Occupational balance and quality of life in mothers of children with cerebral palsy

Günal, Ayla; Pekçetin, Serkan; Wagman, Petra; Håkansson, Carita; Kayıhan, Hülya

doi:10.1177/0308022621995112

Cited by 15 publications

(11 citation statements)

References 34 publications

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“…Two studies on occupational balance were based on the use of qualitative research methods ( 22 , 64 ). Studies that reported the use of measures of occupational balance in parents included parents of children aged 8 years or younger ( 36 , 37 ), or did not declare children's age ( 65 ). It is unclear whether parents of newborns or children under the age of 1 year were included since this was not described explicitly.…”

Section: Discussionmentioning

confidence: 99%

“…Occupational balance of caregivers has shown to potentially influence both, their own health and the health of the person they cared for (22,35). There is increasing evidence, that occupational balance is clinically relevant in pediatrics, especially when it comes to parents of children with complex caring needs or critical health (22,23,(36)(37)(38)(39). Furthermore, a previous study indicated that there might be a link between mothers' occupations and their children's health as well (40).…”

Section: Introductionmentioning

confidence: 99%

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Associations Between Parental Occupational Balance, Subjective Health, and Clinical Characteristics of VLBW Infants

et al. 2022

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ObjectiveVery low birthweight (VLBW) infants have an increased risk of mortality and frequently suffer from complications, which affects parental occupational balance. Occupational balance is the satisfaction with one's meaningful activities, which include everyday activities that people need to, want to, and are expected to do. In contrast to work-life balance, the construct of occupational balance addresses different activities equally and it applies to all persons, regardless of whether they are working or not. Parental occupational balance might be related to parents' and VLBW infants' health. Therefore, the objective of this study was to investigate associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants.MethodsA cross-sectional multicenter study was conducted in six Austrian neonatal intensive care units. Occupational balance and subjective health of parents of VLBW infants were assessed with six self-reported questionnaires. The following clinical characteristics of VLBW infants were extracted from medical records: gestational age, birthweight, Apgar scores, Clinical Risk for Babies II Score, and complications of prematurity. Spearman's rank coefficients were calculated.ResultsIn total, 270 parents, 168 (62%) female and their VLBW infants, 120 (44%) female, were included in this study. Parents' mean age was 33.7 (±6.0) years, mean gestational age of VLBW infants was 27 + 3 (±2) weeks. Associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants were identified (rs = 0.13 – 0.56; p ≤ 0.05), such as the correlation between occupational areas (rs = 0.22, p ≤ 0.01), occupational characteristics (rs = 0.17, p = 0.01), and occupational resilience (rs = 0.18, p ≤ 0.01) with bronchopulmonary dysplasia of VLBW infants.ConclusionOccupational balance is associated with parents' and VLBW infants' health. Interventions to strengthen parental occupational balance might increase parental health and thereby also improve health and developmental outcomes of their VLBW infants.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Associations Between Parental Occupational Balance, Subjective Health, and Clinical Characteristics of VLBW Infants

et al. 2022

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“…Uhrmann et al (2019) developed a Norwegian version of OBQ11 and reported that it was feasible and had good face validity. Günal et al (2020) translated OBQ11 to Turkish and demonstrated its reliability and validity in a sample of 58 Turkish participants.…”

Section: Literature Reviewmentioning

confidence: 99%

“…The Occupational Balance Questionnaire (OBQ) and the revised OBQ11 have been widely used by researchers to measure OB ever since its development (Borgh et al, 2018;Gunal et al, 2021;Håkansson et al, 2019aHåkansson et al, , 2019bHåkansson and Lexén, 2021;Kassberg et al, 2021;Magnusson et al, 2020;Wagman et al, 2016). The instrument, originally developed in Swedish, has been translated to a number of other languages (Gomez, 2017;Günal et al, 2020;Uhrmann et al, 2019;Yu et al, 2019), but not as yet to the Arabic language. The aim of the present study was thus to describe the translation process of the OBQ11 to Arabic and to evaluate its content validity, internal consistency, construct validity, and convergent validity.…”

Section: Introductionmentioning

confidence: 99%

Translation and initial validation of the occupational balance questionnaire to Arabic—Occupational Balance Questionnaire-A

Dhas

Wagman

Marji

et al. 2021

British Journal of Occupational Therapy

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Introduction Occupational balance (OB) is related to many health indicators, including quality of life. The Occupational Balance Questionnaire (OBQ11) was developed to measure OB, and to date, no Arabic translations of the questionnaire exist. The aim of the study was to describe the translation process of OBQ11 to Arabic and to evaluate its content validity, internal consistency, construct validity, and convergent validity. Methods OBQ11 was translated to Arabic (OBQ11-A) following standard guidelines. Content validity feedback was obtained from ten Arabic-speaking occupational therapists and in a cognitive debriefing with seven volunteers. In addition, OBQ11-A and the Family Quality of Life Survey-2006 were administered to 67 Arabic-speaking participants from a larger study about OB among parents. Results High level of agreement was found on the content of OBQ11-A from the occupational therapists. Cognitive debriefing interviews indicated that OBQ11-A was easy to understand. Cronbach’s alpha for the total OBQ11-A score was 0.864 indicating good internal consistency. Exploratory factor analysis showed acceptable factor loadings for all items. The total scores showed positive statistically significant associations with Family Quality of Life Scores ( r = 0.561, p < 0.001). Conclusions OBQ11-A may prove useful for assessing OB in Arabic-speaking populations. Further research is needed to establish its reliability.

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“…Deviations in the engagement of meaningful activities cause changes of occupational balance, defined as a satisfying amount and variety of meaningful activities [ 32 ]. There is evidence that informal caregiving leads to limited occupational balance [ 29 , 31 , 33 ] and a need for interventions to support informal caregivers’ occupational balance [ 33 , 34 ]. Furthermore, occupational balance was found to be associated with health, quality of life and well-being [ 32 , 35 – 38 ].…”

Section: Introductionmentioning

confidence: 99%

Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants

et al. 2021

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Background Parents’ meaningful activities (occupations) and occupational balance are relevant to neonatal care. Valid and reliable self-reported measurement instruments are needed to assess parents’ occupational balance and to evaluate occupational balance interventions in neonatal care. The aims of this study were to develop a self-reported questionnaire on occupational balance in informal caregivers (OBI-Care) and to examine its measurement properties including construct validity and internal consistency. Methods and findings A mixed method multicenter study design was employed. Items of the OBI-Care were created with parents of preterm infants based on qualitative research methods. Measurement properties were analyzed with quantitative data of parents of preterm infants. Construct validity was assessed by determining dimensionality, overall and item fit to a Rasch model, differential item functioning and threshold ordering. Internal consistency was examined by determining inter-item and item-total correlations, Cronbach’s alpha and Rasch’s person separation index. Fourteen parents participated in item creation. Measurement properties were explored in data of 304 parents. Twenty-two items, summarized in three subscales were compiled to the OBI-Care. Items showed an overall fit and except one item, an item fit to the Rasch model. There was no evidence of differential item functioning and all items displayed ordered thresholds. Each subscale had good values of person separation indices and Cronbach’s alpha. Conclusions The OBI-Care demonstrates construct validity and internal consistency and is thus a suitable measurement instrument to assess occupational balance of parents of preterm infants in neonatal care. OBI-Care is generic and can be applied in various health care settings.

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Occupational balance and quality of life in mothers of children with cerebral palsy

Cited by 15 publications

References 34 publications

Associations Between Parental Occupational Balance, Subjective Health, and Clinical Characteristics of VLBW Infants

Associations Between Parental Occupational Balance, Subjective Health, and Clinical Characteristics of VLBW Infants

Translation and initial validation of the occupational balance questionnaire to Arabic—Occupational Balance Questionnaire-A

Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants

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