On Your Own Feet: A Practical Framework for Improving Transitional Care and Young People’s Self-Management

Staa, AnneLoes van; Peeters, Mariëlle A C; Sattoe, Jane N. T.

doi:10.1007/978-3-030-23384-6_9

Cited by 14 publications

(34 citation statements)

References 53 publications

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“…Previously, a general survey among Dutch professionals working in pediatric and young adult diabetes care revealed large differences in the design and execution of transitional care [25]. This was con rmed during the intake interviews in the participating teams.…”

Section: Data Collectionmentioning

confidence: 88%

“…Themes addressed were organization, structure and working ways, content of transitional care arrangements, and experienced barriers and facilitators. The quality of care of each team was rated on the eight core elements of the 'On Your Own Feet' Framework [25].…”

Section: Data Collectionmentioning

confidence: 99%

“…A member check was conducted to assess the accuracy with which these reports represented the team's actuality. The eight core elements of good transitional care were leading in our thick descriptions; the elements were divided into three categories of interventions: 1) interventions to improve the organization of care; 2) interventions to stimulate independence and self-management of young adults; and 3) collaboration with young adults and within the multidisciplinary team of professionals representing both pediatric care and adult care [25]. Three researchers independently scored each team on the eight elements.…”

Section: Qualitative Partmentioning

confidence: 99%

“…Teams that used systematic interventions for transitional care received higher scores. Examples of interventions are multidisciplinary team consultation meetings, independent consultations with young adults (without parents), transition protocols, transition coordinators, and individual transition plans [25]. Kendall's W was calculated to measure concordance of raters' scores on the eight core elements (0 = no agreement among raters; 1 = complete agreement among raters).…”

Section: Qualitative Partmentioning

confidence: 99%

“…This study, part of a national quality improvement initiative (called 'Better Transition in Diabetes') to advance transitional care in diabetes [25], was designed to explore the added value of transitional care investments for young adults with T1DM in the Netherlands. The nal aim was to provide additional insight into the bene ts of transitional care investments with regard to transfer experiences and satisfaction, self-management related outcomes, healthcare use and clinical outcomes.…”

Section: Introductionmentioning

confidence: 99%

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The added value of transition programs in Dutch diabetes care: A controlled evaluation study

Peeters

Sattoe

Bronner

et al. 2020

Preprint

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Background The desirability of evaluating transition programs is widely acknowledged. This study aimed to explore the added value of transitional care investments for young adults with type 1 diabetes mellitus. Methods On the basis of qualitative data, two groups of diabetes teams were created through cluster analysis: paying more (HI-ATT) versus less attention (LO-ATT) to transitional care. Retrospective controlled evaluation included chart reviews on healthcare use and clinical outcomes; and a survey on young adults’ experiences, satisfaction with care, and self-management skills. Results Data from 320 patients in fifteen diabetes teams were collected; 142 young adults (38.4%) completed a questionnaire. Self-reported outcomes showed that young adults treated by a HI-ATT team felt better prepared for transfer (p <.05). Self-management outcomes did not differ between groups. HI-ATT teams had more scheduled consultations in the year after transfer (p <.05); only 10.6% of all participants had reached targeted HbA1c scores. Conclusions The attention being paid to transition in Dutch diabetes care does not lead to notable improvements in experiences and outcomes, except for preparation for transfer. The period after transfer, however, is just as important. Attention is required for parent involvement. Considering actual implementation and adaptation of interventions is recommended for future evaluation studies.

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Section: Data Collectionmentioning

confidence: 88%

Section: Data Collectionmentioning

confidence: 99%

Section: Qualitative Partmentioning

confidence: 99%

Section: Qualitative Partmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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