Pall-04. Evaluation of Proactive and Rescue Enteral Tube Feedings in Children Undergoing Treatment for Medulloblastoma and Supratentorial Pnet, A single Institution Retrospective Chart Review

Abstract

NEURO-ONCOLOGY • NOVEMBER 2017 ing transitions at enrolment, 2 weeks and 12 weeks. Outcomes of interest included: acceptability (primary); quality of life [patient (FACT-Br), carer (CQOLC)]; needs for support [patient (SCNS-SF34), carer (CNSAT)]; disease-related information needs (PINQ); and preparedness to care [carer (PCS)] (secondary). Descriptive statistics were used to assess acceptability outcomes. Differences in patient and carer outcomes before and after ICoPE were assessed using repeated measures ANOVA. RESULTS: Thirty two patients (53% male, mean age 60), and 31 carers (42% male) participated. I-CoPE was highly acceptable: 95% eligible patients enrolled, 27 (88%) contributing data until deterioration/death. Post I-cope: (1) Patients reported fewer information (p<.001, ƞ p 2 .33) needs and improvements in quality of life following their diagnostic hospitalisation (p<.003, ƞ p 2 .24), which were not sustained following radiotherapy. (2) Carers reported fewer unmet supportive care (p=.009, ƞ p 2 .21) and information needs (p<.001, ƞ p 2 .33), improved quality of life (p=.08, ƞ p 2 .11), and increased preparedness to care (p=.04, ƞ p 2 .13). CONCLUSION: A model of supportive care delivered based upon illness transitions is highly acceptable and suggests preliminary efficacy in some areas. Formal randomized studies are now required.