Nurturing Meaningful Intergenerational Social Engagements to Support Healthy Brain Aging for Anishinaabe Older Adults

Cornect-Benoit, Ashley; Pitawanakwat, Karen; Community, Wiikwemkoong Unceded Territory Collaborating First Nation; Walker, Jennifer; Manitowabi, Darrel; Jacklin, Kristen

doi:10.1017/s0714980819000527

Cited by 10 publications

(11 citation statements)

References 38 publications

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“…Of these 33 articles, 75% provided a description or definition of the term. These definitions centered on relationship building and integrating scientific, lived experience, and indigenous knowledge to produce new insights ( Cornect-Benoit et al, 2020 ; MacDonald et al, 2006 ). The main values of CBPR identified throughout the literature were attention to equity, collaborative partnerships, bridging knowledge and change, acknowledging expertise beyond academia, attention to culture, and valuing partners’ leadership ( Askari et al, 2018 ; Lee et al, 2018 ; Parker et al, 2022 ).…”

Section: Trends In Terms and Definitions Of Participatory Approaches ...mentioning

confidence: 99%

“…Globally, only 26 studies discussed partnerships with individuals (e.g., residents, caregivers, health-care professionals) from, or organizations serving Indigenous, Black, Asian, or Latinx communities. Some studies reported partnering with Asian practitioners and community members ( Lhimsoonthon et al, 2019 ; Li & Ho, 2019 ; Lindgren et al, 2012 ; Park et al, 2022 ) as well as Indigenous community members ( Acharibasam et al, 2022 ; Cornect-Benoit et al, 2020 ; Cox et al, 2019 ; Dieter et al, 2018 ; Jacklin et al, 2020 ; Pace, 2020 ; Walker et al, 2021 ; Webkamigad et al, 2020 ). In addition, a few studies specified partnering with multiethnic practitioners, caregivers, and community residents ( Goeman et al, 2016 ; Kilstoff & Chenoweth, 1998 ; Nielsen et al, 2022 ).…”

Section: Trends In Partnerships In Adrd Researchmentioning

confidence: 99%

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Participatory Research Approaches in Alzheimer’s Disease and Related Dementias Literature: A Scoping Review

Reyes,

Scher,

Greenfield

2023

Innovation in Aging

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Background and Objectives Given the increase in methodological pluralism in research on brain health, cognitive aging, and neurodegenerative diseases, this scoping review aims to provide a descriptive overview and qualitative content analysis of studies stating the use of participatory research approaches within Alzheimer’s disease and related dementias (ADRD) literature globally. Research Design and Methods We conducted a systematic search across four multidisciplinary databases (CINAHL, SCOPUS, PsycInfo, PubMed) for peer-reviewed, English-language studies addressing ADRD that explicitly described their use of a participatory research approach. We employed a systematic process for selecting articles that yielded a final sample of 163 studies. Data from articles were analyzed to chart trends from 1990 to 2022 in terminology, descriptions, application of participatory approaches, and the extent and nature of partnerships with nonacademics. Results Results demonstrated geographic differences in the use of stated approaches between North America—where community-based participatory research predominates—and Europe, where Action Research is most common. We further found that only 73% of papers in this systematic review had identifiable definitions or descriptions of the participatory approach used. Findings also showed that 14% of articles demonstrated no evidence of engaged partnership beyond activities typical of research participants, while 23% of articles identified partnering with people with dementia, and an additional 16% reported partnerships with members from Indigenous, Black, Asian, or Latinx communities. Discussion and Implications This scoping review identifies three areas in need of greater attention in ADRD literature using participatory research approaches. First, findings indicate the importance of strengthening the use, transparency, and rigor of participatory methods. Second, results suggest the need for greater inclusion of historically marginalized groups who are most affected by ADRD as research partners. Finally, the findings highlight the need for integrating social justice values of participatory approaches into research project designs.

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Section: Trends In Terms and Definitions Of Participatory Approaches ...mentioning

confidence: 99%

Section: Trends In Partnerships In Adrd Researchmentioning

confidence: 99%

Participatory Research Approaches in Alzheimer’s Disease and Related Dementias Literature: A Scoping Review

Reyes,

Scher,

Greenfield

2023

Innovation in Aging

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“…Aaniiih Gros Ventres [27], Anishnaabek people of Wiikwemkoong Unceded Territory [43], Arikara-Hidatsa [24], Aztec [44], Caribe [24], Dakota [35], Diné (Navajo) [45], Eastern Cherokee [24], Haida [24], Huichol (Wixarika) [46], Lakota [24], Mayas in the Altos de Chiapas [47], Native Hawaiian [48], Navajo [21], Penobscot [24], Pueblo of Santa Clara [25], Salteaux [42], Seneca [24], Tahltan First Nation [13], Taino [24], Tohono O'odham [24], White Mountain Apache [24], and Yaqui peoples [24] 1 about each Oceania 33…”

Section: Indigenous Groups Articles (N)mentioning

confidence: 99%

Ways of Knowing of the Brain and Mind: A Scoping Review of the Literature About Global Indigenous Perspectives

et al. 2022

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Indigenous peoples' pursuit of brain health has been challenged by the violation of their rights to practice their cultures, speak their languages, and engage in traditional medical practices. Despite ongoing systemic oppression, indigenous knowledges and healing practices endure today and contribute to global understandings of the brain and mind. We conducted a scoping review of the academic literature, both research and reviews, which has examined the perspectives of global Indigenous people relevant to the neurological sciences. We searched three academic databases using phrases and terms pertaining to brain, neuro, mind, and Indigenous populations. Of the 66 articles included for analysis, 46 were research and 20 reviews or commentaries. The earliest date of publication was 1963; the majority were published after 2000. Most research studies involved consultations through focus groups or interviews, and involved people spanning all age groups. Sixty Indigenous communities were identified in the articles across 21 countries and regions and five continents. By contrast, the countries of affiliation of the corresponding authors were far less diverse: two-thirds were affiliated with institutions in the USA, Canada, Australia, or New Zealand. Only seven authors were in Latin America or Asia, and there were no corresponding authors primarily affiliated with institutions in Africa. The most prevalent focus of the articles was on mental health and illness, followed by aging and dementia. Ethics topics were embedded in two-thirds of articles, with substantial coverage of issues pertaining to public policy and public health, and cultural diversity and heterogeneity. The concepts of wellness and well-being, spirituality, holism and relationality were prominent reference features of this diverse body of research. This work supports the meaningful incorporation of Indigenous knowledges into initiatives involving the neurological sciences, such as the International Brain Initiative, the Canadian Brain Research Strategy, and the USA NIH BRAIN 2.0. Research with Indigenous populations that is collaborative and situates ethics at its core is key to the realization of a truly global, collaborative neuroscience.

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“…This means that PCC needs to be modified, if used at all, for Indigenous Elders; this could include reframing PCC as ‘caring for country’ in Australia (McMillan et al, 2010) or ‘going through the full circle of life’ for various First Nations in Canada (Hulko et al, 2010; Jacklin & Walker, 2019; Lanting et al, 2011). Recent research with a variety of First Nations in Ontario has resulted in a culturally sensitive approach to dementia knowledge sharing (Forbes et al, 2013), culturally appropriate information materials (Webkamagid et al, 2020), an intergenerativity model of healthy brain ageing (Cornect‐Benoit et al, 2020) and a culturally safe assessment tool for use with Anishnaabe older adults (Jacklin et al, 2020); however, a culturally safe approach to dementia care has yet to be developed, let alone one that reflects the diversity and specificity of Indigenous nations. Further, the concepts of sensitivity, appropriateness and relevancy are more often appended to culture than is safety.…”

Section: Introductionmentioning

confidence: 99%

“…Recent research with a variety of First Nations in Ontario has resulted in a culturally sensitive approach to dementia knowledge sharing (Forbes et al, 2013), culturally appropriate information materials (Webkamagid et al, 2020), an intergenerativity model of healthy brain ageing (Cornect-Benoit et al, 2020) and a culturally safe assessment tool for use with Anishnaabe older adults (Jacklin et al, 2020); however, a culturally safe approach to dementia care has yet to be developed, let alone one that reflects the diversity and specificity of Indigenous nations. Further, the concepts of 1 A.N.A.C.…”

Section: Introductionmentioning

confidence: 99%

Culturally safe dementia care: Building nursing capacity to care for First Nation Elders with memory loss

Hulko

Mahara

Wilson³

et al. 2021

Int J Older People Nursing

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Background Nursing staff require culturally relevant and dementia‐specific education to care for the increasing number of First Nation Elders experiencing memory loss. The culturally safe dementia care (CSDC) research team, composed of researchers, decision makers and Secwepemc Elders, was formed to address this. Objectives To increase the capacity of nurses to care for First Nations Elders with memory loss in a culturally safe way. Methods Our community‐based research used purposive sampling and mixed methods to create, implement and evaluate an education programme for nurses. Thirty‐four Elders from six Secwepemc communities participated in roundtables to share views and stories of dementia and nursing care. These data were used to create four teaching stories for the storytelling sessions and talking circles with Elders which, together with the Indigenous Cultural Competency (ICC) training, comprised the CSDC education programme. Thirty‐eight nurses (healthcare aides, licensed practical nurses and registered nurses) working in Central British Columbia began the CSDC study and 15 nurses took part in the education programme, evaluated the storytelling session and completed the three pre‐ and post‐measures (Approaches to Dementia Questionnaire (ADQ), ICC knowledge quiz and self‐assessment, and Care Plans). The pre‐ and post‐tests were scored, and the data were analysed statistically. The data from the roundtables and talking circles were analysed thematically through a collaborative process. Results The scores for the ADQ Hope sub‐scale, the ICC knowledge quiz and the Care Plans increased from pre‐ to post‐test. All nurse participants judged the storytelling session to be effective and their learning outcomes reflected culturally safe dementia care. Conclusions This programme can improve the knowledge, skills and values of nurses to provide culturally safe dementia care.

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Nurturing Meaningful Intergenerational Social Engagements to Support Healthy Brain Aging for Anishinaabe Older Adults

Cited by 10 publications

References 38 publications

Participatory Research Approaches in Alzheimer’s Disease and Related Dementias Literature: A Scoping Review

Participatory Research Approaches in Alzheimer’s Disease and Related Dementias Literature: A Scoping Review

Ways of Knowing of the Brain and Mind: A Scoping Review of the Literature About Global Indigenous Perspectives

Culturally safe dementia care: Building nursing capacity to care for First Nation Elders with memory loss

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