One Voice Is Good, But More Is Better: Symptom and Toxicity Reporting in Pediatric Oncology

Hinds, Pamela S.; Grossoehme, Daniel H.; Reeve, Bryce B.

doi:10.1097/ncc.0000000000001184

Cited by 6 publications

(2 citation statements)

References 6 publications

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“…While the discrepancies between child and parent proxy reporting of PROs are widely described, the recommendations are to value all voices-those of the child, parent, and clinicians-acknowledging the unique perspective each brings to understanding the effects of cancer on a child [41]. The potential benefits of PROs in pediatric oncology will only be realized by efforts to overcome barriers to ensure that children and families are included in decision-making processes and that the outcomes that matter most to them are prioritized [42].…”

Section: Use Of Patient-reported Outcomesmentioning

confidence: 99%

Supportive Care in Pediatric Oncology: Opportunities and Future Directions

Freedman,

Beeler,

Bowers

et al. 2023

Cancers

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The optimization of outcomes for pediatric cancer patients relies on the successful advancement of supportive care to ease the treatment burden and mitigate the long-term impacts of cancer therapy. Advancing pediatric supportive care requires research prioritization as well as the development and implementation of innovations. Like the prevailing theme throughout pediatric oncology, there is a clear need for personalized or precision approaches that are consistent, evidence-based, and guided by clinical practice guidelines. By incorporating technology and datasets, we can address questions which may not be feasible to explore in clinical trials. Now is the time to listen to patients’ voices by using patient-reported outcomes (PROs) to ensure that their contributions and experiences inform clinical care plans. Furthermore, while the extrapolation of knowledge and approaches from adult populations may suffice in the absence of pediatric-specific evidence, there is a critical need to specifically understand and implement elements of general and developmental pediatrics like growth, nutrition, development, and physical activity into care. Increased research funding for pediatric supportive care is critical to address resource availability, equity, and disparities across the globe. Our patients deserve to enjoy healthy, productive lives with optimized and enriched supportive care that spans the spectrum from diagnosis to survivorship.

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Section: Use Of Patient-reported Outcomesmentioning

confidence: 99%

Supportive Care in Pediatric Oncology: Opportunities and Future Directions

Freedman,

Beeler,

Bowers

et al. 2023

Cancers

View full text Add to dashboard Cite

show abstract

“…First, we propose the framework include the family voice, an assessment of the child’s symptoms from the perspectives of the child and caregiver, in addition to the clinician. Hinds et al 3 identified the importance of the unique contribution and perspectives of patient, family, and clinician voices, for optimal symptom assessment. Yet, current symptom frameworks, including the TOUS, do not currently reflect the triad of voices.…”

mentioning

confidence: 99%