Pain-QuILT

Abstract

Consultations with adolescents and their health team indicate that the PQ is a clinically feasible tool for eliciting detailed self-report records of the sensory experience of chronic pain.

<p>PROMs data: can it be used to make decisions for individual patients? A narrative review</p>

“…Clinicians require a certain level of technology to implement PROMs that be used routinely with individual patients, including the appropriate hardware, software, and internet access 76. Any electronic system must be conducive to use within clinical settings, with PROMs presented in a format that is easy for the patient to navigate and complete, and provide data in a format that is easily accessible for the clinician 70,77…”

Availability of researcher-led eHealth tools for pain assessment and management: barriers, facilitators, costs, and design

“…The growing field of eHealth, defined as the use of information and communications technology for health, 135 has the potential to provide numerous benefits for consumers and health systems, such as improving the accessibility and cost-effectiveness of health care. 37 , 81 A plethora of eHealth tools (eg, mobile applications and online interventions) have been developed for a range of health conditions and symptoms, 90 , 98 , 102 including acute and chronic pain, 54 , 69 , 117 with promising results regarding their effectiveness. 81 Although considerable grant funding may be spent on the development and evaluation of evidence-based eHealth tools for pain with the rationale that they will improve access to care, current evidence suggests that end users (ie, targeted users of the tool) do not have access to these tools outside research studies, reducing their real-world impact.…”

<p>The Use of Measurement Systems to Support Patient Self-Management of Long-Term Conditions: An Overview of Opportunities and Challenges</p>

“…A decade ago, researchers were excited by the increasing availability of electronic tools and measurement systems to collect PROMs 33. Now electronic methods for collecting PROMs can include: personal computers, web-based systems, telephone, mobile apps, online diaries, and email reminders 33,36–38. A review of electronic PROM systems in cancer care identified 33 systems, with most (63%) being used throughout treatment and many (40%) for follow-up care 37…”

“…In addition to reducing patient burden, there are several benefits for moving towards electronic instead of paper-based measurement systems. Data processing is more efficient and less error-prone, as data can be scored automatically without requiring data input or transfer between systems 36,41. Data capture can also be more efficient and comprehensive, as PROMs can be readily completed in between clinic visits with minimal additional resources.…”

“…PROMs can change clinicians understanding of their patients’ needs and expand their focus to a wide range of issues related to a patients’ condition and symptoms 51. Patients feel that if clinicians read the information they have provided, they will gain a deeper understanding of their experience with their condition 36. Healthcare professionals have better insight into the disease activity and identification of issues that may have previously gone undetected 48.…”