Oral Health Care for Children With Developmental Disabilities

Liptak, Gregory S.; Murphy, Nancy; Adams, Richard N.; Burke, Robert; Friedman, Sandra; Houtrow, Amy J.; Kalichman, Miriam A.; Kuo, Dennis Z.; Levy, Susan E.; Norwood, Kenneth W.; Turchi, Renee M.; Wiley, Susan; Segura, Adriana; Boulter, Suzanne; Clark, Melinda; Gereige, Rani S.; Krol, David; Mouradian, Wendy E.; Quiñonez, Rocio B.; Ramos‐Gomez, Francisco; Slayton, Rebecca L.; Keels, Martha Ann

doi:10.1542/peds.2012-3650

Cited by 84 publications

(68 citation statements)

References 13 publications

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“…The problem is gaining increasing recognition among health care professionals as the advances in medicine make it more likely for the affected children to survive into adulthood. In this respect, our observations entirely support the implications of recent reviews on oral health in handicapped children [4,16]. …”

Section: Discussionsupporting

confidence: 88%

“…While it is recognized that patients with MPS have increased oral health needs [4,16], the degree to which these needs are met depends largely on socio-economic factors that differ across the countries. In this respect, it has recently been reported that the level of oral hygiene in patients with MPS in the UK was surprisingly similar to that in the general population [4].…”

Section: Introductionmentioning

confidence: 99%

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Oral Health Status of Patients with Lysosomal Storage Diseases in Poland

Drążewski

Grzymisławska

Korybalska

et al. 2017

IJERPH

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Patients with lysosomal storage diseases (LSDs) suffer from physical and mental disabilities, which together with poor access to professional care may lead to impaired oral health. This cross-sectional case-control study characterized the status of oral health in patients with LSDs in Poland. Thirty-six children and young adults with various forms of LSDs were examined. The data were compared with those from age- and sex-matched healthy controls. Exemplary cases were presented to highlight typical problems in oral care associated with LSDs. When possible, saliva was collected and analyzed for total protein, inflammatory mediators, and antioxidant status. Generally, patients with LSDs had significantly higher prevalence of caries, inferior gingival status, and inadequate oral hygiene. The severity of oral health impairment in mucopolysaccaridoses, the most common LSD in Poland, was similar to that seen in patients with mannosidoses or Pompe disease. Saliva could be collected only from few less handicapped patients. In MPS, it did not appear to differ significantly from the controls, but in patients with Pompe disease it contained lower concentrations of vascular endothelial growth factor (VEGF) and monocyte chemoattractant protein-1 (MCP-1), but higher levels of tumor necrosis factor receptors 1 and 2 (TNF-R1, TNF-R2) and myeloperoxidase (MPO). In conclusion, Polish patients with LSDs have an inadequate level of oral hygiene and substantially deteriorated oral health.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Oral Health Status of Patients with Lysosomal Storage Diseases in Poland

Drążewski

Grzymisławska

Korybalska

et al. 2017

IJERPH

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“…People with mild or moderate intellectual and developmental disabilities (IDDs) 12 are generally at an increased risk of dental disease due to co-morbidities, dietary practices, behavioural challenges, and the potential need for extra attention in oral hygiene maintenance (e.g., tooth brushing); though these individuals can be treated successfully in the general practice setting, ED visits are not necessarily preventable for them, and therefore they were excluded from analysis. 13,14 Given the above, if the discharge summary included ICD codes related to dental trauma, oral soft tissues or developmental disability, those cases were excluded from the analysis.…”

Section: Data Aggregated At the Region Level (14 Local Health Integramentioning

confidence: 99%

Trends in emergency department visits for non-traumatic dental conditions in Ontario from 2006 to 2014

Singhal

McLaren

Quiñonez

2017

Can J Public Health

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OBJECTIVE: In Canada, non-traumatic dental conditions (NTDCs) presenting in emergency departments (EDs) are dealt with by non-dental professionals who are generally not equipped to deal with such emergencies, resulting in an inefficient usage of heath care resources. This study aimed to assess the burden of ED visits for NTDCs in Ontario by observing trends from 2006 to 2014. METHODS:Aggregate data for Ontario were obtained from the Canadian Institute for Health Information's National Ambulatory Care Reporting System. Data were examined for the whole of Ontario and stratified by 14 Local Health Integration Networks. Descriptive analysis was conducted for both number of people and number of visits, stratified by sex and age groups (0-5, 6-18, 19-64, and 65+ years). Numbers were also examined by neighbourhood stratifications, including urban/rural, income quintile and immigrant tercile. CONCLUSION:The upward and inequitable trends of utilization of EDs for NTDCs reinforce recognition of the important need for both universal and targeted approaches for primary prevention of dental conditions. To enhance equitable access to dental care, policy advocacy is required for publicly funding essential and emergency dental services for all.KEY WORDS: Dental care; emergency service; hospital; health status disparities La traduction du résumé se trouve à la fin de l'article.

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“…Some CSHCN are at increased risk for dental disease through multiple mechanisms—exposure to medications high in sugar, the need for assistance in daily oral infection control (brushing/flossing), reduced ability to clear food from the mouth, reduced salivary function from the disorder or induced by medication, dietary preference for carbohydrates, the need for pureed food or a liquid diet, and oral care aversion (Norwood and Slayton 2013). Oral care aversion may motivate some caregivers to seek dental care for urgent needs, but forego routine preventive dental care.…”

Section: Discussionmentioning

confidence: 99%

“…Policies to prevent dental problems in CASD/DD/MHC would not only help the children and their families, but would also help society by keeping the costs of needed health care lower, and keeping the burden on employment lower. Poor oral health has been associated with poor quality of life, and systemic illness (Norwood, and Slayton 2013). There is a significant need for all children to have their preventive dental care needs met and for caregivers to recognize and act upon those needs.…”

Section: Discussionmentioning

confidence: 99%

Caregiver Burdens and Preventive Dental Care for Children with Autism Spectrum Disorder, Developmental Disability and/or Mental Health Conditions: National Survey of CSHCN, 2009–2010

Wiener

Vohra

Sambamoorthi

et al. 2016

Matern Child Health J

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Objective The purpose of this study is to examine the burdens of caregivers on one perception of the need and receipt of preventive dental care for a subset of children with special health care needs—children with Autism Spectrum disorder, developmental disability and/or mental health conditions (CASD/DD/MHC). Methods The authors used the 2009–2010 National Survey of CSHCN. The survey included questions addressing preventive dental care and caregivers’ financial, employment, and time-related burdens. The associations of these burdens on perceptions and receipt of preventive dental care use were analyzed with bivariate Chi square analyses and multinomial logistic regressions for CASD/DD/MHC (N=16,323). Results Overall, 16.3% of CASD/DD/MHC had an unmet preventive dental care need. There were 40.0% of caregivers who reported financial burden, 20.3% who reported employment burden, and 10.8% who reported time burden. A higher percentage of caregivers with financial burden, employment burden, and time-related burden reported that their CASD/DD/MHC did not receive needed preventive dental care (14.1 %, 16.5%, 17.7% respectively) compared to caregivers without financial, employment, or time burdens (9.0%, 9.6%, 11.0% respectively). Caregivers with financial burden (adjusted multinomial odds ratio, 1.38 [95%CI: 1.02, 1.86]) and employment burden (adjusted multinomial odds ratio, 1.45 [95%CI: 1.02, 2.06]) were more likely to report that their child did not receive preventive dental care despite perceived need compared to caregivers without financial or employment burdens. Conclusions for practice Unmet needs for preventive dental care were associated with employment and financial burdens of the caregivers of CASD/DD/MHC.

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Oral Health Care for Children With Developmental Disabilities

Cited by 84 publications

References 13 publications

Oral Health Status of Patients with Lysosomal Storage Diseases in Poland

Oral Health Status of Patients with Lysosomal Storage Diseases in Poland

Trends in emergency department visits for non-traumatic dental conditions in Ontario from 2006 to 2014

Caregiver Burdens and Preventive Dental Care for Children with Autism Spectrum Disorder, Developmental Disability and/or Mental Health Conditions: National Survey of CSHCN, 2009–2010

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