Palliative Care: Caregiver’s Reflective Praxis

Marcassi, Heloísa Cremonez; Dall’Oglio, Laura Maria; Juliano, Isabella Maltauro; Campos, Priscilla Dal Prá; Ribeiro, Elaine Rossi

doi:10.15640/ijhs.v8n4a4

Cited by 1 publication

(2 citation statements)

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“…Cejudo et al ( 2015 ) found that relatives hide their emotions in the presence of patients in order to conceal their emotional discomfort. This dimension is in agreement with the results of a recent study by Cremonez et al ( 2020 ), who found that many carers withhold or disguise their feelings in front of patients when they are overwhelmed by the situation. Lope and Díaz ( 2019 ) suggested that there is an emotional component to IC as well as a cultural component.…”

Section: Discussionsupporting

confidence: 93%

“…This dimension is in agreement with the results of a recent study by Cremonez et al (2020), who found that many carers withhold or disguise their feelings in front of patients when they are overwhelmed by the situation. Lope and Díaz (2019) suggested that there Factor 2 of the ECOI, called 'Misrepresentation of the real situation', comprised items related to deception or distorting information about the disease (i.e.…”

Section: Discussionsupporting

confidence: 92%

See 1 more Smart Citation

Information concealment in palliative patients: Development and pilot study of a new scale for caregivers

Piedra‐Torres

López‐Martínez

Ramírez‐Maestre

2022

Health Social Care Comm

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According to the WHO (2020), the aim of palliative care is to improve the quality of life of people with life-threatening illnesses, as well as that of their families, and to address their physical, psychological and spiritual needs. One aspect of this aim is to provide patients with sufficient and accurate information about the entire disease process. The right to this information is specified at the global level in the Universal Declaration on Bioethics and Human Rights. The latter declaration was approved by UNESCO on October 19, 2005 based on the Universal Declaration of Human Rights of December 10, 1948. Thus, a relevant issue in the setting of palliative care is the phenomenon of concealment or misrepresentation of information that patients may need or require.This phenomenon is known in English as Withdrawing or Withholding Information. It is rare in Anglo-Saxon countries, but very common in Southern European cultures (Gysels et al., 2012) and in

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Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 92%