Organising health care services for persons with an intellectual disability

Balogh, Robert; Ouellette‐Kuntz, Hélène; Bourne, Laurie; Lunsky, Yona; Colantonio, Angela

doi:10.1002/14651858.cd007492

Cited by 53 publications

(44 citation statements)

References 95 publications

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“…However, and although so me agencies have actually implemented PCC over decades in the US, Australia and Europe, the claims of adherence to the PCC goals are larger than its actual application 43,44 .…”

Section: Self-reported Experiences and Satisfaction In Persons With Smentioning

confidence: 99%

The Person-Centered Health model in Intellectual Developmental Disorders/Intellectual Disability

Bertelli¹,

Bianco²,

Merli³

et al. 2015

Eur. J. Psychiat.

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ITALY AUSTRALIAABSTRACT -Background and Objectives: This paper analyses the different aspects related to the conceptualization and assessment of Intellectual Developmental Disorders / Intellectual Disability (IDD/ID) following the Person-centered Integrative Diagnostic (PID) model of the International Network for Person-centered Medicine, with a main emphasis on the health status and health self-perception.Methods: Conceptual paper, including expert opinions based on literature review.Results: The conceptualization of IDD/ID should shift the traditional over-reliance on the intelligence (IQ) score in favour of the daily life expression of specific cognitive functions and the determination of the levels of severity of intellectual functioning, that is currently based on the person's IQ score, should be reached through a system that is predicated on the person's satisfaction attainment towards life. The assessment of cognition should be aimed at identifying those dysfunctions that have the highest impact on individual behaviour, skills, adaptation, autonomy, and quality of life across the life span, highlighting personal cognitive strengths and weaknesses that can be worthwhile for the planning of effective interventions.Conclusions: Authors conclude that the application of the PID model to IDD/ID represents a prototypical example of how this approach can be useful for understanding complex constructs in health care. An overview of the main factors related to the implementation of the person-centered care model by health systems and services is also provided.

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Section: Self-reported Experiences and Satisfaction In Persons With Smentioning

confidence: 99%

The Person-Centered Health model in Intellectual Developmental Disorders/Intellectual Disability

Bertelli¹,

Bianco²,

Merli³

et al. 2015

Eur. J. Psychiat.

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show abstract

“…Amongst people with ID suffering mental illness, those with schizophrenia have been shown to use psychiatric services more than those with any other diagnosis (Morgan et al 2008). Despite this, there has been little research to inform the most effective models of community care (Balogh et al 2008;Hemmings 2008). A consultation exercise involving a large multi-disciplinary group identified the "need for a focused approach on the service user and their illness" and "working within the wider context of the service user" as essential components of services managing people with ID and psychosis (Hemmings et al 2009).…”

Section: Service Provisionmentioning

confidence: 99%

Schizophrenia spectrum disorders

Sheehan¹,

Fodor-Wynne²,

Hassiotis³

2015

Psychiatric and Behavioral Disorders in Intellectual and Developmental Disabilities

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“…Such studies could be focused on individuals, caregivers, and even organizations. A Cochrane Review on health interventions and IDD only found studies focused on mental health, none of which came from Canada (Balogh, Ouellette-Kuntz, Bourne, Lunsky, & Colantonio, 2008). Given our geographical challenges, it is important to develop research networks to allow for multisite studies.…”

Section: Summary and Next Stepsmentioning

confidence: 99%