On the Child's Own Initiative: Parents Communicate with Their Dying Child About Death

Jalmsell, Li; Kontio, Taru; Stein, Maria; Henter, Jan‐Inge; Kreicbergs, Ulrika

doi:10.1080/07481187.2014.913086

Cited by 51 publications

(41 citation statements)

References 23 publications

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“…Dunlop (2008) found that it is difficult for the parents to talk to the child about his/her forthcoming death (ibid). It is nevertheless important to remember that children with lifethreatening conditions often are aware of their forthcoming death (Dunlop, 2008;Jalmsell, Kontio, Stein, Henter & Kreicbergs, 2015). However, even if they might be aware of it, they sometimes do not want to talk about it (Dunlop, 2008).…”

Section: Discussionmentioning

confidence: 99%

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Björk

Sundler

Hallström

et al. 2016

European Journal of Oncology Nursing

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Link to publication Citation for published version (APA): Björk, M., Sundler, A. J., Hallström, I., & Hammarlund, K. (2016). Like being covered in a wet and dark blanketParents' lived experiences of losing a child to cancer. European Journal of Oncology Nursing, 25, 40-45. DOI: 10.1016/j.ejon.2016 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Conclusion: There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.

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Section: Discussionmentioning

confidence: 99%

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Björk

Sundler

Hallström

et al. 2016

European Journal of Oncology Nursing

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“…Children considered what would happen if they did or did not take certain actions. They received information from discussions about medical details with HCPs or parents, and some children also searched for information by themselves (Brand et al, 2017;Coyne et al, 2016;Engvall et al, 2016;Hinds et al, 2005;Jalmsell et al, 2015;Stegenga & Ward-Smith, 2008). However, cancer was often difficult for them to understand, because they had not previously experienced the disease.…”

Section: Preparing For Actionmentioning

confidence: 99%

Supporting the Decision Making of Children With Cancer: A Meta-synthesis

Yamaji

Suto

Takemoto

et al. 2020

J Pediatr Oncol Nurs

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Background: Recently, awareness of children’s decision making has increased in an effort to enhance palliative care. However, the conceptual framework for decision making among children with cancer remains unclear. Aims: We clarified the decision-making process of children with cancer regarding their care, treatment, and support from family and health care professionals, and identified their needs and preferences. Design: We used metaethnography to conduct a metasynthesis of relevant studies. Data sources: We searched PubMed, EMBASE, PsycINFO, MEDLINE, and CINAHL. This report was prepared in accordance with the PRISMA statement. Results: Of the 7,237 retrieved studies, 27 met our inclusion criteria. Four themes emerged that reflected the decision-making process of children with cancer: (a) facing changes brought about by a health threat, (b) preparing for action, (c) asserting one’s choice, and (d) internal and external influences. Conclusion: Children with cancer initially undergo a decision-making process. Respecting children’s preferences, values, and emotions may help build trusting relationships and promote their decision-making capability. Future research should focus on children’s emotions, cognition, development, and interactions with parents and health care professionals.

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“…Lesematerial, das sich mit dem Tod und dem Sterben be fasst, sollte an Orten, an denen Kinder be treut werden, verfügbar sein. 13 Bereits Kinder im Alter von nur drei Jahren haben ihrem Bewusstsein über den Tod ihren El tern gegenüber Ausdruck verliehen. Es bleibt jedoch unklar, inwieweit dies auch von den Eltern so wahrgenommen wurde.…”

Section: Den Tod Thematisierenunclassified

Wenn ein Kind stirbt

Kreicbergs¹

2017

JuKiP

Self Cite

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Zusammenfassung Auswirkungen ?ber den Tod hinaus Der Verlust eines Kindes ist das traumatischste Erlebnis f?r eine Familie, unabh?ngig von Religion, Ethnie oder Sozialstatus. In Deutschland sterben jedes Jahr fast 3.500 Kinder aufgrund einer lebensverk?rzenden Krankheit.1 Betroffen davon sind fast doppelt so viele Menschen ? dazu geh?ren neben der Familie und Angeh?rigen auch Pflegekr?fte.

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On the Child's Own Initiative: Parents Communicate with Their Dying Child About Death

Cited by 51 publications

References 23 publications

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Supporting the Decision Making of Children With Cancer: A Meta-synthesis

Wenn ein Kind stirbt

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