Paediatricians: Referral rates and speech pathology waiting lists

Keating, Diane; Syrmis, Maryanne; Hamilton, L; McMahon, Sandra

doi:10.1046/j.1440-1754.1998.00273.x

Cited by 17 publications

(14 citation statements)

References 9 publications

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“…There are limited data available on the effects of waitlists or the effects a delay of service have for children with developmental disabilities. Keating et al (1998), however, described the greatest concerns reported by stake-holders regarding time spent on waitlists as (1) concerns with the delay in the onset of services considering the clear benefits associated with early intervention, (2) lost time in the window of childhood development, and (3) prolonged or exacerbated stress and uncertainty put on families during the waiting process.…”

Section: Barriers To Servicesmentioning

confidence: 99%

Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities Via Telehealth

Simacek

Dimian

McComas

2017

J Autism Dev Disord

124

135

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Young children with neurodevelopmental disorders such as autism spectrum disorders (ASD) and Rett syndrome often experience severe communication impairments. This study examined the efficacy of parent-implemented communication assessment and intervention with remote coaching via telehealth on the acquisition of early communication skills of three young children with ASD (2) and Rett syndrome (1). Efficacy of the intervention was evaluated using single-case experimental designs. First, functional assessment was used to identify idiosyncratic/potentially communicative responses and contexts for each child. Next, parents implemented functional communication training (FCT). All of the children acquired the targeted communication responses. The findings support the efficacy of telehealth as a service delivery model to coach parents on intervention strategies for their children's early communication skills.

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Section: Barriers To Servicesmentioning

confidence: 99%

Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities Via Telehealth

Simacek

Dimian

McComas

2017

J Autism Dev Disord

124

135

View full text Add to dashboard Cite

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“…Workshop participants affirmed that long waits for CDR services were of significant concern to parents and providers alike in light of three main considerations: (1) the evidence for early intervention for children with special needs; (2) the time‐sensitive nature of the developmental period of childhood in relation to therapeutic interventions; 4 and (3) the expectation that prolonged waiting will add to stress and uncertainty among parents and family members of a child awaiting diagnostic, assessment, and rehabilitation services, given the evidence that coping and adaptation are enhanced when families receive information and support through early intervention programs 41,42 . Long wait lists may have a demoralizing effect on service providers, 7 and may act as a deterrent to physicians referring children for rehabilitation services 43 …”

Section: Stakeholder Views and Dialoguementioning

confidence: 99%

“…(Note that we use the term ‘rehabilitation’ to include services aimed at restoring function, as well as ‘habilitation’ services for children who may never have established various functional skills.) There is a high level of concern among parents and professionals about waiting for CDR services in Canada, the UK, 6,7 and other parts of the world, including Australia (M Wake, personal communication 2007) and South Africa (C Adnams, personal communication 2007); this concern is related to familiarity with evidence and opinion in favor of early intervention for affected children, anecdotal awareness that some children and families seem to wait for very long periods for developmental and rehabilitation services, and the perception that large variations in wait times exist between regions and jurisdictions.…”

mentioning

confidence: 99%

Waiting for child developmental and rehabilitation services: an overview of issues and needs

Miller

Armstrong

Mâsse

et al. 2008

Develop Med Child Neuro

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Concern about the length of time that children, young people, and families may have to wait to access assessment, diagnostic, interventional, therapeutic, and supportive child developmental and rehabilitation (CDR) services is widespread, but adequate data collection and research on this issue remain limited. We review key concepts and issues relevant to waiting for CDR services from the published literature, a national workshop devoted to this topic, and international experience. We conclude that gaps in data, evidence, and consensus challenge our ability to address the issue of waiting for CDR services in a systematic way. A program of research coupled with actions based on consensus-building is required. Research priorities include acquiring evidence of the appropriateness and effectiveness of different models of intervention and rehabilitation services, and documenting the experience and expectations of waiting families. Consensus-building processes are critical to identify, categorize, and prioritize 'sentinel' components of CDR service pathways: (1) to reduce the inherent complexity of the field; (2) to create benchmarks for waiting for these respective services; and (3) to develop definitions for wait-time subcomponents in CDR services. Collection of accurate and replicable data on wait times for CDR services can be used to document baseline realities, to monitor and improve system performance, and to conduct comparative and analytic research in the field of CDR services.Wait times are an important barrier to access to publicly provided medical and other health-related services, and are of concern to service users, to providers, and to policy-makers.

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“…Along with personnel and service provider shortages, long wait lists are another barrier to timely services. Estimates for wait times among families and individuals across the lifespan with NDDs are few and far between; however, stakeholders repeatedly report dissatisfaction with long wait lists and access to services (Keating, Syrmis, Hamilton, and Mcmahon 1998). Timely access to high-quality services may improve quality of life for persons with NDDs and their families and thus is important.…”

mentioning

confidence: 99%

Teaching Communicative Responses with a Speech-Generating Device Via Telehealth Coaching

Dimian

Elmquist

Reichle

et al. 2018

Adv Neurodev Disord

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Caregivers need support with teaching augmentative and alternative communication (AAC). The purpose of this study was to coach caregivers via telehealth (i.e., live video conferencing with Google Hangout) to implement communication assessments, functional communication training (FCT), and/or navigation training to address either idiosyncratic or problem behavior exhibited by two young boys with developmental delay (age 5.5 years) and autism (age 7 years) who were non-verbal. An adapted multiple probe design and a multiple probe design across three contexts (play, break from demands, help) were used to evaluate acquisition of communicative requests using high tech aided AAC on a speech-generating device (SGD; a Tobii Dynavox T10 device). A forward chain was also introduced to teach symbol selection and navigation on the SGD. Both children acquired the communicative alternatives across each context. Caregiver implementation fidelity was measured with procedural checklists and was acceptable across baseline and intervention sessions for both children. Children with developmental disabilities face many barriers to accessing needed communication intervention and may not have access to interventionists with the expertise in AAC with a SGD. Our findings have potential research implications for the use of telehealth to improve access to expertise in high tech aided AAC communication assessment and intervention.

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Paediatricians: Referral rates and speech pathology waiting lists

Abstract: The results have important implications for developing best practice models for improving referral processes and access to speech pathology services for children with communication disabilities.

Cited by 17 publications

References 9 publications

Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities Via Telehealth

Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities Via Telehealth

Waiting for child developmental and rehabilitation services: an overview of issues and needs

Teaching Communicative Responses with a Speech-Generating Device Via Telehealth Coaching

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