P.28 Percutaneous endoscopic gastrostomy inpatients with amyotrophic lateral sclerosis

Finocchiaro, E.; Point, M.C. Da; Chid, A.; Rivetti, M; Onorati, Paolo; Rovera, G.M.

doi:10.1016/s0261-5614(98)80184-2

Cited by 9 publications

(2 citation statements)

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“…However, both groups showed longer survival when compared to patients who refused PEG placement [28]. Two publications have reported a longer post-PEG survival in patients with FVC of 65-70% of predicted value compared to FVC of 50-65% [47,56]. Death within 30 days following PEG introduction has also been reported to occur more commonly in patients with a decreased predicted volume of FVC (< 50%) and decreased serum chloride [30].…”

Section: Effect Of Peg On Weight and Survivalmentioning

confidence: 99%

“…Determinants of a poor late outcome of PEG include an initial weight loss of over 10%, a decreased predicted value of FVC (< 50-70%), BMI (< 18kg/m 2 ), long-lasting swallowing difficulties prior to the start of PEG, older age, a low bulbar score of ALSFRS-R (≤ 5), and concomitant neurobehavioural dysfunction [19,28,29,30,42,43,47,54,[56][57][58][59]. Studies on the effect of gender have proved inconclusive [29,42,60].…”

Section: Effect Of Peg On Weight and Survivalmentioning

confidence: 99%

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Gastrostomy and mechanical ventilation in amyotrophic lateral sclerosis: how best to support the decision-making process?

Barć

Kuźma‐Kozakiewicz

2020

Neurol Neurochir Pol.

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The unfavourable outcome of amyotrophic lateral sclerosis (ALS) confronts patients with challenging decisions regarding life-sustaining measures. The decision-making process is usually triggered by medical consultations and patient-dependent factors. This may largely depend on the physician's depth of knowledge and professional experience. This paper presents an overview of the life-sustaining methods used in ALS and their effects on disease progression, survival and quality of life of patients and their caregivers. It is intended to aid physicians in their discussions with patients. We interrogate all the positive and negative facets of life-sustaining measures that may allow for optimisation of the decision-making process and care provision.

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