OMERACT Core outcome measurement set for shared decision making in rheumatic and musculoskeletal conditions: a scoping review to identify candidate instruments

Naye, Florian; Toupin-April, Karine; de Wit, Maarten; LeBlanc, Annie; Dubois, Olivia; Boonen, Annelies; Barton, Jennifer L.; Fraenkel, Liana; Li, Linda C.; Stacey, Dawn; March, Lyn; Barber, Claire E.H.; Hazlewood, Glen Stewart; Guillemin, Francis; Bartlett, Susan J.; Berthelsen, Dorthe B.; Mather, Kate; Arnaud, Laurent; Akpabio, Akpabio; Adebajo, Adewale; Schultz, Grayson; Sloan, Victor S.; Gill, Tiffany K.; Sharma, Saurab; Scholte-Voshaar, Marieke; Caso, Francesco; Nikiphorou, Elena; Nasef, Samah Ismail; Campbell, Willemina; Meara, Alexa; Christensen, Robin; Suarez-Almazor, Maria E.; Jull, Janet Elizabeth; Alten, Rieke; Morgan, Esi M.; El-Miedany, Yasser; Singh, Jasvinder A.; Burt, Jennifer; Jayatilleke, Arundathi; Hmamouchi, Ihsane; Blanco, Francisco J.; Fernandez, Anthony P.; Mackie, Sarah; Jones, Allyson; Strand, Vibeke; Monti, Sara; Stones, Simon R.; Lee, Rebecca R.; Nielsen, Sabrina Mai; Evans, Vicki; Srinivasalu, Hemalatha; Gérard, Thomas; Demers, Juliette LeBlanc; Bouchard, Roxanne; Stefan, Théo; Dugas, Michèle; Bergeron, Frédéric; Beaton, Dorcas; Maxwell, Lara J.; Tugwell, Peter; Décary, Simon

doi:10.1016/j.semarthrit.2023.152344

Cited by 4 publications

(1 citation statement)

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“…[ 12 , 13 ] A Core Set represents a consensus on elements to be assessed in trials and clinical studies. [ 14 ] In the Core (Figure 1) of elements which are mandatory to assess, are situated elements linked to inflammation: peripheral arthritis is combined with enthesitis and dactylitis under the umbrella of musculoskeletal (MSK) disease activity; skin disease and C-reactive protein must also be assessed. Several patient-reported outcomes are also considered mandatory - this includes fatigue (Figure 1).…”

Section: Introductionmentioning

confidence: 99%

Unmet needs in psoriatic arthritis, a narrative review

Lopez-Medina,

Kalyoncu,

Gossec

2024

Arch Rheumatol

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Psoriatic arthritis is a chronic rheumatic disease that poses challenges in its diagnosis, evaluation, and management. The heterogeneity in the manifestations and the absence of definitive diagnosis biomarkers often complicates the process of accurate diagnosis. Furthermore, the involvement of multiple disease domains poses difficulties in assessing disease activity and defining the concept of remission. Despite therapeutic advancements, a subset of patients remains refractory to treatment, leading to the emergence of the concept of “difficult-to-treat” patients and the necessity for novel therapeutic approaches (e.g., drugs with novel mechanisms of action; combinations of treatments). This review addresses key unmet needs in psoriatic arthritis, in terms of diagnosis, classification, evaluation, comorbidities and treatment.

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Section: Introductionmentioning

confidence: 99%