Older patients with late‐stage COPD: Their illness experiences and involvement in decision‐making regarding mechanical ventilation and noninvasive ventilation

Jerpseth, Heidi; Dahl, Vegard; Nortvedt, Per; Halvorsen, Kristin

doi:10.1111/jocn.13925

Cited by 28 publications

(79 citation statements)

References 38 publications

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“…New knowledge and updated information about their disease made patients feel safer, and they dared to push themselves further. Other studies (Jerpseth et al, 2018;Russell et al, 2018) also found that patients with COPD have inadequate health competence about their illness. Some of the participants in our study emphasised that the lectures given by healthcare professionals during PR were too general and not particularly relevant to their disease.…”

Section: Discussionmentioning

confidence: 96%

Patients with COPD: Exploring patients’ coping ability during an interdisciplinary pulmonary rehabilitation programme: A qualitative focus group study

Abrahamsen

Lang-Ree

Halvorsen

et al. 2021

Journal of Clinical Nursing

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Section: Discussionmentioning

confidence: 96%

Patients with COPD: Exploring patients’ coping ability during an interdisciplinary pulmonary rehabilitation programme: A qualitative focus group study

Abrahamsen

Lang-Ree

Halvorsen

et al. 2021

Journal of Clinical Nursing

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“…The studies were performed between 1992 and 2020 and mostly in an outpatient setting. Of the three qualitative studies, two [41,46] were performed in North America and the other [37] in Europe. All qualitative studies were conducted in an outpatient setting between 2011 and 2018.…”

Section: Key Characteristics Of the Included Studies And Participantsmentioning

confidence: 99%

End-of-Life Care Preferences of Older Patients with Multimorbidity: A Mixed Methods Systematic Review

González‐González

Schmucker

Nothacker

et al. 2020

JCM

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Unpredictable disease trajectories make early clarification of end-of-life (EoL) care preferences in older patients with multimorbidity advisable. This mixed methods systematic review synthesizes studies and assesses such preferences. Two independent reviewers screened title/abstracts/full texts in seven databases, extracted data and used the Mixed Methods Appraisal Tool to assess risk of bias (RoB). We synthesized findings from 22 studies (3243 patients) narratively and, where possible, quantitatively. Nineteen studies assessed willingness to receive life-sustaining treatments (LSTs), six, the preferred place of care, and eight, preferences regarding shared decision-making processes. When unspecified, 21% of patients in four studies preferred any LST option. In three studies, fewer patients chose LST when faced with death and deteriorating health, and more when treatment promised life extension. In 13 studies, 67% and 48% of patients respectively were willing to receive cardiopulmonary resuscitation and mechanical ventilation, but willingness decreased with deteriorating health. Further, 52% of patients from three studies wished to die at home. Seven studies showed that unless incapacitated, most patients prefer to decide on their EoL care themselves. High non-response rates meant RoB was high in most studies. Knowledge of EoL care preferences of older patients with multimorbidity increases the chance such care will be provided.

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“…Yet, despite its benefits, SDM is not common practice in all palliative care settings (Belanger, Rodriguez, & Groleau, 2011; Brom et al., 2017; Fitzsimons et al., 2019; Henselmans, Van Laarhoven, Van der Vloodt, De Haes, & Smets, 2017; Jerpseth, Dahl, Nortvedt, & Halvorsen, 2018). This may be for several reasons.…”

Section: Introductionmentioning

confidence: 99%

The role of hospital nurses in shared decision‐making about life‐prolonging treatment: A qualitative interview study

Hoek

Thodé

Jongerden

et al. 2020

Journal of Advanced Nursing

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Aims To examine hospital nurses’ perception of their actual and potential contribution to shared decision‐making about life‐prolonging treatment and their perception of the pre‐conditions for such a contribution. Design A qualitative interview study. Methods Semi‐structured face‐to‐face interviews were conducted with 18 hospital nurses who were involved in care for patients with life‐threatening illnesses. Data were collected from October 2018‐January 2019. The interviews were recorded, transcribed verbatim and analysed using thematic analysis by two researchers. Results Nurses experienced varying degrees of influence on decision‐making about life‐prolonging treatment. Besides, we identified different points of contact in the treatment trajectory at which nurses could be involved in treatment decision‐making. Nurses’ descriptions of behaviours that potentially contribute to shared decision‐making were classified into three roles as follows: checking the quality of a decision, complementing shared decision‐making and facilitating shared decision‐making. Pre‐conditions for fulfilling the roles identified in this study were: (a) the transfer of information among nurses and between nurses and other healthcare professionals; (b) a culture where there is a positive attitude to nurses' involvement in decision‐making; (c) a good relationship with physicians; (d) knowledge and skills; (e) sufficient time; and (f) a good relationship with patients. Conclusion Nurses described behaviour that reflected a supporting role in shared decision‐making about patients’ life‐prolonging treatment, although not all nurses experienced this involvement as such. Nurses can enhance the shared decision‐making process by checking the decision quality and by complementing and facilitating shared decision‐making. Impact Nurses are increasingly considered instrumental in the shared decision‐making process. To facilitate their contribution, future research should focus on the possible impact of nurses’ involvement in treatment decision‐making and on evidence‐based training to raise awareness and offer guidance for nurses on how to adopt this role.

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Older patients with late‐stage COPD: Their illness experiences and involvement in decision‐making regarding mechanical ventilation and noninvasive ventilation

Abstract: To provide competent care for these patients, healthcare personnel must be aware of how patients experience being seriously ill. Advanced care planning and shared decision-making should be initiated alongside the curative treatment.

Cited by 28 publications

References 38 publications

Patients with COPD: Exploring patients’ coping ability during an interdisciplinary pulmonary rehabilitation programme: A qualitative focus group study

Patients with COPD: Exploring patients’ coping ability during an interdisciplinary pulmonary rehabilitation programme: A qualitative focus group study

End-of-Life Care Preferences of Older Patients with Multimorbidity: A Mixed Methods Systematic Review

The role of hospital nurses in shared decision‐making about life‐prolonging treatment: A qualitative interview study

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