Outcome and attitudes toward home tracheostomy ventilation of consecutive patients: A 10-year experience

Marchese, Santino; Coco, Daniele Lo; Coco, Albino Lo

doi:10.1016/j.rmed.2007.10.006

Cited by 80 publications

(61 citation statements)

References 27 publications

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“…Our own patients reported diminished participation in social activities at least partially due to dependency on and appearance of tracheostomy. Several complications are related to tracheostomy tubes, such as obstruction, chronic aspiration, dysphagia, pulmonary infections, fistula formation or bleeding ulcerations, which all can have devastating or even life-threatening consequences (9)(10)(11)44). Therefore, decannulation after FT improves quality of life and prevents for potentially lethal complications.…”

Section: Discussionmentioning

confidence: 99%

“…Patients with severe facial injuries suffer from leakages of the oral cavity, trismus and absence of masseter muscles and thus are often unable to adequately ingest solid foods, liquids or even their medications (4). This ultimately leads to insertion of feeding tubes or gastrostomy, provoking significant discomfort, potential for malnutrition, infection, bleeding and possibly death (6)(7)(8)(9)(10). Even more hazardous to health are impairments of the upper airway.…”

Section: Introductionmentioning

confidence: 99%

“…In severely disfigured patients, absence of nasal passage, narrowed naso-and velopharyngeal spaces or inadequate mouth opening hinder adequate respiration and tracheostomy becomes necessary. Tracheostomy involves complications such as dysphagia and fistula formation, which are associated with high risk of mortality (9,11,12). FT restores masticatory function, the oral cavity and the upper airway in a single stage procedure (13).…”

Section: Introductionmentioning

confidence: 99%

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Functional Outcomes of Face Transplantation

Fischer

Kueckelhaus

Pauzenberger

et al. 2015

American Journal of Transplantation

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In this study we provide a compilation of functional impairments before and improvements after face transplantation (FT) of five FT recipients of our institution and all FTs reported in current literature. Functional outcome included the ability to smell, breath, eat, speak, grimace and facial sensation. Before FT, all our patients revealed compromised ability to breath, eat, speak, grimace and experience facial sensation. The ability to smell was compromised in two of our five patients. Two patients were dependent on tracheostomy and one on gastrostomy tubes. After FT, all abilities were significantly improved and all patients were independent from artificial air airways and feeding tubes. Including data given in current literature about the other 24 FT recipients in the world, the abilities to smell, eat and feel were enhanced in 100% of cases, while the abilities of breathing, speaking and facial expressions were ameliorated in 93%, 71% and 76% of cases, respectively. All patients that required gastrostomy and 91% of patients depending on tracheostomy were decannulated after FT. Unfortunately, outcomes remain unreported in all other cases and therefore we are unable to comment on improvements.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Functional Outcomes of Face Transplantation

Fischer

Kueckelhaus

Pauzenberger

et al. 2015

American Journal of Transplantation

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“…No entanto, há poucos estudos que investigam a taxa de sobrevivência, complicações do ventilador e consequências fisiológicas de cuidados associados em casa 16 .…”

Section: Discussionunclassified

Intervenção da Fisioterapia na Miopatia Nemalínica − Relato de Caso

Furlaneto

Valenciano

Zechim

et al. 2014

RNC

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Objective. To report a case of a patient with Nemaline Myopathy (NM), focusing on the main complications and the proceeding of physiotherapy. Method. This study focused on the clinical evaluation and major complications, assessment, treatment and the results of physiotherapy. The patient´s motor evaluation was conducted according to the Motor Function Measure (MFM) scale and the version of the International Classification of Functioning, Disability and Health for children and youth (ICF-CY). The maximal inspiratory pressure (PIMÁX) was assessed using a digital manovacuometer. Physiotherapeutic interventions were made daily, during 180 days. Results. The results of the MFM scores were: D1-17, 9%; D2-66, 6%; and D3-76, 1%; in total 48.9%. In ICF-CY is observedlimitationsinthepatient's postural transfers,nodifficulty maintainingbody positionexceptstanding, moderate walking difficulty and severe difficulty in moving an object with the lower limbs. At the end of the hospitalization period PIMÁX test was conducted, revealing a 36cmH20 inspiratory muscle strength. Conclusion. This report provides an understanding of the clinical evolution and prognosis of NM compared with the literature. The physical therapy was essential to enable the return of functional and recreational activities and to assist the child in respiratory dysfunctions.

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“…Some patients may eventually reach a "locked in" state in which they cannot communicate at all, because there is also total paralysis of the extraocular muscles. When connected to tracheostomy tubes patients may survive for many years, with respiratory tract infections the most frequent cause of death (Bradley et al, 2002;Hayashi & Oppenheimer, 2003;Lo Coco et al, 2007;Marchese et al, 2008;Vianello et al, 2011). Median s u r v i v a l t i m e u s u a l l y r a n g e s f r o m 2 t o 4 y e ars.…”

Section: Invasive Mechanical Ventilationmentioning

confidence: 99%