Out-of-hours primary care end of life prescribing: a data linkage study

Brettell, Rachel; Fisher, Rebecca; Hunt, H. Allan; Garland, Sophie; Lasserson, Daniel; Hayward, Gail

doi:10.1136/bmjspcare-2019-001784

Cited by 2 publications

(2 citation statements)

References 7 publications

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“…Research into after-hours care could be facilitated by projects linking data from multiple sources such as hospital admissions and general practitioners’ visits. Data linkage in this field has the potential to provide valuable information about which services are accessed by these patients and the quality of care provided to them (Brettell et al, 2019; McDermott et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

“…H. Khalil et al which services are accessed by these patients and the quality of care provided to them (Brettell et al, 2019;McDermott et al, 2019). Some studies had a multifaceted approach including both health care professionals and patients and overlapping in their areas of focus, particularly longitudinal studies and studies reporting the secondary data analysis.…”

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Mapping palliative and end of care research in Australia (2000–2018)

2020

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Objective The objective of this study is to map the existent research undertaken in Australia into broad thematic areas and identify the characteristics of the studies and areas of future research in the literature. Methods A scoping review methodology was employed to map the current areas of research undertaken in Australia since January 2000 until the end of December 2018 according to years of publications, types of studies, populations studied, research themes, and areas of focus. Results Our review identified 1,405 Australian palliative care research publications between January 2000 and December 2018. Nearly 40% of the studies were quantitative (39%) and a third were qualitative studies (31%). The remainder of the studies were reviews, mixed methods, quality improvement projects, and others. One-third (30%) of the research was done with carers' participants followed by nurses (22%) and doctors and physicians (18%). The most frequently reported diagnosis in the studies was cancer with 42% of the publication total. The most frequently explored theme was physical symptoms (such as pain, breathlessness, nausea, delirium, and dyspnea) with a total of 16% of all articles followed by communication (15%). There was a large gap to the next most frequently explored theme with service delivery (9%) and coordination of care (8%). Assessment of patients (7%), end-of-life decision-making (6%), and rural/regional (6%) all produced a similar number of publications. Very few studies addressed topics such as quality of life, E-Health, after-hours care, spirituality, and health economics. Moreover, there were only 15 (1%) studies focused on the last days of life. Significance of the results The current review presented a comprehensive search of the literature across almost two decades in Australia in the palliative care setting. It has covered a breadth of research topics and highlighted urgent areas for further research.

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Mapping palliative and end of care research in Australia (2000–2018)

2020

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Co-designing Community Out-of-hours Palliative Care Services: A systematic literature search and review

2022

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Background: In order to provide responsive, individualised and personalised care, there is now greater engagement with patients, families and carers in designing health services. Out-of-hours care is an essential component of community palliative care. However, little is known about how patients, families and carers have been involved in the planning and design of these services. Aim: To systematically search and review the research literature that reports on how out-of-hours palliative care services are provided in the community and to identify the extent to which the principles of co-design have been used to inform the planning and design of these services. Design: Systematic literature search and review. Data sources: A systematic search for published research papers from seven databases was conducted in MEDLINE, PsycINFO, Embase, Emcare, PubMed, CINAHL and Web of Science, from January 2010 and December 2021. Reference list searches of included papers were undertaken to source additional relevant literature. A manifest content analysis was used to analyse the data. Results: A total of 77 papers were included. The majority of out-of-hours services in the community were provided by primary care services. The review found little evidence that patients, families or carers were involved in the planning or development of out-of-hours services. Conclusion: Incorporating patients, families and carers priorities and preferences in the planning and designing of out-of-hours palliative care service is needed for service providers to deliver care that is more patient-centred. Adopting the principles of co-design may improve how out-of-hours care scan be delivered.

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Out-of-hours primary care end of life prescribing: a data linkage study

Cited by 2 publications

References 7 publications

Mapping palliative and end of care research in Australia (2000–2018)

Mapping palliative and end of care research in Australia (2000–2018)

Co-designing Community Out-of-hours Palliative Care Services: A systematic literature search and review

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