‘Opting-in or opting-out?’—The views of the UK's faith leaders in relation to organ donation

Randhawa, Gurch; Brocklehurst, Anna; Pateman, Ruth; Kinsella, Suzannah; Parry, Vivienne

doi:10.1016/j.healthpol.2009.12.012

Cited by 31 publications

(26 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…A report from United Kingdom (UK) stated no significant association between religion and attitude for OD [19]. Some authors reported differential effects among different religious beliefs on the attitude from OD [18]. Belief in resurrection or reincarnation necessitating the importance of body integrity after death as in Confucian and Buddhist values has a negative impact on organ donation [37,38].…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Knowledge and Attitudes about Organ Donation among Medical Students in Egypt: A Questionnaire

Hamed¹,

Awad²,

Youssef³

et al. 2015

J Transplant Technol Res

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

“…Many studies have evaluated knowledge and attitude towards OD from various countries but there are few reports from the Middle East area and especially Egypt [4][5][6][7][8][9][10][11][12][13][14][15][16][17][18][19]. Egypt is an Arab country with a Muslim majority in its population.…”

Section: Introductionmentioning

confidence: 99%

Knowledge and Attitudes about Organ Donation among Medical Students in Egypt: A Questionnaire

Hamed¹,

Awad²,

Youssef³

et al. 2015

J Transplant Technol Res

View full text Add to dashboard Cite

show abstract

“…Mohammed, 2012;Randhawa et al, 2010). However, there is a lack of research that examine the indirect impact of religious beliefs on motivations to donate.…”

Section: Religious Beliefsmentioning

confidence: 99%

Moderating role of religious beliefs on attitudes towards charities and motivation to donate

Teah

Lwin

Cheah

2014

Asia Pacific Journal of Marketing and Logistics

View full text Add to dashboard Cite

Teah, M. and Lwin, M. and Cheah, I. 2014. Moderating role of religious beliefs on attitudes towards charities and motivation to donate. Asia Pacific Journal of Marketing and Logistics. 26 (5): pp. 738-760. 1 Moderating Role of Religious Beliefs on Attitudes towards Charities and Motivation to Donate PurposeThe study aims to examine the relationship between image of charitable organizations, attitudes towards charities and motivation to donate. In addition, the study will investigate the moderating effects of religious beliefs on attitudes towards charities and motivation to donate. Design/methodology/approachData is collected using a self-administered questionnaire. Trained interviewers employed a mallintercept method in downtown Kuala Lumpur over both weekdays and weekends. The scales are adapted from established sources. FindingsIt was found that religious beliefs moderates the relationship between attitudes towards charities and motivation to donate. In addition, image of charitable organizations has a positive influence on attitudes towards charities. It was also found that both image of charitable organizations and attitudes towards charities influence motivation to donate. Research limitations/implicationsThe study is conducted within downtown Kuala Lumpur and is not generalizable across Malaysia and other countries. In addition, this study only looked at general religious beliefs, therefore findings are not specific to a religion. As a result, possible religious differences may be neglected. Lastly, the study only focused on donors and further studies need to be conducted on non-donors to further understand donation behaviour. Practical implicationsThe findings from the study provide valuable insights to charities, government bodies and policy makers as it highlights the linkages between image of charitable organizations, attitudes towards charities and the motivation to donate of past donors. Additionally, religious bodies can also use the findings to formulate communication strategies to benefit charities as well as the broader community. Originality/valueThe study provides insights into the motivations of donors to donate to charities. More importantly, it also examines the influence of religious beliefs on donation behaviour, thus shedding insights on the opportunities for fundraising by charities.

show abstract

“…4 In contrast, a study of religious leaders identified some variations in individual's views of the acceptability of deceased donation. 97 However, little is known about the views and practices of hospital chaplains from different faith groups.…”

Section: Introductionmentioning

confidence: 99%

Increasing the acceptability and rates of organ donation among minority ethnic groups: a programme of observational and evaluative research on Donation, Transplantation and Ethnicity (DonaTE)

Morgan

Kenten

Deedat

et al. 2016

Programme Grants Appl Res

Self Cite

View full text Add to dashboard Cite

BackgroundBlack, Asian and minority ethnic (BAME) groups have a high need for organ transplantation but deceased donation is low. This restricts the availability of well-matched organs and results in relatively long waiting times for transplantation, with increased mortality risks.ObjectiveTo identify barriers to organ donor registration and family consent among the BAME population, and to develop and evaluate a training intervention to enhance communication with ethnic minority families and identify impacts on family consent.MethodsThree-phase programme comprising (1) community-based research involving two systematic reviews examining attitudes and barriers to organ donation and effective interventions followed by 22 focus groups with minority ethnic groups; (2) hospital-based research examining staff practices and influences on family consent through ethics discussion groups (EDGs) with staff, a study on intensive care units (ICUs) and interviews with bereaved ethnic minority families; and (3) development and evaluation of a training package to enhance cultural competence among ICU staff.SettingCommunity focus group study in eight London boroughs with high prevalence of ethnic minority populations. Hospital studies at five NHS hospital trusts (three in London and two in Midlands).Participants(1) Community studies: 228 focus group participants; (2) hospital studies: 35 nurses, 28 clinicians, 19 hospital chaplains, 25 members of local Organ Donation Committees, 17 bereaved family members; and (3) evaluation: 66 health professionals.Data sourcesFocus groups with community residents, systematic reviews, qualitative interviews and observation in ICUs, EDGs with ICU staff, bereaved family interviews and questionnaires for trial evaluation.Review methodsSystematic review and narrative synthesis.Results(1) Community studies: Organ Donor Register – different ethnic/faith and age groups were at varying points on the ‘pathway’ to organ donor registration, with large numbers lacking knowledge and remaining at a pre-contemplation stage. Key attitudinal barriers were uncertainties regarding religious permissibility, bodily concerns, lack of trust in health professionals and little priority given to registration, with the varying significance of these factors varying by ethnicity/faith and age. National campaigns focusing on ethnic minorities have had limited impact, whereas characteristics of effective educational interventions are being conducted in a familiar environment; addressing the groups’ particular concerns; delivery by trained members of the lay community; and providing immediate access to registration. Interventions are also required to target those at specific stages of the donation pathway. (2) Hospital studies: family consent to donation – many ICU staff, especially junior nurses, described a lack of confidence in communication and supporting ethnic minority families, often reflecting differences in emotional expression, faith and cultural beliefs, and language difficulties. The continuing high proportion of family donation discussions that take place without the collaboration of a specialist nurse for organ donation (SNOD) reflected consultants’ views of their own role in family consent to donation, a lack of trust in SNODs and uncertainties surrounding controlled donations after circulatory (or cardiac) death. Hospital chaplains differed in their involvement in ICUs, reflecting their availability/employment status, personal interests and the practices of ICU staff. (3) Evaluation: professional development package – a digital versatile disc-based training package was developed to promote confidence and skills in cross-cultural communication (available at:www.youtube.com/watch?v=ueaR6XYkeVM&feature=youtu.be). Initial evaluation produced positive feedback and significant affirmative attitudinal change but no significant difference in consent rate over the short follow-up period with requirements for longer-term evaluation.LimitationsParticipants in the focus group study were mainly first-generation migrants of manual socioeconomic groups. It was not permitted to identify non-consenting families for interview with data regarding the consent process were therefore limited to consenting families.ConclusionsThe research presents guidance for the effective targeting of donation campaigns focusing on minority ethnic groups and provides the first training package in cultural competence in the NHS.Future workGreater evaluation is required of community interventions in the UK to enhance knowledge of effective practice and analysis of the experiences of non-consenting ethnic minority families.FundingThe National Institute for Health Research Programme Grants for Applied Research programme.

show abstract

‘Opting-in or opting-out?’—The views of the UK's faith leaders in relation to organ donation

Cited by 31 publications

References 11 publications

Knowledge and Attitudes about Organ Donation among Medical Students in Egypt: A Questionnaire

Knowledge and Attitudes about Organ Donation among Medical Students in Egypt: A Questionnaire

Moderating role of religious beliefs on attitudes towards charities and motivation to donate

Increasing the acceptability and rates of organ donation among minority ethnic groups: a programme of observational and evaluative research on Donation, Transplantation and Ethnicity (DonaTE)

Contact Info

Product

Resources

About