O adoecer e morrer de mulher jovem com câncer de mama

Dolina, Janderléia Valéria; Bellato, Roseney; Araújo, Laura Filomena Santos de

doi:10.1590/s1413-81232013000900022

Cited by 15 publications

(20 citation statements)

References 8 publications

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“…This qualitative research with a comprehensive approach stands out as a "situational study," (3) as it addresses understanding of what goes on in the private context of the ill person and her family. In this microreality, peculiar traits regarding the relationship among the various organized patterns built during their lives produce specific standardized thoughts about the disease and caring experience.…”

Section: Methodsmentioning

confidence: 99%

“…Nonetheless, a patient experiencing the cancer disease process is struck by an avalanche of information and pressed to make practical decisions, among them countless imposed pilgrimages for treating the disease, the need to cope with the reality of potential stigmas, uncertainties concerning effectiveness of treatments, and fear of recurrence, eventual mutilation and the concrete possibility of dying in the process (3) . This myriad of staggering occurrences generates intense suffering, allied with the uncertainty of the treatment results and the continuation of life itself.…”

Section: Introductionmentioning

confidence: 99%

“…The temporality of experienced time is estranged from sequenced chronologic time. It runs in a different mode and is based on reverberations of experiences in which past, present and future are ordained in spiral movements (3) .…”

Section: Introductionmentioning

confidence: 99%

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Distinct Temporalities in the Breast Cancer Disease Process

Dolina¹,

Bellato

Araújo³

2014

Rev. esc. enferm. USP

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Diferentes temporaliDaDes no aDoecimento por câncer De mama las Diferentes percepciones Del tiempo en la enfermiDaD por cÁncer De mama * Unpublished article originated in the master's degree dissertation, "experience of a young woman and her family in the sickening and dying process from breast cancer." the study is part of the matrix research called "Healthcare and justice institutions as mediators in health parental rights implementation: analysis of therapeutic itineraries of people/families at the UHs/mt," and was carried out within the scope of the "nursing, Health and citizenship research Group" (GPESC) of the Nursing College of the Federal University of Mato Grosso (FAEN/UFMT). The study was financed as a scientific initiation and master's degree grants. No conflict of interest was found. 1 nurse; master's in nursing, member of the nursing, Health and citizenship research Group (Gpesc). cuiabá, Brasil. 2 nurse; Doctorate in nursing; professor at the nursing college of the federal University of mato Grosso (faen/Ufmt), member of the Gpesc, cuiabá, Brazil. 3 nurse; Doctor in nursing, professor at the faen/Ufmt, Gpesc leader, cuiabá, Brazil. ReSumoEstudo de abordagem compreensiva, objetivou compreender os reflexos e contrastes entre o tempo experiencial e o tempo protocolar da terapêutica, na vivência de mulher jovem com câncer de mama. Conformando-se como estudo de situação, baseado na História de Vida de Beth, que adoeceu e morreu de câncer aos 34 anos, empregamos entrevista, observação e aná-lise do prontuário na recolha dos dados. A construção de quadro analítico-sintético, com base na cronologia da progressão clí-nica e fases do tratamento e a percepção temporal dos acontecimentos por Beth, possibilitou depreender que o tempo protocolar da terapêutica mostra-se linear, marcado pelo sequenciamento do diagnóstico e tratamento; já o tempo experiencial é marcado pela simultaneidade e não linearidade de acontecimentos mobilizadores de intenso sofrimento que o câncer produziu na vida de Beth. Tal compreensão afirma a necessidade dos profissionais de saúde considerarem o tempo vivido pela pessoa, conferindo pessoalidade à indispensável terapêutica protocolar do câncer. DeScRitoReS Pequisa qualitativa Câncer Eventos que modificam a vida Cuidados à saúde ABStRActComprehensive approach study aimed understanding the reflections and contrasts between personal time and medical therapy protocol time in the life of a young woman with breast cancer. Addressed as a situational study and grounded in Beth's life story about getting sick and dying of cancer at age 34, the study's data collection process employed interviews, observation and medical record analysis. The construction of the analytic-synthetic box based on the chronology of Beth's clinical progression, treatment phases and temporal perception of occurrences enabled us to point out a linear medical therapy protocol time identified by the diagnosis and treatment sequencing process. On the other hand, Beth's experienced time was marked by simultaneous and non-li...

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Distinct Temporalities in the Breast Cancer Disease Process

Dolina¹,

Bellato

Araújo³

2014

Rev. esc. enferm. USP

Self Cite

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“…Em consonância com tal abordagem, foi realizado um "estudo de situação", por nos possibilitar perceber a situação e contexto peculiares de vida dos participantes do estudo, principalmente ao longo do período de adoecimento e cuidado (9).…”

Section: Métodounclassified

“…Mediante os inúmeros afetamentos que o adoecimento crônico produz na vida do adolescente e de sua família, trazendo necessidades ampliadas de cuidado e impondo aDoleScer e aDoecer na PerSPectiva De joveM e FaMília / í. PariS, r. bellato, l. SantoS, k. barroS a garantia do substrato essencial para que esse cuidado aconteça de modo continuado e prolongado, assumimos que essa vivência, pessoal e familiar ao mesmo tempo, constitui-se em uma "situação crônica de adoecimento" (9). No bojo dessa situação, apreendemos a família como unidade cuidadora indispensável, que se reorganiza no propósito de empreender esforços na busca, produção e gerenciamento do cuidado cotidiano exigido pelo adolescente adoecido (10).…”

Section: Introductionunclassified

Adolescer E Adoecer Na Perspectiva De Jovem E Família

Souza¹,

Bellato²,

Araújo

et al. 2016

Cienc. enferm.

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RESUMOObjetivo: Este estudo busca enfatizar a vivência do adolescer concomitante ao adoecer através de linha de adoecimento e desenvolvimento de jovem que, na adolescência, experienciou a instauração de condição crônica por agravos concomitantes -doença renal e câncer. Método: Pesquisa de abordagem compreensiva, modelado como estudo de situação, através da História de Vida, operacionalizada por Entrevista em Profundidade e observação de campo; sendo sujeitos do estudo um jovem adoecido e alguns membros de sua família. Resultados: O desenho de linhas imbricadas do adoecimento e do adolescer possibilitou compreender as diferentes fases da condição crônica por agravos concomitantes e suas significativas repercussões para a vida do jovem. Dessa imbricação entre o adolescer e o adoecer, emergiram diversos enfrentamentos mediante as modificações físico-biológicas, comportamentais e sociais vivenciadas, configurando essa experiência única e complexa. Conclusão: Tal compreensão se mostra importante aos profissionais de saúde, de modo que busquem atender as necessidades do ser humano em desenvolvimento como um todo, não apenas as manifestações da doença.Palavras chave: Neoplasias, adolescente, família, enfermagem. ABSTRACTObjective: This study seeks to highlight the experience of being an adolescent and concomitantly suffer a chronic condition. The study focuses on a teenager who experienced the establishment of a chronic condition due to concomitant aggravations -kidney disease and cancer during adolescence. Methodology: A comprehensive study modeled as a situational analysis of Life History was performed by means of in-depth interviews and field observations. The test subjects were a teenager suffering from a chronic disease and some of his family members. Results: By intertwining the realities of suffering a chronic condition and going through adolescence, * Enfermeira. Mestranda em Enfermagem. UFMT, Programa de Pós Graduação, GPESC. Cuiabá, MT -Brasil.

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Genogram and Eco-Map as Tools for Understanding Family Care in Chronic Illness of the Young

Souza

Bellato

Araújo

et al. 2016

Texto contexto - enferm.

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The aim of this study was to understand family organization in care nucleus and supporting networks for families of young patients who experienced childhood kidney disease and adolescent cancer. It is a situational study using the history of life by means of in-depth interviews and observation. A genogram and an eco-map were used as analytical tools for data organization and analysis. The genogram showed family composition and the relationships established among its members and the care nucleus, strengthening the continuing and prolonged care required by the youth. The eco-map contrasted the punctual and unlinked work of the supporting network with the implicated, affective, and continuing work from the base network participation in the illness experienced by the youth. These tools allow health professionals to know the family organization in care, and the resources and networks with which they count on for support through the experience of a chronic illness.

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O adoecer e morrer de mulher jovem com câncer de mama

Abstract: O adoecer e morrer de mulher jovem com câncer de mamaFalling ill and dying of a young woman with breast cancer

Cited by 15 publications

References 8 publications

Distinct Temporalities in the Breast Cancer Disease Process

Distinct Temporalities in the Breast Cancer Disease Process

Adolescer E Adoecer Na Perspectiva De Jovem E Família

Genogram and Eco-Map as Tools for Understanding Family Care in Chronic Illness of the Young

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