P3‐360: Understanding Dementia Among the Bangladeshi Community in England

Hossain, Muhammad Zakir; Dewey, Ann; Hakak, Yohai; Jutlla, Karan

doi:10.1016/j.jalz.2014.05.1454

Cited by 4 publications

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“…Unlike previous studies conducted among South Asian communities, a striking theme has emerged from research regarding stigma among the Bangladeshi community in the UK. 8,9,15,16,26 There was no evidence for stigma, which was consistent with a study on attitudes in an African American community in the USA, which found no stigma related with dementia 27 . Signs and symptoms of dementia such as memory loss, confusion, inappropriate behavior, problems with communication, faulty reasoning, hallucination, fainting, and agitation usually escalate stigma among other South Asian communities.…”

Section: Revivalist Islam In Tackling Stigmasupporting

confidence: 75%

“…Resonating with earlier studies, Bangladeshi community members professed a strong belief in God and seemed to conform to Kibria's 18,25 explanation of “revivalist Islam”. In a participant sample, it appeared that older people without dementia mostly abided by Bengali and fundamentalist Islam, whereas, young family caregivers of people with dementia were influenced by a new or European Islam 16,26 . Under these broad terms, from an implicit sense, revivalist Islam has given the Bangladeshi community a distinct Muslim identity, which can articulate a sense of difference from other Muslim communities in the UK.…”

Section: Revivalist Islam In Tackling Stigmamentioning

confidence: 99%

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Dementia and revivalist Islam: New perspectives to understanding dementia and tackling stigma

Hossain

Mughal

2020

Evaluation Clinical Practice

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The notion of stigma and its influence on the understanding of dementia has commonly been recognized as a great challenge to seeking healthcare services for South Asians in England. The aim of this commentary is to examine how Muslims view, understand and tackle dementia stigma in the context of revivalist Islam, especially among Bangladeshi Muslims within their British communities. This article reflects on the interrelationship between dementia and revivalist Islam among Bangladeshi family caregivers and addresses the question of how revivalist Islam is a significant source of understanding dementia and tackling stigma. Bangladeshi caregivers show a practical attitude toward dementia which is generally acknowledged as a medical symptom, and for which family caregivers voluntarily seek healthcare support. This piece highlights underlying principles of caregivers religious beliefs in the acceptance of dementia as a disease, and in help‐seeking which is influenced by Qur'anic verses and Prophetic traditions. Bangladeshi caregivers' religious beliefs intertwine with their knowledge, perception, and attitudes toward caregiving for their relatives with dementia. Revivalist Islam offers family caregivers an opportunity to explore their inner wisdom through the challenging journey of caregiving for their family members with dementia.

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Section: Revivalist Islam In Tackling Stigmasupporting

confidence: 75%

Section: Revivalist Islam In Tackling Stigmamentioning

confidence: 99%

Dementia and revivalist Islam: New perspectives to understanding dementia and tackling stigma

Hossain

Mughal

2020

Evaluation Clinical Practice

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“…Despite the rapid growth in the number of aging Bangladeshi people living in the UK, very little research has sought to understand the experiences of people with dementia and their cultural understanding of dementia among this minority ethnic group. Previous research has highlighted aspects of caregivers' knowledge of dementia in the Bangladeshi community in England; however, people with the condition were not included in that research; therefore, the voices of people who have been diagnosed with dementia were not heard [9]. Although Hossain [9] aimed to understand the knowledge and attitudes of people with the condition, his study did not include those individuals with dementia.…”

Section: Introductionmentioning

confidence: 99%

“…Previous research has highlighted aspects of caregivers' knowledge of dementia in the Bangladeshi community in England; however, people with the condition were not included in that research; therefore, the voices of people who have been diagnosed with dementia were not heard [9]. Although Hossain [9] aimed to understand the knowledge and attitudes of people with the condition, his study did not include those individuals with dementia. Despite increasing recognition amongst researchers that people with dementia should be included in the research as active participants [10], people with the condition within the Bangladeshi community are underrepresented in research.…”

Section: Introductionmentioning

confidence: 99%

Cultural Myths, Superstitions, and Stigma Surrounding Dementia in a UK Bangladeshi Community

Hussain,

Clark,

Innes

2024

Health & Social Care in the Community

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The last three census data highlighted that UK Bangladeshi communities have the worst health outcomes. This includes a higher risk of type two diabetes and heart diseases; both are risk factors for developing vascular dementia. However, little is known about Bangladeshi community members’ understandings of dementia, including cultural myths. This paper focuses on the cultural myths, superstitions, and stigma surrounding dementia in an English Bangladeshi community from the direct experiences of people living with dementia, their caregivers, and the views of dementia service providers/stakeholders. This qualitative research was undertaken with three distinct participant groups using semistructured interviews (n = 25), who were recruited from community settings. The first and second participant groups explored the experiences of people with dementia (n = 10) and their family caregivers (n = 10). The third group examined stakeholders’/service providers’ views (n = 5). Interviews were recorded digitally and transcribed verbatim. Findings were reached using an interpretive approach, emphasising the sense people make in their own lives and experiences and how they frame and understand dementia. The study revealed that participants with dementia and their caregivers have “alternative” knowledge about dementia and do not necessarily understand dementia in a Westernised scientific/biomedical context. Misconceptions about dementia and belief in various myths and superstitions can lead people to go to spiritual healers or practice traditional remedies rather than to their GPs, delaying their dementia diagnosis. This paper concludes that there is a lack of awareness among the Bangladeshi participants and a need for targeted awareness about dementia to help dispel cultural myths and combat the stigma surrounding dementia within the Bangladeshi community.

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“…Bowes and Wilkinson, 2003;Turner et al 2005; Mukudam et al 2015; Giebel 12 et al 2016); researchers have also built on this by further work focusing specifically on, for example, Sikh communities(e.g. Jutlla and Moorland, 2009; Jutlla, 2010); as well as identifying that further work is required to understand specific ethnic groups such as Bangladeshi communities (see Hossain et al 2014). This study was designed to explore the lived experience of dementia from the perspective of the individuals of Black ethnicity living with dementia using a phenomenological approach.…”

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confidence: 99%

[P2–506]: Exploring the Lived Experience of the Individual of Black Ethnicity Living With Dementia: A Phenomenological Study

Mawaka

2017

Alzheimer's & Dementia

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In the United Kingdom(UK), Black and Minority Ethnic(BME) groups are more at risk of developing Vascular Dementia and experience a higher rate of younger-onset dementia (≤ 65 years), compared with the majority ethnic White British population. Despite this, BME people living with dementia in the UK, are under-represented in health services. They receive a diagnosis later in their disease progression and are less likely to access dementia services.There is a growing body of work in the UK exploring dementia experiences within Asian communities. However, there is limited research, considering the experiences of individuals Interpretive phenomenology based on the work of Heidegger (1927) was used to explore the experiences of six participants. Data was collected through a series of three semi-structured interviews with each participant, audio recorded and transcribed verbatim. Thematic data analysis was conducted, using a framework by Braun and Clarke (2006). A phenomenological interpretation identified three overarching themes: Life before Dementia, Journey to Diagnosis and Living with Dementia. The role of God and Religion was significant throughout the different stages of life and influenced the decision-making process to access health services.In totality, the themes represent the lived experience of living with dementia for the individuals of Black ethnicity who participated in this study. Through exploring the lived experience of dementia, this study provides some insight into the barriers to dementia service uptake in this population and their understandings of dementia.iii AcknowledgementsThere are many people who have encouraged me during this journey. I would like to thank the participants and their families, who gave up their time to talk to me, and without whom this ......................................................................................................... 15 2.2 Reviewing the literature ....................................................................................... 15 2.2.1 Literature search strategy .......................................................................... 15 2.2.2 Databases searched .................................................................................. 15 2.2.3 Key search terms employed ...................................................................... 16 2.2.4 Selection criteria ......................................................................................... 16 2.2.5 Inclusion and exclusion search criteria ...................................................... 16 2.2.6 Manual search ............................................................................................ 17 2.3 Identifying relevant papers/studies ...................................................................... 17 2.4 Reviewing literature within the qualitative research Gaps in the literature and rationale for study ...................................................... 31 2.7 Summary of chapter .......................................

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P3‐360: Understanding Dementia Among the Bangladeshi Community in England

Cited by 4 publications

References 0 publications

Dementia and revivalist Islam: New perspectives to understanding dementia and tackling stigma

Dementia and revivalist Islam: New perspectives to understanding dementia and tackling stigma

Cultural Myths, Superstitions, and Stigma Surrounding Dementia in a UK Bangladeshi Community

[P2–506]: Exploring the Lived Experience of the Individual of Black Ethnicity Living With Dementia: A Phenomenological Study

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