Abstract:Human genome and phenome data is classified as special categories data under the EU GDPR legislation (Art. 9 GDPR). This requires special care to be taken when processing and reusing this data for research. To enable this in a compliant way, a federated approach was applied to the existing European Genome-phenome Archive ([EGA(https://ega-archive.org/)]) (Freeberg et al., 2022), creating the Federated EGA ([FEGA(https://ega-archive.github.io/ FEGA-onboarding/#what-is-federated-ega)]) (EGA Consortium, n.d.) in … Show more
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