Occupational justice in direct-funded attendant services: Possibilities and constraints

Katzman, Erika; Mohler, Elizabeth; Durocher, Evelyne; Kinsella, Elizabeth Anne

doi:10.1080/14427591.2021.1942173

Cited by 7 publications

(7 citation statements)

References 61 publications

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“…All but nine studies took place in the UK (53%) , Australia (21%) [83][84][85][86][87][88][89][90][91][92][93][94][95][96][97][98][99][100][101], or the USA (16%) [102][103][104][105][106][107][108][109][110][111][112][113][114][115]. Of these nine other studies, two took place in Germany [116,117], one in Austria [118], one in Norway [119], and two in Canada [120,121]; two studies compared the experiences of budget holders in England and Norway [122,123], and one article compared the experiences of budget holders in five European countries (Austria, France, Italy, the Netherlands, and England) [124]. Threequarters of the articles (74%) employed a qualitative approach by performing a case study or conducting focus groups, semi-structured interviews, or narrative interviews.…”

Section: Study Retrievalmentioning

confidence: 99%

“…Some of these articles (43%) describe how society and the care network tend to impose the views of normal, nondisabled bodies on care users, which leads to deeply rooted assumptions about the capabilities and skills of care users and to the exclusion of care users from life domains. For example, assumptions about the capacity (skills, emotional resources, and resilience) of older people to become a budget holder or to manage a budget [41,53,63,70,77,80,102,112,114], assumptions about the capacity of people with intellectual disabilities to have a job [49,61,87,92,107], or failing taking into account the transportation needs that people with disabilities have if they are to participate in society [49,104,120,121]. Moreover, one-third of the articles (37%) mention that informal and professional caregivers can restrict access to cash-for-care schemes or take over decision-making processes based on such ideas of the care user's incapability and need for protection.…”

Section: Antecedents Of Empowerment In Cash-for-care Schemes: Context...mentioning

confidence: 99%

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Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review

Pattyn

Gemmel

Vandepitte

et al. 2023

Patient

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BackgroundIn cash-for-care schemes care users are granted a budget or given a voucher to purchase care services, under the assumption that this will enable them to become engaged and empowered customers, leading to more person-centered care. However, opponents of such schemes argue that the responsibility of organizing care is thereby shifted from governments to care users, thus reducing care users' experience of empowerment. The tension between these opposing discourses supposes that other factors affect care users' experience of empowerment. ObjectiveThis systematic review explores the experiences of empowerment and person-centered care of budget holders in cash-for-care schemes and the antecedents that can affect this experience. MethodWe screened seven databases up to October 10, 2022. To be included, articles needed to be peerreviewed, written in English or French, and contain empirical evidence of the experience of empowerment of budget holders in the form of qualitative or quantitative data. ResultsThe initial search identified 10,966 records of which 90 articles were retained for inclusion. The results show that several contextual and personal characteristics determine whether cash-for-care schemes increase empowerment. The identified contextual factors are establishing a culture of change, supportive financial climate, flexible regulatory framework, and access to support and information. The identified personal characteristics refer to the financial, social, and personal resources of the care user. ConclusionThis review confirms that multiple factors can affect care users' experience of empowerment.However, active cooperation and communication between care user and care provider are essential if policy makers wish to increase care users' experience of empowerment.

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Section: Study Retrievalmentioning

confidence: 99%

Section: Antecedents Of Empowerment In Cash-for-care Schemes: Context...mentioning

confidence: 99%

Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review

Pattyn

Gemmel

Vandepitte

et al. 2023

Patient

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“…Two highlighted the barriers to meaningful occupation by disabled people with SCI in Tanzania [195] and of adults aging with intellectual and developmental disabilities in the USA [196]. Others mentioned barriers to social support [197] and direct funding [198]. In four abstracts, it is simply stated that meaningful occupation is important [199][200][201][202] and two that it has a positive effect [203,204].…”

Section: Meaningful Occupationmentioning

confidence: 99%

“…One argued that occupational justice and rights values have to be incorporated into policy implementation [227]. Direct funding is discussed in relation to occupational justice [198]. One abstract covered a panel that focused on occupational justice where the abstract highlighted disabled people in Chile as one stakeholder [228].…”

Section: Occupational Justicementioning

confidence: 99%

“…In one abstract, it was argued that a lack of access to water and sanitation for disabled people limits their ability to occupation, that access to water and occupation is an occupational right and that the reality of non-access is an occupational injustice, occupational depravation and occupational apartheid [239]. The second abstract stated that the use of the concept of "occupational rights" fits with the United Nations' Convention on the Rights of Persons With Disabilities [240].The third abstracts covered direct funding in conjunction with occupational rights [198].…”

Section: Occupational Rightmentioning

confidence: 99%

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Occupational Concepts: An Underutilized Resource to Further Disabled People and Others Being Occupied: A Scoping Review

Wolbring,

Gill

2023

Societies

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Background: Being occupied is an important factor in human well-being and ranges from paid and unpaid work to activities of daily living. Various occupational concepts that do not contain health in the phrase such as “occupational justice” are employed to engage with the social barriers people experience in being occupied. The aim of this study was to understand better to what extent the non-health occupational concepts are used in the academic literature to discuss the social barriers disabled people face in being occupied and whether these occupational concepts are used to enrich discussions in areas that impact the reality of occupation in general such as equity/equality, diversity and inclusion (EDI), science and technology governance, well-being and the impact of environmental issues. Methods: a scoping review of academic abstracts employing SCOPUS, the 70 databases of EBSCO-HOST and Web of Science was performed. Results: We found 24,104 abstracts for the 28 occupational concepts we used in general and 624 abstracts in conjunction with disability terms. Of these 28 occupational concepts, “occupational performance” was mentioned the most (in 9739 of the 24,104 and 397 of the 624 abstracts). The next concept “occupational engagement” was already present in one tenth or less. Occupational justice was present in 700 of the 24,104 and 14 of the 624 abstracts. Furthermore, within the 24,104 and 624 abstracts EDI, science and technology governance, environmental topics, and well-being measures were rarely or not mentioned. Most of the 624 abstracts originated from occupational therapy journals. Only 23 of the 624 abstracts originated from journals with “disability”, and none with “disability studies” in the title. Conclusion: Non-health occupational concepts are underutilized in discourses that focus on decreasing the social barriers to being occupied in general and in relation to disabled people, which is a missed opportunity and should be fixed.

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Drawing on critical disability and universal design perspectives within occupational therapy

Egilson

Jónasdóttir

2023

Scandinavian Journal of Occupational Therapy

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Occupational justice in direct-funded attendant services: Possibilities and constraints

Cited by 7 publications

References 61 publications

Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review

Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review

Occupational Concepts: An Underutilized Resource to Further Disabled People and Others Being Occupied: A Scoping Review

Drawing on critical disability and universal design perspectives within occupational therapy

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