2017
DOI: 10.1089/bio.2016.0091
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Organization of BBMRI.pl: The Polish Biobanking Network

Abstract: In Poland storage of human biological samples takes place at most universities and scientific institutions conducting research projects in the field of biomedicine. The First International Biobanking Conference organized by the Ministry of Science and Higher Education in 2014 shed a light on the situation of Polish biobanking infrastructures. The country has around 40 large biorepositories, which store unique biological material such as whole brains, muscle fibers from patients with rare diseases, as well as t… Show more

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Cited by 29 publications
(26 citation statements)
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“…A formal consent was issued by the Bioethical Committee of the Institute of the Polish Mother’s Memorial Hospital in Lodz (Approval number, 98/2015). As a control group we enrolled to the study 2934 DNA samples from POPULOUS collection of the Biobank Lab, Department of Molecular Biophysics, University of Lodz [14, 42, 43]. These samples were derived from unrelated women, who had declared themselves as a healthy, with no evidence of current endometriosis disease stage.…”
Section: Methodsmentioning
confidence: 99%
“…A formal consent was issued by the Bioethical Committee of the Institute of the Polish Mother’s Memorial Hospital in Lodz (Approval number, 98/2015). As a control group we enrolled to the study 2934 DNA samples from POPULOUS collection of the Biobank Lab, Department of Molecular Biophysics, University of Lodz [14, 42, 43]. These samples were derived from unrelated women, who had declared themselves as a healthy, with no evidence of current endometriosis disease stage.…”
Section: Methodsmentioning
confidence: 99%
“…3) were analyzed in six Polish biobanks and biorepositories from the BBMRI.pl Con-sortium. 4 During the preliminary audit of each biobank among the analyzed 13 main areas, 27 deviations were identified (Table 1). For each biobank an audit report with recommendations for the QMS implementation or improvement has been prepared.…”
Section: Discussionmentioning
confidence: 99%
“…This will provide easier access to patient consent and generate a larger supply of samples in the future and more understanding toward the development and use of modern therapies resulting from such scientific work. 4 At present, there is no legal obligation to launch International Organization for Standardization (ISO)-related standards in EU biobanks (i.e. : ISO 9001, ISO 27001, ISO 14001), 5 so quality requirements need to be self-imposed by an independent organization such as BBMRI-ERIC and other entities.…”
Section: Introductionmentioning
confidence: 99%
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“…Pessimistic healthcare providers usually use persuasive languages affecting their decisions without the full disclosure of detail enough information on diagnosis, physical examination, treatment risk, bene ts, and side effects, quali cation and professional achievement of treating physician, con dentiality, alternative opinion, the surgical procedure risks, the right to access medical record on request before asking patient's consent [31]. Healthcare services quality and the process should not be discriminatory and fair services should be provided equally irrespective of the patient's background [32].…”
Section: Patient's Concernmentioning
confidence: 99%