One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer<sup>1</sup>

Houtzager, Bregje A.; Grootenhuis, Martha A.; Hoekstra-Weebers, Josette E. H. M.

doi:10.1111/j.1365-2214.2005.00459.x

Cited by 71 publications

(89 citation statements)

References 32 publications

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“…Chronic illnesses reported in this study were mostly cystic fibrosis, congenital heart disease and cancer; therefore, it may be an important future research area for siblings of children with asthma. In a study that assessed quality of life in siblings of children with cancer demonstrated that, motor and cognitive skills as well as negative and positive emotions domains of QoL were impaired partially showing concordance with our results 16 . The difference between the physical QoL results may be attributed to the use of different QoL scales since they used TNO-AZL children's QoL questionnaire and also to the difference in nature of cancer and asthma.…”

Section: Discussionsupporting

confidence: 80%

“…Chronic diseases in children impact not only the patients themselves but also their families including parents and siblings [4][5][6]8,[16][17][18][19] . Despite the fact that both chronic disease in the child and impaired QoL and psychosocial status of parent influences QoL in the sibling negatively, this area is not studied as extensively in asthma.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Does having an asthmatic sibling affect the quality of life in children?

Yılmaz¹,

Türkeli²,

Karaca³

et al. 2017

Turk J Pediatr

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Chronic illness in a family member leads to deterioration of quality of life in other members of that family. We aimed to investigate the influence of having an asthmatic sibling on a child's quality of life (QoL). We enrolled 2-12 year aged healthy children with an asthmatic sibling in the study group and healthy children with a healthy sibling in the control group of this cross-sectional study. Sociodemographic characteristics of children and disease severity characteristics of asthmatic siblings were recorded. All parents filled in Turkish generic PedsQL TM short form appropriate for the child's age group. Study and control groups had 114 children each. Total PedsQL TM scores were not significantly different in any of the age groups (p=0.23, p=0.13, p= 0.11 respectively). Emotional PedsQL TM sub-scores in children with an asthmatic sibling were significantly worse (83.0±16.5 vs 91.6±10.9 in the 2-4 year age group, 72.0±17.8 vs 92.2±11.6 in the 5-7 year age group, 73.7±24.1 vs 88.7±14.8 in the 8-12 year age group respectively, p≤0.002 for all). Similarly, psychosocial sub-score was significantly lower in the 2-4 and 5-7-year-olds but not the 8-12 year old groups (p=0.01, p=0.01, p=0.08 respectively). In conclusion, healthy children with asthmatic siblings have significantly lower emotional QoL and this needs to investigated for other chronic diseases in further research.

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Section: Discussionsupporting

confidence: 80%

Section: Discussionmentioning

confidence: 99%

Does having an asthmatic sibling affect the quality of life in children?

Yılmaz¹,

Türkeli²,

Karaca³

et al. 2017

Turk J Pediatr

View full text Add to dashboard Cite

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“…[15][16][17] Suppressing emotions and feelings is a common negative conclusion. 18,19 There have also been findings of a positive effect (eg, sibling bonding) on siblings residing in a household with a child with disability, 20,21 whereas other studies have concluded no impact. [22][23][24] Vermaes et al 25 recently published a metaanalysis studying the psychological functioning of siblings in families with children with chronic conditions and concluded that there is an overall negative effect with no findings to support a hypothesis that some siblings are more resilient and have more positive self-attributes.…”

Section: Resultsmentioning

confidence: 98%

Assessing Functional Impairment in Siblings Living With Children With Disability

et al. 2013

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WHAT'S KNOWN ON THIS SUBJECT: Previous research on potential deleterious effects of typically developing children growing up in households with children with disability has produced mixed results. Research methods have been cited as a problem in many studies. WHAT THIS STUDY ADDS:This is the largest known empirical study comparing functional impairment in siblings living with a child with disability and siblings residing with children who are typically developing. This study also follows the trajectory of functional impairment across 2 measurement periods. abstract OBJECTIVE: The purpose of this study was to empirically test if siblings of children with disability had higher levels of parent-reported behavioral and emotional functional impairment compared with a peer group of siblings residing with only typically developing children. METHODS:This was a retrospective secondary analysis of data from the Medical Expenditure Panel Survey. We included only households with at least 2 children to ensure sibling relationships. Two groups of siblings were formed: 245 siblings resided in households with a child with disability and 6564 siblings resided in households with typically developing children. Parents responded to questions from the Columbia Impairment Scale to identify functional impairment in their children. RESULTS:On the basis of parent reports and after adjusting for sibling demographic characteristics and household background, siblings of children with disability were more likely than siblings residing with typically developing children to have problems with interpersonal relationships, psychopathological functioning, functioning at school, and use of leisure time (P , .05). The percentage of siblings of children with disability classified with significant functional impairment was 16.0% at the first measurement period and 24.2% at the second (P , .001). For siblings of typically developing children there was a smaller percentage increase from 9.5% to 10.3% (P , .001).CONCLUSIONS: Functional impairment is a key indicator for the need of mental health services and, as such, early assessment and interventions to limit increasing severity and short-to long-term consequences need to be addressed. Health care professionals need to consider a family-based health care approach for families raising children with disability. Pediatrics 2013;132:e476-e483 AUTHORS:

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“…A consensus has been reached that siblings of chronically ill children are at a greater risk for poor mental health outcomes than those without; however, the research has yet to determine what specific familial and individual characteristics help in predicting these mental health outcomes. Drawing upon two broad concepts in sociology, the theory of social roles and the idea of social support, and using the stress process as a theoretical model, I hope to clarify previous contradictions about which type of siblings fare better mentally (Kaminsky and Dewey 2002;Labay and Walco 2004;Houtzager et al 2005;Hamama et al 2008). Doing so will allow healthcare professionals to tailor interventions specifically to siblings who exhibit the identified high-risk characteristics for poor mental health outcomes, therein promoting better results for the siblings and the families as a whole.…”

Section: Research Beginnings and Implicationsmentioning

confidence: 99%

Siblings and Illness

Vanderwerp¹

2011

VURJ

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Using data from the National Longitudinal Survey of Youth-Mother and Child samples, I investigated the relationships among child and adolescent depressive symptoms, having a chronically ill sibling, and other child and familial demographic variables. From research on social support and social role transitions, with the stress process as a theoretical model, I hypothesized that children with chronically ill siblings experience more depressive symptoms. Specifically, I looked at age, gender, birth order and family size as potentially reducing the effect size of having a chronically ill sibling. Findings showed that having a chronically ill sibling is associated with demonstrating more depressive symptoms both in the bivariate and multivariate analyses. Although age, gender, birth order and family size do not interact significantly with having a chronically ill sibling in predicting depressive symptoms, they do present interesting findings about childhood depressive symptoms in general. Thus, the results of this study suggest specific and meaningful paths for future research.

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One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer¹

Cited by 71 publications

References 32 publications

Does having an asthmatic sibling affect the quality of life in children?

Does having an asthmatic sibling affect the quality of life in children?

Assessing Functional Impairment in Siblings Living With Children With Disability

Siblings and Illness

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One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer1

Cited by 71 publications

References 32 publications

Does having an asthmatic sibling affect the quality of life in children?

Does having an asthmatic sibling affect the quality of life in children?

Assessing Functional Impairment in Siblings Living With Children With Disability

Siblings and Illness

Contact Info

Product

Resources

About

One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer¹