P299 Comparative evaluation of outcomes in adolescents with IBD on transfer from paediatric to adult health care services: A case for structured transition

Sebastian, Shaji; Cole, R.A.; Houston, Y.; Kumar, Praveen; Ashton, K; Ashok, D; Razack, Abdul

doi:10.1016/s1873-9946(12)60319-5

Cited by 1 publication

(1 citation statement)

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“…However, research in other chronic diseases, such as congenital heart disease (22), diabetes (23), and solid organ transplant (24), has examined the following outcomes: patient attendance at adult care appointments, research‐informed health outcomes, and treatment adherence. In IBD, a variety of outcome measures are currently being examined: number of increases or changes in Crohn or colitis therapy (25), number of surgeries and hospitalizations within a 3‐month to 2‐year period (10,26), appointment attendance rates (27), retention in adult care at 1‐year posttransfer (26), and health care costs (25). Much of the early work in examining clinical outcomes post‐transfer is being spearheaded by the UK Transit Study, with preliminary results currently being presented as posters and abstracts at research conferences.…”

Section: Discussionmentioning

confidence: 99%

Improving IBD Transition, Self‐management, and Disease Outcomes With an In‐clinic Transition Coordinator

Gray

Holbrook

Dykes

et al. 2019

J. pediatr. gastroenterol. nutr.

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Objectives: Deficits in the preparation of patients with inflammatory bowel disease (IBD) who are transitioning to adult care are known yet studies presenting outcome data of transition interventions in IBD are lacking. We present data evaluating the impact of a transition coordinator on behavioral and clinical transition outcomes. Methods: A retrospective chart review identified 135 patients who had met with our transition coordinator and completed the Transition Readiness Assessment Questionnaire before, and 1 year after, the intervention. Changes in transition readiness, self-management skill acquisition, and clinical outcomes (eg, number of patients transferred vs “bounced back” to pediatrics, percentage of patients over age 21, changes in disease remission) were examined and compared with patients who received no intervention. Results: Intervention participants demonstrated a significant increase in transition readiness, F(1, 134) = 24.34, P < 0.001, and self-management skill acquisition, F(1, 134) = 5.61, P < 0.05. The percentage of patients in remission significantly increased from pre- to post-intervention, χ2(134) = 9.03, P < 0.01. There were no significant changes in the comparison population (Ps > 0.05). Following implementation of our programming, the percentage of patients over age 21 decreased by 33.07%. Conclusions: A 1-time transition coordinator-led intervention improved adolescent transition readiness and acquisition of self-management skills. The proportion of young adult patients retained in pediatric care was reduced. Benefits of hiring a transition coordinator are discussed.

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