Overcoming Families' Fears and Concerns in the Donation Discussion

Verble, Margaret; Worth, Judy

doi:10.1177/152692480001000305

Cited by 13 publications

(8 citation statements)

References 7 publications

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“…These concerns are valid and important; however, in light of research showing that recipients actually overestimate donors' surgical pain and recovery time compared to donors' own assessments, 30 transplant centers may need to provide recipients with objective information about donors' risks of mortality, postoperative complications, and kidney failure 17,31 and to sensitively discuss these fears with renal patients who present for transplantation. 32 Because recipients also can overlook the advantages of living donation for themselves because of their concerns about harming donors, it also may be important to outline the recipient's health risks if he or she remains on dialysis and waits for a deceased donor kidney. Finally, emphasizing how laparoscopic surgery reduces the recovery time and invasiveness of the surgery for donors can help reduce recipients' concerns about accepting a living donor kidney.…”

Section: Discussionmentioning

confidence: 99%

Living Donation Decision Making: Recipients' Concerns and Educational Needs

et al. 2006

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Kidney recipients reported that they might not pursue living donation because they felt guilty and indebted to the donor, did not want to harm or inconvenience the donor, did not want to accept a kidney that a family member might need later, and did not want to disappoint the donor if the kidney failed. Recipients were generally unaware that donors could personally benefit from donating and would rather wait for donor volunteers than ask anyone directly. Both donors and recipients thought that training on how to make the donation request and education about living donors' motivations for donation and transplant experience could help more renal patients pursue living donation.

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Section: Discussionmentioning

confidence: 99%

Living Donation Decision Making: Recipients' Concerns and Educational Needs

et al. 2006

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“…Compared to other countries, the Netherlands has no experience with the standard availability of transplant coordinators for collaborative requesting. In Spain, intensivists are also transplant coordinators [14], in the USA and UK organ-procurement staff is involved in the organ-donation request [15,33,34]. The strength of our approach is a special training in combination with support for the families from the moment of admittance to the intensive care unit.…”

Section: Discussionmentioning

confidence: 99%

Appointing ‘trained donation practitioners’ results in a higher family consent rate in the Netherlands: a multicenter study

Jansen¹,

Leiden²,

Haase‐Kromwijk³

et al. 2011

Transplant International

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Summary The consent process for organ and tissue donation is complex, both for families and professionals. To help professionals in broaching this subject we performed a multicenter study. We compared family consent to donation in three hospitals between December 2007 and December 2009. In the intervention hospital, trained donation practitioners (TDP) guided 66 families throughout the time in the ICU until a decision regarding donation had been reached. In the first control hospital, without any family guidance or training, 107 families were approached. In the second control hospital ‘hostesses’, who were not trained in donation questions, supported 99 families during admittance. A total of 272 families were requested to donate. We primarily compared consent rates, but also asked families about their experiences through a questionnaire. Family consent rate was significantly higher in the intervention hospital: 57.6% (38/66), than in the control hospitals: 34.6% (37/107) and 39.4% (39/99). The 69% response rate to the questionnaire –∼5 months after death – showed no confounding variables that could have influenced the consent rate. Appointing TDPs in the intervention hospital to guide families during admittance and the donation decision‐making process, results in higher family consent rates.

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“…The North American Association of Transplant Coordinators offers a voluntary introductory course as preparation for this examination. Training in communication skills for donation coordinators appears to be limited to conversational strategy workshops, most of which were conducted between 1980 and 2000, 62 and to networking arrangements between OPOs. Hospital nursing and medical staff members generally are trained by OPO coordinators through in-service programs about hospital protocols and the request and donation processes.…”

Section: Need For Training Of Professional Staffmentioning

confidence: 99%

Providing Support to Families considering the Option of Organ Donation: An Innovative Training Method

2006

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Families must make decisions about organ donation for a loved one during intensely emotional circumstances in the hospital, where support from others is crucial to their coping. Research about families' experiences during the decision-making process regarding donating their loved ones' organs has shown that quality of hospital care and receiving psychosocial support are important factors influencing their decision. Typically, a donation coordinator from the local organ procurement organization approaches the family about the option of donation, whereas the role of medical and nursing staff is to convey diagnostic and prognostic information to the family. Currently, no requirement is in place for training of professional staff in communication skills for approaching and interacting with families about organ donation. This article discusses a simulated training method in empathic communication used for supporting families who are approached about organ donation. This innovative method can be adapted to and should be tested with professional audiences.

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Overcoming Families' Fears and Concerns in the Donation Discussion

Cited by 13 publications

References 7 publications

Living Donation Decision Making: Recipients' Concerns and Educational Needs

Living Donation Decision Making: Recipients' Concerns and Educational Needs

Appointing ‘trained donation practitioners’ results in a higher family consent rate in the Netherlands: a multicenter study

Providing Support to Families considering the Option of Organ Donation: An Innovative Training Method

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