Optimising a complex stroke caregiver support programme in practice: a participatory action research study

Krieger, Theresia; Floren, Miriam; Feron, Frans; Dorant, E.

doi:10.1080/09650792.2019.1699131

Cited by 10 publications

(13 citation statements)

References 56 publications

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“…A comprehensive understanding of all concerned stakeholders in the respective setting is needed, as it leads to internal knowledge and understanding of implementation barriers and enablers [37][38][39]. Therefore, it is important to include enough resources in terms of time and personnel for the inclusion of participatory elements in a programme's development [40,41].…”

Section: Programme Development and Participatory Elementsmentioning

confidence: 99%

Salutogenesis at Work as a Facilitator for Implementation? An Explorative Study on the Relationship of Job Demands, Job Resources and the Work-Related Sense of Coherence within a Complex Healthcare Programme

Cecon

Krieger

Salm

et al. 2022

IJERPH

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Background: The implementation of complex healthcare programmes can be challenging for respective service providers (SPs) in implementation settings. A strong work-related sense of coherence (Work-SoC) promotes creation of job resources and potentially facilitates coping with demands that may arise during implementation. In this study, we analyse how SPs’ Work-SoC is influenced by job resources and demands during programme implementation and identify relevant implementation strategies to ensure a salutogenic implementation process. Methods: Qualitative data were collected during the implementation of a new complex psycho-oncological care programme called isPO. Four focus groups and four interviews were conducted with SPs. All were audiotaped, transcribed and content analysis was applied, whilst ensuring inter- and intra-rater reliability. Results: Each Work-SoC component was influenced by specific job resources and demands. In particular, comprehensibility and manageability interacted. Manageability affected assessment of the programme’s feasibility. High meaningfulness positively affected the programme’s acceptance and overall assessment among SPs. Furthermore, it buffered low manageability and was strongly associated with project identification. Conclusion: We found that Work-SoC could be used to assess SPs’ work environment, and therefore programme feasibility. It may be worthwhile to use Work-SoC as an implementation outcome or as an indicator for possible programmes.

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Section: Programme Development and Participatory Elementsmentioning

confidence: 99%

Salutogenesis at Work as a Facilitator for Implementation? An Explorative Study on the Relationship of Job Demands, Job Resources and the Work-Related Sense of Coherence within a Complex Healthcare Programme

Cecon

Krieger

Salm

et al. 2022

IJERPH

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“…The actual Care-givers' Guide programme consists of eight conceptual building blocks (CBB) (Krieger et al, 2019). Five core blocks, 'Content', 'Human resources', 'Personalised approach', 'Timing' and 'Setting', essential for personalised care-giver support, were developed in the programme's development phase using insider knowledge from important stakeholders revealed through qualitative research methods (Krieger et al, 2017).…”

Section: The Care-givers' Guide Programmementioning

confidence: 99%

“…Five core blocks, 'Content', 'Human resources', 'Personalised approach', 'Timing' and 'Setting', essential for personalised care-giver support, were developed in the programme's development phase using insider knowledge from important stakeholders revealed through qualitative research methods (Krieger et al, 2017). The three facilitating blocks, 'Network building', 'Communication' and 'Social safety-net', that together will serve as a lifebelt for the programme within the existing support system, were developed in the programme's optimisation phase, before the programme was implemented, by using Participatory Action Research (Krieger et al, 2019). To manage the implementation of the programme, two instruments were developed using the inputs of a combined stakeholder and risk analysis (Krieger et al, 2020).…”

Section: The Care-givers' Guide Programmementioning

confidence: 99%

“…From the inception of our project we considered the German stroke rehabilitation trajectory as a holistic system. Our programme explicitly invested in the system by building up a professional network and improving the communication between the different actors in the support system (Figure 2; Krieger et al, 2019). As the programme progressed, the professionals involved in the service provision started to acknowledge care-givers as part of the rehabilitation team, which was perceived as a first step in system optimisation.…”

Section: Holistic Viewmentioning

confidence: 99%

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Two-level multi-methodological evaluation of a new complex primary support programme for stroke care-givers in Germany

2020

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Family care-givers are the backbone of the long-term support system for care receivers at home. Care for stroke survivors after rehabilitation primarily rests on the shoulders of family members, often of older age themselves. We report the outcomes of a new complex support programme, the Care-givers’ Guide, on both individual and system levels. Psycho-social support and personalised information were the main ingredients of this intervention. A two-level multi-methodological approach was needed, with two concurrent interconnected studies. Family care-givers reflected on outcomes at an individual level in a quant-QUAL study with a pre–post quantitative questionnaire and a post-intervention qualitative semi-structured interview. Practitioners participated in a QUAL-QUAL study ex post interview, reflecting on the outcomes on the care-givers and on their own stroke care system. Individual family care-givers showed an increase in health literacy and level of psycho-social health. Qualitative analysis revealed improvement in knowledge, capability to act and individual empowerment; and stabilisation of sense of certainty, life balance and emotional wellbeing. Practitioners observed an optimisation of the stroke support system by improving professionals’ daily routine, augmenting the institutional support offer, securing the quality of patient care and increasing inter-institutional co-operation attempts. Positive outcomes of the support programme were observed on both evaluation levels: family care-givers showed improved health literacy and psycho-social health, whereas the professionals noticed an optimisation of the support system.

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“…The concept of the Caregivers’ Guide was aligned with the real-world system before implementation using participative action research. The program’s stakeholders played a crucial role in this process [ 26 , 27 ].…”

Section: Introductionmentioning

confidence: 99%

Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy

Dorant

Krieger

2017

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Family caregivers are the backbone of the long-term care support system within the home environment. Comprehensive caregiver support programs require collaboration and coordination within the system. A new public health concept, Vade Mecum, aims to harmonize and professionalize family caregiver support initiatives in geriatric care settings in the Euregion Maas-Rhine. Exploration of the new concept recently started in Germany to gain in-depth insight into current support and the needs of the geriatric care team and family caregivers. Within the context of an exploratory qualitative study, a participatory health research (PHR) strategy was applied to make optimal use of experience and knowledge from the system. Care professionals, engaged as co-researchers, were responsible for decisions about the research question, data collection methods and procedures of engaging family caregivers. A research team representing all professions within the geriatric department was formed. Research objectives were formulated and an appropriate mix of qualitative data collection methods consisting of interviews, focus groups and story-telling was chosen. Needs and expectations of the new concept, and practical solutions for involving family caregivers were discussed. A PHR strategy resulted in initiating a qualitative study in a geriatric care setting carried out by care professionals from the department. Knowledge was generated in a co-creative manner, and co-researchers were empowered. A comprehensive understanding of the system serves as a starting point for advancement of the new family caregiver concept.

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Optimising a complex stroke caregiver support programme in practice: a participatory action research study

Cited by 10 publications

References 56 publications

Salutogenesis at Work as a Facilitator for Implementation? An Explorative Study on the Relationship of Job Demands, Job Resources and the Work-Related Sense of Coherence within a Complex Healthcare Programme

Salutogenesis at Work as a Facilitator for Implementation? An Explorative Study on the Relationship of Job Demands, Job Resources and the Work-Related Sense of Coherence within a Complex Healthcare Programme

Two-level multi-methodological evaluation of a new complex primary support programme for stroke care-givers in Germany

Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy

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