe included eighteen published studies from eight countries involving 190 RNs. The RNs’ experience of nursing patients with IDD were reflected in 14 LOAs. Six of these reflected a tentatively more distinctive and at times unique conceptualisation of RNs’ experience of nursing this group of patients. The remaining eight LOAs represented a conceptualisation of nursing per se, a conceptualisation of nursing that was interpreted as a universal experience regardless of context and patient group.ConclusionLack of awareness and knowledge are likely breeding grounds for the ‘otherness’ that still surrounds this group of patients. In encounters between patients and RNs, focusing on the person behind the disability label could be one way to secure relevant nursing care for patients with IDD. Undertaking appropriate under- and postgraduate education alongside the implementation of nursing models focusing on patient-centred care would help RNs in reducing the health and care inequalities this group of patients still face.Trial registrationPROSPERO 2017: CRD42017077703.Electronic supplementary materialThe online version of this article (10.1186/s12912-018-0316-9) contains supplementary material, which is available to authorized users.

show abstract

Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

et al. 2018

View full text Add to dashboard Cite

show abstract

“…While multidisciplinary or interdisciplinary approaches are generally preferred in the support of persons with ID, the recent literature also provides descriptions of the role of specific disciplines. These include a strengths-based approach for social workers [Russo, 1999], use of specialist occupational therapists in residential settings for persons with ID in the United Kingdom [Adams, 2000], and improved nursing care of elderly people with ID in the United States [Fisher, 2004b]. A series of professional development articles on ID offer continuing education nursing credits in the United Kingdom on topics such as health promotion [Bollard, 2002], sexuality of persons with ID [Savarimuthu and Bunnell, 2003], and improving services for people with ID [Williamson and Johnson, 2004].…”

Section: Provider-based Practicesmentioning

confidence: 99%

A cascade of disparities: Health and health care access for people with intellectual disabilities

Krahn

Hammond

Turner

2006

Ment. Retard. Dev. Disabil. Res. Rev.

635

539

View full text Add to dashboard Cite

People with ID represent approximately 2% of the population and, as a group, experience poorer health than the general population. This article presents recent conceptualizations that begin to disentangle health from disability, summarizes the literature from 1999 to 2005 in terms of the cascade of disparities, reviews intervention issues and promising practices, and provides recommendations for future action and research. The reconceptualization of health and disability examines health disparity in terms of the determinants of health (genetic, social circumstances, environment, individual behaviors, health care access) and types of health conditions (associated, comorbid, secondary). The literature is summarized in terms of a cascade of disparities experienced by people with ID, including a higher prevalence of adverse conditions, inadequate attention to care needs, inadequate focus on health promotion, and inadequate access to quality health care services. Promising practices are reviewed from the perspective of persons with ID, providers of care and services, and policies that influence systems of care. Recommendations across multiple countries and organizations are synthesized as guidelines to direct future action. They call for promoting principles of early identification, inclusion, and self-determination of people with ID; reducing the occurrence and impact of associated, comorbid, and secondary conditions; empowering caregivers and family members; promoting healthy behaviors in people with ID; and ensuring equitable access to quality health care by people with ID. Their broadscale implementations would begin to reduce the health disparity experienced by people with ID.

show abstract

“…Ageing with a lifelong disability is relatively a new phenomenon illustrated by dramatic changes in life expectancy for people with intellectual disability (Carter & Jancer , Bigby ). This phenomenon was first highlighted in the United States in the 1980s because of the growing number of older people with intellectual disability outliving their family carers (Fisher ). This increased longevity is resulting in nurses coming into contact with ageing people with intellectual disability, and the need for information about ageing for adults with intellectual disability is intensifying (Service & Hahn ).…”

Section: Introductionmentioning

confidence: 99%

The experiences of registered intellectual disability nurses caring for the older person with intellectual disability

Doody¹,

Markey

Doody

2012

Journal of Clinical Nursing

View full text Add to dashboard Cite

Aim and objectives. To explore the experiences of registered intellectual disability nurses caring for the older person with intellectual disability. Background. Increased longevity for the older person with intellectual disability is relatively a new phenomenon with social and medical factors having significantly increased the lifespan. The ageing population of people with intellectual disability is growing in Ireland, and they are outliving or expected to outlive their family carers. Design. A qualitative Heideggerigan phenomenological approach allowed the researcher become immersed in the essence of meaning and analyse how registered intellectual disability nurses working with the older person perceive, experience and express their experience of caring. Methods. After ethical approval was granted, data were collected through semi-structured interviews from seven participants and were transcribed and analysed thematically using Burnard's framework for data analysis. Results. Three key themes were identified: 'care delivery', 'inclusiveness' and 'clientfocused care'. The study highlights the need for effective planning, an integrated approach to services and that the registered intellectual disability nurse needs to be integrated into the care delivery system within the health service to support client and family carers in the home environment. Conclusions. Overall, the study shows the importance of teamwork, proactive planning, inclusion, attitudes, individualised care, knowing the person and best practice in providing care for older people with intellectual disability. Relevance to clinical practice. This paper reports on the findings of a study which explored the experiences of caring for the older person with intellectual disability. Teamwork, proactive planning, client-centred approach and supporting clients living at home are important as ageing is inevitable.

show abstract

Nursing Care of Special Populations: Issues in Caring for Elderly People With Mental Retardation

Abstract: Nurses need education and increased exposure to the special clinical challenges of caring for individuals with MR. In addition, accessible and appropriate community-based services are required to enhance the quality of life for people with MR.

Cited by 12 publications

References 13 publications

Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

A cascade of disparities: Health and health care access for people with intellectual disabilities

The experiences of registered intellectual disability nurses caring for the older person with intellectual disability

Contact Info

Product

Resources

About