Older Adults’ Fears About Diabetes

Quandt, Sara A.; Reynolds, Teresa; Chapman, Christine; Bell, Ronny A.; Grzywacz, Joseph G.; Ip, Edward H.; Kirk, Julienne K.; Arcury, Thomas A.

doi:10.1177/0733464811435506

Cited by 23 publications

(14 citation statements)

References 41 publications

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“…Learning about diabetes led to people gaining insight in this present study. This finding reflects those of Quandt et al [53] who claimed that what people learn influences their diabetes related beliefs and their capacity to manage their diabetes.…”

Section: Discussionsupporting

confidence: 88%

How people living with diabetes in Indonesia learn about their disease: A grounded theory study

et al. 2019

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Background Diabetes education has been found to impact positively on self-management by people with diabetes although little is known about the process by which they assimilate information. The aim of this study was to generate a theory explaining the process by which people with diabetes learn about their disease in Indonesia. Methods This study employed a grounded theory methodology influenced by constructivism and symbolic interactionism. A total of twenty-eight face-to-face or telephone interviews with participants from Indonesia that included people with diabetes, healthcare professionals, health service providers and families of people with diabetes were conducted in both Indonesia and Australia. Results This study discloses a core category of Learning , choosing , and acting : self-management of diabetes in Indonesia as the basic social process of how people learn about their diabetes. The process includes five distinctive major categories. People with diabetes acted after they had received recommendations that they considered to be trustworthy. Factors that influenced their choice of recommendations to adopt are also identified. Conclusions Awareness of the complexity involved in their decision making will assist healthcare professionals to engage effectively with people living with diabetes.

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Section: Discussionsupporting

confidence: 88%

How people living with diabetes in Indonesia learn about their disease: A grounded theory study

et al. 2019

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“…Patients with this length of diabetes diagnosis would have enough experience to have developed illness beliefs. [ 39 – 41 ] Also, among adults taking diabetes medications, 58% only take oral medications, while 12% only take insulin. [ 38 ] Since medication adherence and treatment beliefs differ based on the type of diabetes medication used, [ 42 ] the sample included individuals only taking oral medications.…”

Section: Methodsmentioning

confidence: 99%

Utilizing the common sense model to explore African Americans’ perception of type 2 diabetes: A qualitative study

2018

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Illness perceptions, which are likely influenced by patients’ cultural contexts, are associated with disease self-management and adherence. African American patients perceptions of type 2 diabetes is not well understood and no known studies has used a comprehensive evidence-based theoretical framework to explore what AAs with type 2 diabetes know, believe, and think about type 2 diabetes. Understanding perceptions of an illness shared by a group of people will be useful in developing culturally-appropriate interventions targeted to the needs of the community. The purpose of this study is to explore African Americans’ perceptions of type 2 diabetes based on the common sense model of illness and self-regulation. Using a phenomenology qualitative approach and purposive sampling, 40 African American men and women, age 45–60 years old with diagnosed type 2 diabetes at least one year prior, and who took at least one prescription diabetes medication, participated in six semi-structured 90-minute focus groups conducted in a private space. Qualitative content analysis was conducted to explore African Americans beliefs about type 2 diabetes. Participants expressed that historical issues, e.g., slavery, healthcare providers, the government, and God influenced how they developed diabetes. Participants reported a loss of autonomy, a change of their identity as an employee, a social individual and sexual person, as well as anger and frustration due to having diabetes. Diabetes made the African American family bonding experience of eating difficult, and the disease diminished their cultural experiences. Concerns about diabetes ranged from fear of death and amputations to the inability to prevent the disease among their children/grandchildren. Participants perceived that medications, faith in God, and positive thinking about survival helped control diabetes. Conclusions: Improved diabetes self-management and medication adherence may depend on the meaning African Americans attach to diabetes, available psychosocial support for managing diabetes, and African Americans experience with diabetes.

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“…I will fix my health care when it interferes with my living .” (female, diabetes patient [ 73 ]) ‘‘[I want to] stack the odds in my favour ” (male colorectal cancer patient, [ 50 ]). For people with diabetes, this meant preventing complications that would affect quality of life, such as losing sight or mobility, “[I fear] the possibility I might lose my eyesight a little quicker ….” (white female, diabetes patient [ 74 ]). Conversely, for people with colorectal cancer, achieving optimal physical health focused around being able to cope with the symptoms of their condition and treatment, and to prevent the reoccurrence of cancer, ‘ ‘I do everything I possibly can with hygiene , diet , all these things to keep me as fit as possible” (male colorectal cancer patient [ 67 ]).…”

Section: Self-management Outcomesmentioning

confidence: 99%

Self-Management and Self-Management Support Outcomes: A Systematic Review and Mixed Research Synthesis of Stakeholder Views

et al. 2015

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IntroductionSelf-management has received growing attention as an effective approach for long-term condition management. Little is known about which outcomes of supported self-management are valued by patients, their families, health professionals and those who commission self-management services. This study systematically reviewed published empirical evidence in accordance with PRISMA guidelines to determine the outcomes of self-management valued by these key stakeholder groups, using three prominent exemplar conditions: colorectal cancer, diabetes and stroke.AimTo systematically review the literature to identify which generic outcomes of self-management have been targeted and are considered important using three exemplar conditions (colorectal cancer, diabetes and stroke), which collectively have a range of features that are likely to be representative of generic self-management issues.MethodsSystematic searching of nine electronic databases was conducted in addition to hand searches of review articles. Abstracts were identified against inclusion criteria and appraised independently by two reviewers, using a critical appraisal tool. Synthesis of findings was conducted using mixed research synthesis.ResultsOver 20,536 abstracts were screened. 41 studies which met the review criteria were fully retrieved and appraised. The majority of evidence related to diabetes. Few studies directly focussed on stakeholders’ views concerning desired self-management outcomes; the majority of evidence was derived from studies focusing upon the experience of self-management. The views of health care commissioners were absent from the literature. We identified that self-management outcomes embrace a range of indicators, from knowledge, skills, and bio-psychosocial markers of health through to positive social networks.ConclusionsPatients’, families’, health professionals’ and commissioners’ views regarding which outcomes of self-management are important have not been clearly elicited. The extent to which bio-psychosocial indicators relate to successful self-management from the perspectives of all groups of stakeholders is unknown. Further investigation regarding which self-management outcomes are considered important by all stakeholders is necessary to guide the commissioning and design of future self-management services.

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Older Adults’ Fears About Diabetes

Cited by 23 publications

References 41 publications

How people living with diabetes in Indonesia learn about their disease: A grounded theory study

How people living with diabetes in Indonesia learn about their disease: A grounded theory study

Utilizing the common sense model to explore African Americans’ perception of type 2 diabetes: A qualitative study

Self-Management and Self-Management Support Outcomes: A Systematic Review and Mixed Research Synthesis of Stakeholder Views

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