Oral Health–Related Quality of Life of Children Born With Orofacial Clefts in Ethiopia and Their Parents

Abebe, Mekonen Eshete; Deressa, Wakgari; Oladugba, Victoria; Owais, Arwa I.; Hailu, Tsegaye; Abate, Fikre; Hailu, Abiye; Demissie, Yohannes; Degu, Shiferaw; Alemayehu, Bezuwork; Gessesse, Mulualem; Deribew, Milliard; Mossey, Peter; Butali, Azeez

doi:10.1177/1055665618760619

Cited by 12 publications

(22 citation statements)

References 11 publications

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“…We did not find differences between parent and child’s QOL scores and our findings are similar to Abebe et al (2018), who found no significant difference between parent and child questionnaires; however, our results differ from Barr et al (2007) who found significant differences between parent and child reports for swallowing problems, with children perceiving a greater degree of impact. Our largest nonsignificant mean differences were for the subscale situational difficulty.…”

Section: Discussionsupporting

confidence: 70%

Comparing Quality of Life and Perceptual Speech Ratings in Children With Cleft Palate

Pedersen

Goodie

Braden

et al. 2020

The Cleft Palate Craniofacial Journal

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Objective: To delineate the relationship between patient and parent-reported quality of life (QOL) ratings and perceptual characteristics of speech assigned by a speech-language pathologist (SLP) in children with repaired cleft palate. Design: Prospective. Setting: Academic Children’s Hospital. Participants: This population-based sample included children, aged 3 to 18 with a history of repaired cleft palate, and their parents. Intervention: Participants completed the Velopharyngeal Insufficiency Effects on Life Outcomes Questionnaire (VELO). Children’s speech was judged perceptually by an expert SLP using the Pittsburgh Weighted Speech Scale (PWSS). Main Outcome Measure(s): Velopharyngeal Insufficiency Effects on Life Outcomes questionnaire assessed participant and parent perceptions of impact of velopharyngeal function on QOL. Pittsburgh Weighted Speech Scale assessed nasal emissions, facial grimacing, nasality, quality of phonation, and articulation. Results: Enrollment included 48 participant parent dyads. Overall, participants reported high QOL scores within the 95% CI with children reporting slightly better yet not significantly different QOL (86.27 ± 8.96) compared to their parents (81.81 ± 15.2). Children received an average score of 1.38 ± 1.96 on the PWSS corresponding to borderline velopharyngeal competence. A significant moderate negative correlation was found between PWSS total score and parent VELO total score (r = −0.51103, P = .0002). Mild–moderate significant negative correlations were measured between PWSS total and the 5 subscales of the VELO. No significant correlations were measured between PWSS and child VELO total responses or between total scores and subscales. Conclusions: Results suggest that as perceptual analysis of speech improves, overall QOL improves moderately.

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Section: Discussionsupporting

confidence: 70%

Comparing Quality of Life and Perceptual Speech Ratings in Children With Cleft Palate

Pedersen

Goodie

Braden

et al. 2020

The Cleft Palate Craniofacial Journal

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“…Also Reissmann et al found that parents' perception of their children OHRQoL is not accurate enough to detect problems in children age ranged between 7 and 17 years [27]. In contrast, other studies reported no differences between children and their caregivers' perceptions in any scale and the overall COHIP scores [20,22,28,29].…”

Section: Discussionmentioning

confidence: 98%

“…Bos et al [19] found that Parents' reports on their children's OHRQoL were not in agreement with reports of cleft lip and/or palate patients. In comparison, many previous studies reported no difference between children and caregivers' perceptions of their child's OHRQoL in any subscales and overall scores of COHIP [20][21][22]. Evaluation of OHRQoL response agreement between children and their caregivers' can also be helpful as healthcare providers seek methods of estimating the OHRQoL of children who are either mentally or physically unable to complete a questionnaire [22].…”

Section: Introductionmentioning

confidence: 99%

A comparative assessment of oral health-related quality of life of children born with orofacial clefts in Sudan and their caregivers'

2021

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Background Cleft lip and palate(CL/P)is the most common orofacial malformation affecting one in every 700–1000 newborns worldwide. The aim of the study wasto evaluate the impact of CL/P on health- related quality of life (OHRQoL) in Sudanese children and the level of concordance between caregivers' and children and to investigate correlates of the caregivers' perceptions of OHRQoL with that of their children. Methods The sample consisted of 75 children with clefts (age range 8–16 years), (46 male, 29 female) and their caregivers' attending University of Science and Technology Dental Teaching Hospital. The children and their caregivers' were interviewed separately. The interview consisted of 38 questions adopted from the COHIP (Arabic version).The level of concordance between caregivers' and children was compared using paired t-tests and intraclass correlations. Predictive validity was assessed using Pearson correlations and linear regression analyses. Results The translated COHIP and its subscales, had Cronbach' alphas score ranged between (0.65 and 0.75) for caregivers' and children with cleft. COHIP scores for children and caregivers' were (89.41 ± 19.97) and (94.34 ± 19.52) respectively. Caregivers' and children differed significantly in the overall COHIP and oral symptoms subscale. There were high correlations between caregivers' and children ranged from (0.63 to 0.87). The correlation between all subscales was statistically significant (p = 0.05). Conclusions Caregivers' had higher perceptions of oral symptoms and overall COHIP compared to their children using the Arabic version of the COHIP. Caregiver's reports have to be considered complementary to the reports of their children themselves.

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“…This is in keeping with the findings of authors who show that surgical closure of oral clefts often restores oral health and function to acceptable levels. [11][12][13] In contrast there was a significant difference in the social domain of the scale between the cleft and control groups. This finding is interesting as it suggests that the restoration of oral health and oral function alone is not sufficient to overcome the social and emotional challenges of cleft lip and palate.…”

Section: Discussionmentioning

confidence: 75%

“…11 There have been several attempts to use parental questionnaires to examine the OHRQoL of children with cleft lip and palate, both before and after the surgery. [12][13][14][15] However, there are no data on the impact that PNAM can have on the QHRQoL. There has also been no attempt made to understand the impact of PNAM on the OHRQoL of children with cleft lip and palate.…”

Section: Introductionmentioning

confidence: 99%

Impact of Presurgical Nasoalveolar Molding on the Parental Perceptions of Oral Health-related Quality of Life of Children with Cleft Lip and Palate

AlAnazi

AlHayyan

Pani

2020

The Journal of Contemporary Dental Practice

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Aim:The study aimed to examine the oral health-related quality of life (OHRQoL) of children with cleft lip and palate who were treated with presurgical nasoalveolar molding (PNAM) and to compare the results to age-and gender-matched controls without cleft lip and palate. Materials and methods: Parents of 51 children with cleft lip and palate who were treated with PNAM were administered a validated Arabic version of the short-form child oral health impact profile (COHIP-SF) and were asked to rate their experience with PNAM. The children with treated cleft lip and palate (study group) were age-and gender-matched to children with no cleft lip and palate (control group). The differences in COHIP-SF domains were compared between groups using the Mann-Whitney U test. Results: The children in the test group had significantly higher COHIP-SF scores than in the test group (p < 0.001). However, there were no significant differences in the oral health (p = 0.532) or the oral function (0.232) domains. There were, however, significant differences in the socioemotional domain (p < 0.001). Most of the parents (86%) of children with cleft lip or palate felt that they would recommend PNAM to other parents. Conclusion: While there are no differences in the oral health and functional domains of OHRQoL, children with cleft lip and palate treated with PNAM have significantly lower scores in the socioemotional domain of OHRQoL when compared to age-and gender-matched controls. Clinical significance: Presurgical nasoalveolar molding does not have any negative impact on the OHRQoL of children with cleft lip and palate. Keywords: Cleft lip and palate, Oral health-related quality of life, Presurgical nasoalveolar molding.

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Oral Health–Related Quality of Life of Children Born With Orofacial Clefts in Ethiopia and Their Parents

Abstract: The Amharic translation of the COHIP appears appropriate for use with families in Ethiopia. Both parents and patients reported OH-RQoL at similar levels as other international populations.

Cited by 12 publications

References 11 publications

Comparing Quality of Life and Perceptual Speech Ratings in Children With Cleft Palate

Comparing Quality of Life and Perceptual Speech Ratings in Children With Cleft Palate

A comparative assessment of oral health-related quality of life of children born with orofacial clefts in Sudan and their caregivers'

Impact of Presurgical Nasoalveolar Molding on the Parental Perceptions of Oral Health-related Quality of Life of Children with Cleft Lip and Palate

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