2022
DOI: 10.1007/s11764-022-01166-3
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Optimizing cancer survivorship in primary care: patient experiences from the Johns Hopkins Primary Care for Cancer Survivors clinic

Abstract: Purpose The optimal delivery of survivorship care, particularly within primary care, remains poorly understood. We established the Johns Hopkins Primary Care for Cancer Survivors (PCCS) clinic in 2015 to address care challenges unique to cancer survivors. To better understand the care from the PCCS clinic, we interviewed patients about their perception of care delivery, survivorship care, and care coordination. Methods We conducted semi-structured interviews with adult … Show more

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Cited by 5 publications
(4 citation statements)
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“…A notable example is the Johns Hopkins Primary Care for Cancer Survivors clinic. 37 In this setting, six general internists provide survivorship care; although they predominantly serve breast cancer survivors, they see survivors of any cancer type. However, although the program has grown, the percent of survivors who are transitioned to this group still represents a fraction of the survivors treated at the cancer center.…”
Section: Implementation Perspectives From Oncology: Strategies For Ef...mentioning
confidence: 99%
“…A notable example is the Johns Hopkins Primary Care for Cancer Survivors clinic. 37 In this setting, six general internists provide survivorship care; although they predominantly serve breast cancer survivors, they see survivors of any cancer type. However, although the program has grown, the percent of survivors who are transitioned to this group still represents a fraction of the survivors treated at the cancer center.…”
Section: Implementation Perspectives From Oncology: Strategies For Ef...mentioning
confidence: 99%
“…Bone health can also be incorporated into routine PCa cancer review if the practice also provides cancer care review. In a study exploring patients' experiences from a primary care cancer survivor clinic, patients perceived receiving high-quality primary care and valued being seen in a primary-based survivorship clinic [39].…”
Section: Discussionmentioning
confidence: 99%
“…However, these are not insurmountable challenges, and numerous successful examples can be identified to encourage these changes in clinical practice. [4][5][6] Yet, regardless of the preferred approach to developing a survivorship program, the workflows, the EHR automation, having dedicated financial commitment from the institution is foundational to having a sustainable survivorship program. A business model and sustainability plan will look different for each organization; however, standard elements should be considered along with a plan for a return on investment metrics.…”
mentioning
confidence: 99%
“…We also recognize the existing limitations and challenges of implementing these changes in our disparate health care delivery systems and clinical practices. However, these are not insurmountable challenges, and numerous successful examples can be identified to encourage these changes in clinical practice . Yet, regardless of the preferred approach to developing a survivorship program, the workflows, the EHR automation, having dedicated financial commitment from the institution is foundational to having a sustainable survivorship program.…”
mentioning
confidence: 99%