Nursing Initiatives and Future Directions for Transition Practice and Research

Coyne, Imelda; Betz, Cecily Lynn

doi:10.1007/978-3-030-23384-6_13

Cited by 3 publications

(9 citation statements)

References 71 publications

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“…As others have acknowledged (Betz, 2017; Coyne & Betz, 2020), nurses are ideally situated to assist with the transition from pediatric to adult health care given their long‐term relationships and frequent contact with patients, expertise in care coordination, and core competences that emphasize the role of nursing in transition services (International Family Nursing Association, 2015). Nurses have an important role in educating patients and their families, preparing them for transition, providing support, monitoring readiness, and promoting important skills related to self‐care and self‐management (Coyne & Betz, 2020). While all nurses can engage in phases of the transition process, specialized nursing roles such as transition coordinators or case managers are dedicated to the process.…”

Section: Implications For Nursing Practicementioning

confidence: 99%

“…Identification of these vulnerability factors can, in turn, inform nurse‐led educational programs. In fact, Coyne and Betz (2020) pointed out that there is evidence supporting the use of such programs for adolescents and their families with other conditions. Additionally, our model can guide a developmentally appropriate and comprehensive approach to educating adolescents with SB and their families about key factors related to adherence and health‐related complications.…”

Section: Implications For Nursing Practicementioning

confidence: 99%

“…Additionally, our model can guide a developmentally appropriate and comprehensive approach to educating adolescents with SB and their families about key factors related to adherence and health‐related complications. Finally, in terms of research, our model can facilitate more outcome‐focused research (Coyne & Betz, 2020) while also accounting for the complexity of SB and the assessment of the transition to adult health care. The coding system that we are developing (see earlier section on “Measurement: Self‐Management and the Transition to Adult Health Care”) considers the various outcomes associated with a successful transition to adult healthcare in SB and allows for variability in one’s transition status across providers.…”

Section: Implications For Nursing Practicementioning

confidence: 99%

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The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions

Holmbeck

Kritikos

Stern

et al. 2021

J of Nursing Scholarship

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Purpose This article focuses on the transition to adult health care in youth with spina bifida (SB) from the perspective of theory, measurement, and interventions. Methods The purpose of this article is to discuss (a) a theory of linkages between the transfer of medical responsibility from parent to child and the transition from pediatric to adult health care, as mediated by transition readiness; (b) measurement issues in the study of self‐management and the transition to adult health care; and (c) U.S.‐based and international interventions focused on the transition to adult health care in young adults with SB. Findings Individuals with SB must adhere to a complex multicomponent treatment regimen while at the same time managing a unique array of cognitive and psychosocial challenges and comorbidities that hinder self‐management, medical adherence, and the transition to adult health care. Moreover, such youth endure multiple transitions to adult health care (e.g., in the areas of urology, orthopedics, neurosurgery, and primary care) that may unfold across different time frames. Finally, three transition‐related constructs need to be assessed, namely, transition readiness, transition completion, and transition success. Conclusions SB provides an important exemplar that highlights the complexities of conducting research on the transition to adult health care in youth with chronic health conditions. Many transition trajectories are possible, depending on the functioning level of the child and a host of other factors. Also, no single transition pathway is optimal for all patients with SB. Clinical Relevance The success of the process by which a child with SB transitions from pediatric to adult health care can have life‐sustaining implications for the patient.

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Section: Implications For Nursing Practicementioning

confidence: 99%

Section: Implications For Nursing Practicementioning

confidence: 99%

Section: Implications For Nursing Practicementioning

confidence: 99%

See 1 more Smart Citation

The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions

Holmbeck

Kritikos

Stern

et al. 2021

J of Nursing Scholarship

View full text Add to dashboard Cite

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“…N. Gray et al, 2015; Scal, 2002; Straub & Tanner, 2018). Nurses’ and doctors’ crucial role in facilitating AYA’s transition has been emphasized (Coyne & Betz, 2020; Fegran et al, 2014). Collaboration between pediatric and adult care teams continues to be worse than expected (McManus et al, 2015) and nurses’ and doctors’ participation and knowledge could both facilitate and hinder the process (Lestishock et al, 2018; Meleis et al, 2000).…”

Section: Introductionmentioning

confidence: 99%

Nurses’ and Doctors’ Experiences of Transferring Adolescents or Young Adults With Long-Term Health Conditions From Pediatric to Adult Care: A Metasynthesis

Fegran

Westergren

Hall

et al. 2023

Global Qualitative Nursing Research

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The transfer of adolescents and young adults (AYA) with long-term health conditions from pediatric to adult care is a multidisciplinary enterprise where nurses and doctors play an important role. This review aimed to identify and synthesize evidence from qualitative primary reports on how nurses and doctors experience the transfer of AYA aged 13 to 24 years with long-term health conditions to an adult hospital setting. We systematically searched seven electronic databases for reports published between January 2005 and November 2021 and reporting nurses’ and doctors’ experiences. We meta-summarized data from 13 reports derived from 11 studies published worldwide. Using qualitative content analysis, we metasynthesized nurses’ and doctors’ experiences into the theme “being boosters.” Boosting AYA’s transfer was characterized by supporting AYA’s and their parents’ changing roles, smoothening AYA’s transition from pediatric to adult care, and handling AYA’s encounters with a different care culture.

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“…The emphasis of seminal work focused on the transfer of care period; as the field has progressed, the scope of the service model development has evolved to be more comprehensive based on an interdisciplinary model of care (American Academy of Pediatrics American Academy of Family Physicians American College of Physicians Transitions Clinical Report Authoring Group, 2011; American Academy of Pediatrics American Academy of Family Physicians American College of Physicians‐American Society of Internal Medicine, 2002; Blum, 1995; Georgetown University Child Development Center, 1989; National Association of Pediatric Nurse Practitioners, 2021; Society of Pediatric Nurses, 2018; White & Cooley, 2018). Coupled with the evolution of the field, interdisciplinary professionals, particularly nurses, have become more visible in their contributions to HCT science and practice as demonstrated by development and testing of HCT models of care, policy making and research efforts (Betz, 2021; Coyne & Betz, 2020; Grady et al, 2021). Nurses have important roles as members of the HCT planning interdisciplinary team as service coordinators, educators, and HCT specialists.…”

Section: Introductionmentioning

confidence: 99%

Health care transition planning: A potpourri of perspectives from nurses

Betz

Mannino

Disabato

et al. 2022

Specialist Pediatric Nursing

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Purpose Nurses have important roles as members of the healthcare transition (HCT) planning interdisciplinary team. Nursing's scope of practice and framework of care brings a distinctive and complementary approach to this expanding field in pediatric care. It is therefore relevant to better understand the extent to which pediatric nurses are involved with the provision of HCT services and model development. Design and Methods This was a qualitative analysis of a national survey of pediatric nurses. A thematic iterative process was used to code data. Three coders separately analyzed responses and then met to compare and discuss until a final list of codes was achieved. The codes were further analyzed until themes and subthemes emerged. Throughout the process, disagreements were discussed and resolved until consensus was achieved. Results A sample of 1814 pediatric nurses and nurse practitioners from two US professional organizations participated in this national survey to gather data on their involvement in HCT planning. This survey contained 17 items, one of which was an open‐ended question stating: Is there anything else you would like to share about your role with the population of transitioning youth and young adults with chronic illness and/or disability? The analysis of responses provided by 154 nurses is presented. Initial coding resulted in 11 categories of data. Four major themes, including four subthemes, emerged from the analysis of responses: Support for the need for transition (subtheme: Nursing involvement); Guidance needed for professional practice (subtheme: Types of guidelines and training); Lack of service linkages to adult providers; and Difficulty letting go (two subthemes: Pediatric providers; Parents). Practice Implications These findings indicated strong support for the need of HCT services and the importance of nursing involvement. However, challenges to HCT implementation were identified that include systemic, psychosocial, and educational barriers. As this field of practice and research continues to grow, it is important that pediatric nurses recognize the opportunities to have a clinical voice to develop nurse‐led HCT services and programs.

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Nursing Initiatives and Future Directions for Transition Practice and Research

Cited by 3 publications

References 71 publications

The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions

The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions

Nurses’ and Doctors’ Experiences of Transferring Adolescents or Young Adults With Long-Term Health Conditions From Pediatric to Adult Care: A Metasynthesis

Health care transition planning: A potpourri of perspectives from nurses

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