P-198 Nurse-led care for non-complex dying: a collaboration between hospice and acute hospital

Abstract

Often excluded from discussion of care regarding a parent for whom they were main carer or involved in caring. Not always given the opportunity to talk about the impact of supporting and living with a dying parent or relative.Children and young people shared heartfelt personal experiences which supported our concerns regarding the following:Young carers described the challenges accessing support, spoke candidly about the restrictions and barriers they faced, and talked about the need to have some time away, to work out their feelings and wanting a safe space. What we did A young persons' advisory group was formed and led on the development and design of 'Our Space'.Collaboration with the local community to fundraise for the build of 'Our Space' in the hospice's gardens.Opening of a dedicated resource for children and young people within an adult hospice ensuring their voices, views hopes and aspirations are at the heart of the care and support we provide.Development of peer support groups.