Opinions of hemodialysis and peritoneum patients regarding depression and psychological problems which they experience: A qualitative study

Avdal, Elif Ünsal; Ayvaz, İsmail; Uran, Berna Nilgün Özgürsoy; YILDIRIM, Jülide Gülizar; Sofulu, Funda; Pamuk, Gülseren

doi:10.1016/j.jiph.2020.02.041

Cited by 30 publications

(20 citation statements)

References 20 publications

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“…It was observed that respondents believed they adjusted well to dialysis therapy as this was believed to possible due to the presence of a strong social network and supporting relatives which are in line with a study conducted by Lilympaki et al (2016) [21] who reported that CKD patient with elevated depression and anxiety may perceive less social support from family and significant others and in contrast, this was supported by another study which suggests that prolong dialysis treatment causes negative effects on the CKD patients. The study further concludes that to get substantial treatment outcomes, it is essential and imperative to improve the social support of family and significant others [24]. A greater percentage affirmed that dialysis therapy makes them poorer which could be affiliated with low financial income and quality of life and thus some could not afford dialysis therapy and they also neglect major and important activities in life which are consistent with a cross-sectional study conducted among 150 patients with CKD and understanding hemodialysis in two major centers in Nepal which conclude that patients that have CKD and undergoing dialysis have an overall low quality of life.…”

Section: Discussionmentioning

confidence: 93%

Psychosocial Impacts of Chronic Kidney Disease and Dialysis Therapy

2021

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Background: Chronic Kidney Disease (CKD) has been a significant global health problem and a source of an enormous burden on the healthcare system and psychological distress for diagnosed patients. This study aims to understand the psychosocial impacts of CKD and dialysis therapy on patients undergoing dialysis in LAUTECH Teaching Hospital, Osogbo. Methodology: A descriptive study design was used, and the sampling technique was purposive. Subject participation was voluntary and preceded informed consent. Patients that had CKD and undergoing dialysis were identified. Data were collected, cleaned, and analysed using SPSS Version 23. Results: Patients perceptions of life and social limitations due to CKD and dialysis therapy revealed that 74.1% of the respondents always feel anxious, 67.8% feel that adjusting to dialysis is difficult, 85.5% of the respondents think that CKD and dialysis therapy is making them poorer, 90.3% feel they were neglecting important activities in life due to dialysis therapy. There was a significant relationship between patients’ perception of life and social limitations and the perceived influence of dialysis therapy on family functions and support persons (p<0.05) as well as the level of income and behavioural compliance. Conclusion: Our study revealed that CKD and dialysis therapy have major psychosocial impacts on the patients although many can cope well. We recommend more financial supports and interventions for CKD patients undergoing dialysis therapy. Doi: 10.28991/SciMedJ-2021-0302-5 Full Text: PDF

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Section: Discussionmentioning

confidence: 93%

Psychosocial Impacts of Chronic Kidney Disease and Dialysis Therapy

2021

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“…There is a growing body of evidence showing that most patients undergoing hemodialysis have varying degrees of psychological problems, such as depression and anxiety (Ng et al, 2015). Avdal et al (2020) also validated that problems of financial losses, social exclusion, stress, fatigue, depression, and anxiety may occur in the patients undergoing hemodialysis and peritoneal dialysis. Besides, the suddenly imposed HB-GMQ might have further aggravated the patients' preexisted psychological problems.…”

Section: Discussionmentioning

confidence: 99%

The Implementation of Patient-Centered Humanistic Care for COVID-19 Closely Contacted Hemodialysis Patients Under the Hospital-Based Group Medical Quarantine: A Brief Research Report

Gan

et al. 2021

Front. Psychol.

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In February 2020, an inpatient in Peking University People's Hospital (PKUPH), China, was confirmed positive for the novel coronavirus. In this case, 143 hemodialysis patients were labeled as close contacts and required to be placed under the hospital-based group medical quarantine (HB-GMQ) for 2 weeks by the authorities. After the case was reported, false or misleading information about the case flourished on social media platforms, which led to infodemic. Under this context, PKUPH adopted patient-centered humanistic care to implement the HB-GMQ, through the synergy of administrative, healthcare, logistical, and other measures under the model of patient-centered care of the Massachusetts Medical Society (MMS). As a result, all the patients tided over the HB-GMQ with no COVID-19 infection and no unanticipated adverse events, and all met the criteria for lifting the HB-GMQ. According to the questionnaires taken during the HB-GMQ, a high level of satisfaction was found among the quarantined and no symptomatic increase of anxiety and depression in the patients before and during the HB-GMQ, by comparing the Zung self-rating anxiety scale (SAS) and self-rating depression scale (SDS) conducted in December 2019 and on the 12th day of the HB-GMQ. This article is to brief on PKUPH's experience in implementing patient-centered humanistic care tailored to hemodialysis patients under the HB-GMQ, and to validate the hypothesis that patient-centered humanistic care is effective and helpful to help them tide over the HB-GMQ, so as to shed light on how to implement the HB-GMQ and cope with the HB-GMQ-induced problems in other hospitals.

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“… 29 Conversely, a qualitative study showed evidence that both HD and PD patients frequently experience depression along with other psychological problems, such as decreased social support, burn-out, despair and anxiety. 30 Apart from these, patients and their caregivers have to face high treatment costs, out-of-pocket costs and other comorbidities that arise, which can be overwhelming and cause those in low-income or middle-income families to bear a financial burden. 31 Based on past literature in other countries, the high treatment costs have led to numerous caregivers having to suffer a financial burden and to willingly mortgage their valuable items to cover those costs.…”

Section: Introductionmentioning

confidence: 99%

“…Also, patients under PD have been reported to have significantly higher levels of depression symptoms than those on HD 29. Conversely, a qualitative study showed evidence that both HD and PD patients frequently experience depression along with other psychological problems, such as decreased social support, burn-out, despair and anxiety 30. Apart from these, patients and their caregivers have to face high treatment costs, out-of-pocket costs and other comorbidities that arise, which can be overwhelming and cause those in low-income or middle-income families to bear a financial burden 31.…”

Section: Introductionmentioning

confidence: 99%

The effects of psychosocial and economic factors on the quality of life of patients with end-stage renal disease and their caregivers in Klang Valley, Malaysia: protocol for a mixed-methods study

et al. 2022

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IntroductionThe number of patients in Malaysia requiring dialysis is expected to rise substantially in the future due to the ageing population and increasing prevalence of diabetes mellitus and hypertension. Hence, more individuals will be expected to adopt the role of caregivers in the future. The upward trend of end-stage renal disease (ESRD) and caregiving for dialysis patients has detrimental consequences for both patients and caregivers in terms of their psychological well-being and quality of life. Despite the current circumstances, there are very few studies in Malaysia that have explored the psychosocial factors, specifically on the economic impact of the management of ESRD.Methods and analysisThis two-phase sequential explanatory mixed-methods design, incorporating a quantitative design (phase I) and a qualitative study (phase II), is to be conducted in 4 government hospitals and 10 other non-governmental organisations or private dialysis centres within Klang Valley, Malaysia. A cross-sectional survey (phase I) will include 236 patient-caregiver dyads, while focus group discussions (phase II) will include 30 participants. The participants for both phases will be recruited purposively. Descriptive statistics, independent sample t-tests and multiple regression analysis will be used for analyses in phase I, and thematic analysis will be used in phase II.Ethics and disseminationApproval for the study has been obtained from the National Medical Research and Ethics Committee (MREC) (NMRR-21-1012-59714) and the Research Ethics Committee of Hospital Canselor Tuanku Muhriz UKM (UKM PPI/111/8/JEP-2021–078) and University of Malaya Medical Centre (MREC ID NO: 2 02 178–10346). Informed consent of the participants will be obtained beforehand, and no personal identifiers will be obtained from the participants to protect their anonymity. The findings will be published in peer-reviewed scientific journals and presented at national or international conferences with minimal anonymised data.

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Opinions of hemodialysis and peritoneum patients regarding depression and psychological problems which they experience: A qualitative study

Cited by 30 publications

References 20 publications

Psychosocial Impacts of Chronic Kidney Disease and Dialysis Therapy

Psychosocial Impacts of Chronic Kidney Disease and Dialysis Therapy

The Implementation of Patient-Centered Humanistic Care for COVID-19 Closely Contacted Hemodialysis Patients Under the Hospital-Based Group Medical Quarantine: A Brief Research Report

The effects of psychosocial and economic factors on the quality of life of patients with end-stage renal disease and their caregivers in Klang Valley, Malaysia: protocol for a mixed-methods study

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