Palliative Care Concepts in Respiratory Disease

Heigener, David F.; Rabe, Klaus F.

doi:10.1159/000334189

Cited by 17 publications

(7 citation statements)

References 87 publications

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“…This shortcoming may be related to a perceived lack of time, but may also be attributed to a lack of priority. Still, recent research highlights the need of chains of care and formalized co-operation between COPD and palliative care (31). …”

Section: Discussionmentioning

confidence: 99%

Palliative care in COPD—web survey in Sweden highlights the current situation for a vulnerable group of patients

Strang¹,

Ekberg-Jansson²,

Strang³

et al. 2013

Upsala Journal of Medical Sciences

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BackgroundChronic obstructive pulmonary disease (COPD) is a common cause of death. Despite the heavy symptom burden in late stages, these patients are relatively seldom referred to specialist palliative care.MethodsA web-based survey concerning medical and organizational aspects of palliative care in COPD was distributed to respiratory physicians in Sweden. There were 93 respondents included in the study.ResultsPalliative care issues were regularly discussed with the patients according to a third of the respondents. About half of the respondents worked in settings where established routines for co-operation with palliative units were available at least to some extent. Less than half of the respondents (39%) were aware of current plans to develop palliative care, either as a co-operative effort or within the facility. Palliative care is focused on physical, psychological, social, and existential dimensions, and the proportions of respondents providing support within these dimensions, ‘always' or ‘often', were 83%, 36%, 32%, and 11%, respectively. Thus, to treat the physical dimensions was perceived as much more obvious than to address the other dimensions.ConclusionsThe survey indicates that the priorities and resources for palliative care in COPD are insufficient in Sweden. The data, despite limitations, reveal a lack of established team-work with specialized palliative care units and actual plans for such co-operation.

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Section: Discussionmentioning

confidence: 99%

Palliative care in COPD—web survey in Sweden highlights the current situation for a vulnerable group of patients

Strang¹,

Ekberg-Jansson²,

Strang³

et al. 2013

Upsala Journal of Medical Sciences

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“…Palliative care focuses on the relief of suffering for patients and families affected by serious illness through the assessment and treatment of physical, psychosocial and spiritual issues [8]. While traditionally associated with cancer, palliative approaches have been successfully applied to several chronic progressive illnesses including heart failure and pulmonary disease [9,10]. Several recent reviews propose palliative care approaches for PD [11,12], and a small but growing cadre of centers worldwide now offer interdisciplinary outpatient palliative care for PD.…”

Section: Introductionmentioning

confidence: 99%

Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research

Kluger

Fox

Timmons

et al. 2017

Parkinsonism & Related Disorders

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“…Palliative care (PC) is an approach to improving the QOL of patients and families focused on the relief of suffering through the management of physical, psychosocial, and spiritual issues . Although traditionally associated with cancer, PC has been successfully applied to several chronic illnesses, including heart failure and pulmonary disease . There is an emerging interest in applying PC to neurological illnesses, including PD .…”

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confidence: 99%

Defining Palliative Care Needs in Parkinson's Disease

Kluger

Shattuck

Berk

et al. 2018

Movement Disord Clin Pract

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ObjectivesObjectives: Palliative care addresses the suffering of patients and families affected by progressive illness through the management of medical symptoms, psychosocial issues, and spiritual concerns. Although there is an emerging interest in applying palliative care to Parkinson's disease (PD), potential palliative care needs have not been systematically investigated in PD patients. Our primary objective was to determine the prevalence of clinically significant symptomatic, psychosocial, and spiritual issues in PD and understand their impact on health-related quality of life (HRQOL). Secondary objectives included comparing the level of palliative care needs of PD patients to advanced cancer patients and assessing preferences for advance care planning. Methods Methods: Ninety PD patients and 47 patients with advanced cancer were surveyed regarding potential palliative care needs, including symptom burden, mood, anticipatory grief, and spiritual well-being. PD patients completed additional scales regarding HRQOL, motor symptoms, cognitive impairment, and preferences regarding advance care planning. ResultsResults: Potential palliative care needs, including high symptom burden and grief, were common in PD patients and contributed to HRQOL even when controlling for depression and motor severity. In all domains investigated, PD patients had similar or higher levels of palliative care needs as patients with advanced cancer. PD patients expressed a desire to complete advance directives early in the disease course and with a physician. Conclusions Conclusions: Palliative care needs contribute to HRQOL in PD and are of similar severity as cancer patients. This study supports and helps focus efforts to integrate palliative care principles in PD care across the spectrum of the disease.Although Parkinson's disease (PD) is traditionally viewed as a movement disorder, our understanding of PD has shifted markedly over the past 20 years. Nonmotor symptoms are now recognized as intrinsic features of PD with a significant impact on quality of life (QOL) and disability. 1-3 There is increasing recognition of the impact of PD on mortality, with recent Centers for Disease Control and Prevention statistics ranking PD as the 14th leading cause of death. 4 Palliative care (PC) is an approach to improving the QOL of patients and families focused on the relief of suffering through the management of physical, psychosocial, and spiritual issues. 5 Although traditionally associated with cancer, PC has been successfully applied to several chronic illnesses, including heart failure and pulmonary disease. 6,7 There is an emerging interest in applying PC to neurological illnesses, including PD. 8 A fundamental first step in moving this field forward is to systematically identify and define the PC needs of PD patients. Our primary objective was thus to understand the range of symptomatic, psychosocial, and spiritual issues in PD and understand how they impact QOL. Secondary objectives included comparing the severity and distribution of PC...

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Palliative Care Concepts in Respiratory Disease

Abstract: Many respiratory diseases besides lung cancer are still not curable. There is an unmet need for palliative care, especially in non-malignant conditions. In this article we focus on symptomatic treatment of typical symptoms in respiratory disease beyond causal treatment.

Cited by 17 publications

References 87 publications

Palliative care in COPD—web survey in Sweden highlights the current situation for a vulnerable group of patients

Palliative care in COPD—web survey in Sweden highlights the current situation for a vulnerable group of patients

Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research

Defining Palliative Care Needs in Parkinson's Disease

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